Antiphospholipidsyndrome Photos on Instagram

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@but_you_look_so_normal

Never been one to go on specific diets I've just tried my best to eat well & not have ice cream at every meal. With my history of strokes & autoimmune crap I've been thinking about really trying to follow the MIND diet... any thoughts, ideas, suggestions? Just curious what's worked well for everyone 🤷‍♀️ . . #stroke #strokesurvivor #youngstrokesurvivor #tbi #lupus #lupuswarrior #vasculitis #antiphospholipidsyndrome #fibro #fibromyalgia #spoonie #spoonielife #chronicillness #chronicpain #diet #dietitian #fitgirl #gettinghealthy #healthyliving #prevention #butyoulooksonormal

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@annisa_mci

#REPOST #TESTI PENGENTALAN DARAH Newest testimoni seorang member yg sdh mengeluarkan biaya 300jt untuk anaknya. Alhamdulillah dipertemukan dgn bioglass. Setelah capek dgn obat, mencoba berikhtiar dgn bioglass. Sekarang si ananda jarang sakit, jarang mengeluh dan kondisi terakhir semua tercatat normal...😇 Fyi, anaknya di diagnosa pengentalan darah Senangnya berbagi manfaat.. insyaallah jadi ladang amal bagi kita semua BETTER LIFE WITH MCI😇 SHARING IS CARING😇 #bioglass #pengentalandarah #bioglassuntukpengentalandarah #hiperkoagulabilitas #hughessyndrome #antiphospholipidsyndrome

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@annisa_mci

Newest testimoni seorang member yg sdh mengeluarkan biaya 300jt untuk anaknya. Alhamdulillah dipertemukan dgn bioglass. Setelah capek dgn obat, mencoba berikhtiar dgn bioglass. Sekarang si ananda jarang sakit, jarang mengeluh dan kondisi terakhir semua tercatat normal...😇 Fyi, anaknya di diagnosa pengentalan darah Senangnya berbagi manfaat.. insyaallah jadi ladang amal bagi kita semua Better life with mci 😍💚 #bioglass #pengentalandarah #bioglassuntukpengentalandarah #hiperkoagulabilitas #hughessyndrome #antiphospholipidsyndrome *copas testi

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@ravenredphoto

This is too important not to share and since this account has more followers than my @angela.ravenred one I’m reposting here. This is the rare disease that nearly took my life. I have been in hiatus since May and it’s because I had to travel to California for a surgery to save my life. Without it I was given about three to five years to live. I’m 3 months post op now and so thankful for everyone that made my journey possible. Now it’s my mission to raise awareness about this deadly disease that is all to often misdiagnosed. Also, check out @phassociation they featured my story today. If you have any questions please ask me. #Repost @angela.ravenred with @make_repost ・・・ Today is CTEPH Awareness day. Chronic thromboembolic pulmonary (CTEPH) is caused by chronic clot in the lungs. It’s a rare life threatening disease that nearly took mine. Early detection and intervention are the key to saving lives. Have questions? Ask me 💜 • • • • • #igsanantonio #pulmonaryhypertension #pulmonaryembolism #cteph #bustcteph #bloodclot #chronicillness #antiphospholipidsyndrome #aps #sanantoniospeaker #sablogger #ctephawarenessday #chronicillnessblogger #chronicillnessawareness #chronicillnessadvocate #igsa #phaware #chestfoundation #savelives #pulmonology #therightheart #ptesurgery

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@stilllifewithblaine

Just got home after a much needed vacation. Fellow tubies: never be afraid to rock a bikini with your tubes! Seriously nobody cares lol. Just live your best life and do whatever you want, wearing whatever you want! #NoShame

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@thecalicoqueen

Day Fourteen of @bimbleandpimble’s #bpsewvember and the Theme is Everyday. My everyday isn’t exactly glamorous. Or something I try and document anymore. I’m disabled; a self-professed spoonie (from The Spoon Theory) with multiple degenerative invisible pain conditions that highly impact my life. I’m sick. Im a chemo patient. Which means most days are spent in constant (currently incurable) pain that then spikes higher during a flare. Brain fog. Exhaustion. Countless symptoms of different diseases that all end in me being pretty much homebound. I try to hide how much pain I’m in or how sick I am because frankly people don’t want to hear it. I’ve had people leave my life because of it. I won’t get better. And that okay. I’m here. I’m walking still. So that’s better than nothing. Mostly it’s me and these weirdos. My fuzzy nurse and my battalion of stuffed sheep; this one in particular is amazing because he’s made for people like me. Baby heats up in the microwave so I can use heat therapy on infusion sites, swollen joints, the whole nine yards. 🐑 🐈 🥄 . . . 📷 by @calicojacksonphotos . . . #catchild #blackcat #blackcatsofinstagram #cat #catsofinstagram #beastie #salem #demonkitty #furbaby #catmom #spoonie #disability #endometriosis #fibromyalgia #psoriaticarthritis #celiac #antiphospholipidsyndrome #invisibledisease #spoonielife at Connecticut

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@angela.ravenred

Today is CTEPH Awareness day. Chronic thromboembolic pulmonary (CTEPH) is caused by chronic clot in the lungs. It’s a rare life threatening disease that nearly took mine. Early detection and intervention are the key to saving lives. Have questions? Ask me 💜 • • • • • #igsanantonio #pulmonaryhypertension #pulmonaryembolism #cteph #bustcteph #bloodclot #chronicillness #antiphospholipidsyndrome #aps #sanantoniospeaker #sablogger #ctephawarenessday #chronicillnessblogger #chronicillnessawareness #chronicillnessadvocate #igsa #phaware #chestfoundation #savelives #pulmonology #therightheart #ptesurgery

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@alilixo

I not only #lostmyjobforthis but my education and potential jobs as well. . In the 10 weeks since this picture was taken, I have been fired from countless jobs. And I've been told during interviews that I wouldn't be getting the job because of my cane and I've been asked "how could I do this to them? If they had known that I had a cane, they wouldn't have wasted their time having me come." . I've had Hemiplegic Migraines since I was 16. I had to withdraw from high school. I had to wait 5 years to start college. I couldn't get a job for the longest time because having HM's as often as I do scares people and makes them think I'm a liability. Even now it's a struggle. Trying to keep my symptoms under control so I don't lose my current jobs is ridiculously hard. Trying to be an actor with HM is even harder. There's been so many times when I've had to choose to between going to treatment so I can be well enough to work or going to work so I can afford to go to treatment. It's a never ending battle 🤦🏻‍♀️🤷🏻‍♀️💚💜 [ID: 2 pictures. 1) me in the hospital after finally being able to walk again. I'm wearing a black dress, have one arm in the air, and an IV in my arm. 2) a post from @achysmileblog that says "Did you lose your job to your illness? #lostmyjobforthis Share a photo of yourself, good or bad, with the hashtag]. at New York, New York

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@lexilee06

This is my daughter. My nugget. My lil bean. Unfiltered, taken the day after I gave birth to her. This is not a post being made because I am sad or depressed. This is a post of my daughter that I just wanted to share one of the very few pictures I have of her because I love her, am proud to be her mommy, and wish I could be posting monthly updates about her instead. I have been feeling that I don’t post HER enough but don’t want to flood my page of the same pictures over and over again. I wish the corpsman didn’t have to be the one that took the pictures of me with her because I didn’t know what to do besides stare down at her. I wish we’d had a professional or someone more versed to help me pose in more natural feeling pictures with my daughter. This picture I took myself, the ones they took of her broke my heart because of her skin tone giving away the fact that she was gone. So this is basically my “I made dis” moment that I’ve been wanting to have since I saw that proud momma otter meme 😂🤷🏻‍♀️👼🏻🤱🏻 #pregnancyloss #38weeks #38weeks4days #postpartum #postpartumfitness #gettingbackinshape #stillbirth #angelmom #angelbaby #closure #APS #antiphospholipidsyndrome #autoimmunedisease #findingmyselfagain #proudmama #daughter

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@chronicallyshan

Bundled up for the winter (AKA California winter where it’s been like 80° during the day). Even though it’s been super warm during the days my Raynaud’s has been acting up so badly. To combat this I’ve been rocking the fuzzy socks everyday 🧦having Raynaud’s can suck but it is a good excuse to buy multiple pairs of fuzzy socks 🙈🙆🏼‍♀️ at Los Angeles, California

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@moniboney

Technology was against me today & I could have let that be my excuse to go take a nap 😴 but I didn’t. On lifting day...no way!!! Instead of throwing my hands in the air & saying to heck with it, I threw on some music & did 3 sets of some of my favorite lifts (not all in the video) & I feel awesome! Technology might have been against me but I am always for me! 🙌

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@chio_nubianqueen

#chronicillnesschallenge Day 2, when was I first diagnosed? I was first diagnosed about 4 years and boy was I in denial. I fired that particular doctor. And I told absolutely no one about it. I was just so scared. That's when I start getting anxiety and panic attacks. And those were terrible. Last year I was diagnosed with #fibromyalgia and #sjogrenssyndrome. At the moment my rheumatologist is working to see if I may have #Antiphospholipidsyndrome or #raynauds or both. I'm praying so hard it's neither of them. . . . . . #lupus #LupusWarrior #lupusawareness #lupusflare #lupusproblems #lupusfacts #LivingAndThriving #lupusfighter #lupuslife #lupuschick #purpleforlupus #lupusstrong #SjogrensSyndrome #sjogrenswarrior #Fibromyalgia

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@cherimicheleblog

It’s so difficult when the people who are supposed to believe you, care for you when you’re sick and in need, or love and support you unconditionally just don’t. Realizing a few things about them helped me not to get depressed about it. 1) They’re probably broken inside and, no matter what I do or how much I try to please them, they’ll likely never treat me any differently. 2) It’s not personal. When I look closely at their relationships they treat most people the same way they treat me. The exception is they treat other broken people better...misery likes company. 3) I shouldn’t base my self worth on how broken people treat me or view me...their vision is skewed. “Your value doesn’t decrease based on someone’s inability to see your worth.” -Author Unknown ••••••••••••••••• #chronicillness #chronicillnesswarrior #spoonie #spoonielife #invisibleillness #value #worth #loveyourself #broken #family #friends #love #fibromyalgia #fibromyalgiawarrior #dysautonomia #pots #posturalorthostatictachycardiasyndrome #aps #antiphospholipidsyndrome #lupus #celiacdisease

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@strength_in_struggles

Another day, another diagnosis. My hematologist confirmed what I have thought for years; I have lupus. (I still have lupus anticoagulant/APS, too, but these are two different types of autoimmune diseases.) He is starting me on a medication to hopefully reduce some symptoms, but he wants me to get in with a rheumatologist soon. He also wants me to have another endoscopy, to rule out a GI bleed, due to my iron anemia, especially since I'm on blood thinners. The good news is that this doctor is on board for me to try IVIG, but it could take a bit for things to fall into place. No feeling sorry for me, please. This is validating. Though having yet another diagnosis is not thrilling, it adds to piecing together what's wrong, so doctors and I can work on trying to fix things. #chronicillness #invisibleillness #toomanyillnessestohashtag #autoimmunedisease #lupus #SLE #systematiclupus #IVIG #anemia #chronicpain #inflammation #mybodyattacksitself #keepfighting #nevergiveup #neverevergiveup #rheumatologist #hematologist #lupusanticoagulant #antiphospholipidsyndrome #bloodthinner #sickgirlproblems #ineedacure #Housereference #itislupus #immunesystem #anotherdiagnosis

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@angela.ravenred

My I have been up since 5am and got poked twice during lab draws face as I wait to see the doctor. • • • • • #cteph #phaware #pulmonaryhypertension #aps #antiphospholipidsyndrome #thisiswhatchronicillnesslookslike #fluseason #tisfluseason #nottodayflu #igsa #motivationalspeaker #sablogger #pulmonaryhypertensionawareness

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@joyalinc

Geez. The picture on the left is me a year ago. This is a picture of a momma who just lost her beloved daughter 4 months before. A momma who instantly became the mother and primary caregiver to a micropreemie infant just released from the NICU after a 4 month stay. A momma who had been bedridden for 7 years before her daughter’s pregnancy was in crisis and her daughter and grandson needed her. She was 80 pounds overweight and took 51 medicines a day, as well as 2 different kinds of chemo every month. She was on 2 steroids for autoimmune & thyroid disease & on 3 different hypertension medicines to control stroke-level high blood pressure. She was on stomach meds, pain meds, electrolyte meds, heart meds, depression and anxiety meds and then on meds to treat side effects of the other meds. This is a picture of a momma who was desperate to get better and willing to try anything that would help her get healthy and be able to take care of her precious daughter’s baby son for the next 18+ years. The picture on the right is a momma who finally listened to her friend and natural health practitioner about trying a combination of supplements that would help. This momma started taking the Plexus Triplex on her birthday, March 1, 2018, as a birthday gift to herself. By May 15th, this momma had lost 60 pounds of fat and steroid weight and all of her autoimmune diseases had gone into remission. Today, this momma has more resolve than ever to never give up. She’s on a mission to tell everyone who will listen about her story because she knows what it’s like to be sick, lonely, hopeless & hurting- and she’s here to help you take back your health and your life, and to show you that as long as there’s a will, there IS hope. #transformation #timehop1yearago #hopedealer #lupuswarrior #lupus #hashimotos #fibromyalgia #raynauds #antiphospholipidsyndrome #adrenalinsufficiency #thyroid #hysterectomy #childloss #death #postpartumperinatalcardiomyopathy #ppcm #maternalmorbidity #maternalmortality #preemie #micropreemie #grandmasraisinggrandkids #fighter #warrior #neversurrender at Raleigh, North Carolina

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@moniboney

I moved my workout inside last night so my daughter could join me. Even if her idea of participation is laying “in the way” 😍 or playing camera operator I love that she is involved!

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@justlikemardigra

I'm good. at Dallas, Texas

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@nurso68

A big thank you goes out to Megan Fatigati Maropoulos & John Maropoulos for buying me my much needed medical bracelet and card. Who knew a medical bracelet could be so stylish. Thank you guys for finding me something that I would love to wear and for keeping me safe. #aps #medicalbracelet #medicalcard #bettertobesafethansorry #bloodthinners #antiphospholipidsyndrome

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@justlikemardigra

The sweet and the sour... either way still a tasty treat 😜 Have a great weekend yawl! at Dallas, Texas

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@emily.aponno

"Bu, jangan lupa omega 3 nya diminum sebelum tidur ya, Supaya BB bayi nambah banyak" . ***Secuplik saran dari dokter utk bumil yang berjuang melawan #AntiPhospholipidSyndrome alias #PengentalanDarah ; TANPA heparin/ warfarin*** . Padahal hamil pertama dan kedua fix pakai obat minum dan suntik heparin di perut 2-3 x sehari, 1 ml.. Iyes suntik.. Suntik sendiri.. Di perut sendiri.. . Tp hamil ketiga ini gak perlu lagi 💖 . (Nah loh jd Nutrishake ini pelangsing apa bukan? Kok bs buat menambah BB janin? Kok bs buat ASI? YUUUK konsultasi gratis, Klik yaaaaa) http://bit.ly/CariTahuProduknya . #minumankesehatan #pelangsing #penggemuk #camilan #ngemil #shake #nutrishake #nutrisi #minumannutrisi #langsing #sehat #gemuk #gendut #resepsahur #resepbukapuasa #resepsahursehat #resepbukapuasasehat #camilansehat #camilanenak #camilanberbuka #camilanbergizi #minumannutrisi #resep #resepcamilan #resepcamilansehat #kulitcerah #kulitbersih #kulitglowing

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@surrogacyjourney_miami

There’s no better feeling than to read an inspiring true story which has the potential to leave someone with a sense of encouragement. At a time when news headlines often trigger sadness and concern, reading one that describes an act of kindness is more welcome now than it has ever been. There are many reasons why a woman may not be able to carry a child. She may have had a hysterectomy at an early age or rendered infertile following cancer treatments. Before Emma and after I have had numerous losses including two stillbirths. Finally the @univmiami doctors diagnosed me with #antiphospholipidsyndrome #mthfr #autoimmune illness. While medication exist for this condition, for me it never worked with any of the pregnancy’s. It’s these types of stories that pull on the heartstrings of mothers who want to help other women achieve their dreams of parenthood. So many couples around the world are struggling with infertility and are unable to have children of their own. While fertility treatments happily work for some, they sadly don’t work for others. Individuals and couples having endured failed pregnancy attempts are many times left with a feeling of defeat. But that raw emotion can be replaced with hope since surrogacy is a gift which can help someone experience the love of a child. These women don’t even know you but they are willing to help you. Something that your own family or friends won’t do for you. To me that is the biggest act of kindness. Plus they do it with great love for the family they are helping to create. Takes my breathe away! Im inspired to continue sharing about surrogacy since many still don’t know how it works. @gabunion is another example that surrogacy is sometimes part of our story and that’s OKAY! Im looking forward to our surrogacy journey with high hopes and gratitude in our heart for our surrogate. God always has a plan! #surrogacy #selfless #mthfrawareness #antiphospholipidsyndrome #lifteachotberup

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@kirsty_carr

Good days always get followed by absolutely exhausted bad days! 😞 But the marketing side of me loves these infographics to help raise awareness! 🙈 #antiphospholipidsyndrome #imnotantisocialjusttired #autoimmunedisease #apsawareness

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@thebusybeahive

People. This is what #aps looks like. I was re-sited for an IV 6 times in a week. My veins are also very difficult to place an IV. And once it is, it rarely last more than 24 hours before it doesn’t work again. My body attacks at the site and the bruise just keeps spreading. I’m so glad I can heal up from it now. #antiphospholipidsyndrome #autoimmunedisease #bruiseseverywhere

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@justlikemardigra

Every struggle ends... nothing is forever. #WednesdayWisdom at Dallas, Texas

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@kijad

Tamara, su hernia, nos medicinas para un mes; si todo esto es para un mes y yo. Hoy mi mamá me ayudó a recogerlas para no faltar al trabajo. Cómo quita tiempo el proceso médico. #kijad #ilovemydog #medication #keepyourselfalive #video #survivor #selfjourney #sindromedeanticuerposantifosfolipidos #antiphospholipidsyndrome #youarenotalone #chronicillness #livingwithchronicillness #meds #hope #selfie #videoselfie #livingwithanxietyanddepression #anxiety #survingdepression #depression #mybestself at Mexico City, Mexico

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@angela.ravenred

~ Surrender ~ Surrender can have a negative connotation but to me it’s positive. I surrender to me means I willingly give myself to the moment and trust. Today is my three month PTE surgery anniversary. The surgery that saved my life and I can’t help but reflect on all that has transpired and how far I have come. The human body truly is an incredible beast. What it can endure and come back from is phenomenal. Three months ago my life would be forever altered by the hands of a man I had just met. I think of him and his team often as I’m sure so many who have been in my shoes do. He held my life in his hands that day. The responsibility he takes on is not to be diminished. The courage and trust he has in himself and the team he surrounds himself with is something I can only be forever grateful for. Three months ago I surrendered my body to his hands with complete trust. And here I am now with a new life full of possibilities I couldn’t fathom before. To Dr Pretorius, the man who has saved so many of us with CTEPH, thank you. Thank you 🙏💜 Side note....I noticed I started doing portraits every month around the anniversary of my surgery so my plan is to do this over the next year. My way of honoring my body and appreciating it for all it does and how it lets me live. So this is me 3 months post PTE 🖤 • • • • • • #selfportrait #cteph #ptesurgery #ucsd #pulmonaryhypertension #pulmonaryembolism #antiphospholipidsyndrome #aps #pulmonaryhypertensionawareness #beyourownadvocate #igsa #sablogger #trust #surrender #surgeonsareamazing #forevergrateful #sanantoniospeaker #sanantoniowomen #sanantoniophotographer #yogasanantonio #icanbreathe #icanbreatheagain #ilive

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@katakashin

Living with #lupus but since trying out different #products it's making a big difference! My face is also getting smaller...but longer?! Haha. Bright red areas have calmed down a lot! #health #nomakeup #nofilter #esteelauder #hydration #moisturizer #moisturise #earlynight #bigeyes #instagood #instadaily #clearskin #beautyroutine #workingonme #skincare #skinroutine #skincareroutine #autoimmunedisease #autoimmune #antiphospholipidsyndrome #blood #bodypositive

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@sheridansquire

I wanted to share these pics from the other day when I was feeling exhausted, weak and achy and had to spend most of the day resting and sleeping. This is not uncommon for me and I frequently experience extreme fatigue. This is due to me having #antiphospholipidsyndrome and in 2015 a catastrophic episode of this condition. I hope this help keep social media more balanced and encourage others to share the lows and less than perfect pictures. My dog Manny has been and is my constant companion. #keepitreal #wearehuman #lupus #healingdog #pettherapy #lovemydog at Farnham

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@giftofwaiting

There have been too many things going on lately, but I’ve managed to schedule my first LIT (lymphocyte immunization therapy) a few days ago. One down, three more sessions to go. Sessions are usually spaced three weeks to a month apart, so my first FET willl probably be at the earliest after three months or so. It would also depend if my LAT scores increase after the treatments. No guarantees here. As such, my #ttc journey has taken a back seat amongst life’s daily grind. I know at least three women giving birth early next year. Not gonna lie, it’s hard for me to watch them in their journey, when I don’t even know where I am on mine. I can’t even talk to them and I know they are pretty much wary of my struggles to conceive. Infertility is quite isolating at times. They say that you have to trust the process and that’s what I keep telling myself. Maybe there’s just so much more I need to learn and experience before having a child. Sometimes I ask myself, is a child what I really even want right now? In the midst of all this uncertainty, I’ve felt like I’ve lost a lot of myself while I’m trying to conceive. Sometimes, I suddenly remember how I really feel about all this and start to cry. We’re so strong all the time, we forget we’re hurting too. Baby dust to all my #infertilitysisters out there ✨ I know how you all feel and I know very well the depths of soul searching we go through as we try to find the answers. Sometimes there aren’t even answers - just closures and inner peace. #infertilityawareness #infertilityawareness #infertilityhurts #infertilitywarriors #ivfjourney #ivfsisters #ivfwarriors #infertilitycommunity #reproductiveimmunology #antiphospholipidsyndrome #lymphocyteimmunizationtherapy #Faithful #christomlin

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@justlikemardigra

People got life messed up. They love the ones that talk behind their back, lie to their face and skip out when the road gets a lil bumpy but shit on those who ride for they ass the long way. I still believe in loyalty. So aye yo! Count me out of that foolishness because I love hard but #idgaf harder! Best believe I don't make u-turns either. When I'm done... I'm good on you my dude 😉👋 at Dallas, Texas

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@moniboney

Who doesn’t love a SALE? I know I do, especially with a toddler that grows too fast & a new baby on the way. . For the next 3 weeks you can save $20 when you sign up for my Holiday Hustle challenge group. . Don’t wait till 2019 to create new habits or reinforce existing ones. Set yourself apart from the crowd. Be a rebel...I dare you! 😈

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@the_wolf_of_swolestreet

#motivationmonday This pic says a lot. 5 year difference, many different gyms, a lot of ups and very many downs. Crazy shit though... got diagnosed earlier this year with (APS) Antiphospholipid Syndrome or Hughes Syndrome. (I'm not going to go into detail but feel free to research or hit me up.) Those that do know me know that I have be fighting this battle for many years but finally nailed down what it actually is. From there it was finally time to rebuild. Now even at 30yrs old I'm pushing harder, squatting deeper and hopefully soon pulling even more. Side note... I believe left I weighed in around 135lbs. Right is at 190lbs. #hughessyndrome #antiphospholipidsyndrome

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@panicrheumrevision

The correct answer to last Friday’s question was ‘C - anticardiolipin antibody.’ The patient had a history of recurrent foetal loss and livedo reticularis on her legs. These are both clinical features of #antiphospholipidsyndrome . APS can be primary or secondary and is often associated with SLE. Find out more about SLE and APS at panicrheum.co.uk. Did you get it to right? Try again soon with the Panic Rheum! Weekly #quiz

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@ivf_journey_dreams

Thank you @aprilmay7576 for the tag, here’s my 10 #fertilityfacts for #fertilityawarenessweek ... 💕I married my high school sweetheart, we’ve been #ttc for almost 5 years! 💕We have unexplained infertility 💕I have an extremely low egg count for my age, which really worries me. 💕Our first round of #ivf #icsi (Oct 17) they retrieved 3 eggs, which resulted in total fertilisation failure (extremely rare- 2% chance) 💕Our second round (Jan 18) they added AOA #artificaloocyteactivation again only 3 eggs were collected, however it worked we had 100% fertilisation! 💕After our first transfer we got our first BFP!! #miraclebaby 💕At 27 weeks pregnant absolutely loving pregnant life, we got told our baby no longer had a heartbeat, on the 20th July 2018, I gave birth to a beautiful baby boy #jamiedaniel💙 💕Post mortem results showed a rare condition with the placenta not being strong enough to support him, I’m now waiting for blood test results to see if I have rare disease #antiphospholipidsyndrome 💕We have 1 frozen embryo that we are planning to hopefully transfer soon #frozenembryotransfer 💕This journey has taken us to highest and lowest points of our life’s, and it’s no where near over, in fact a year later after all we’ve been through, we’re back to square one!! 💔 I nominate @i_thought_it_would_be_easy @babylove_ivf @my_ivf_journey1 @looking_for_our_rainbow_ @solo.iv #ivfwarrior #ivfsisters #icsisisters #fertilityjourney #grievingmother #stillbornstillloved #angelmom #darlingson #mummysboy

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@justlikemardigra

#Insomnia is a bitch and she visits me far too often and always over stays her gotdamn welcome. Disrespectful af, no home training and damn sure no common courtesy. 🤷‍♀️ what you need 👀? Bye👋bih!!! at Dallas, Texas

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@justlikemardigra

Clifford & Willis vintage pleated print skirt is soooooooo ughhhhhh cute! But here's the bit.... $12 👌😉😜👍🔥 #Thriftybehavior #yesgirl #boldfashionjunkie #brokebitch #poshmark at Dallas, Texas

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@moniboney

Being pregnant can make ordinary life things that were once very mundane, like driving home from work, challenging. . The last 3 days I’ve been having a hard time keeping my 👀 open while driving home. I’m pretty sure this baby is having a growth spurt & it’s making my 2nd trimester energy nonexistent. 😛 . When I got home yesterday I really needed a nap, so I took one. It meant that I missed my toddlers nap time workout window but that doesn’t mean I throw in the towel & not get it done at all. . Accountability is not just something that I hold others to. Accountability starts with me!

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@a.emsley

Treatment starts today but will continue forever. This is me now. & if I’d have never had my little boy I’d have never been diagnosed so he basically saved mummy’s life the little angel that he is. ❤️ #survivingstillbirth #mybabyisinheaven #hiddenillness #antiphospholipidsyndrome #newlife

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@autoimmunechronicals

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@lowcarb_lolita

2 vanilla chai ☕️ and a chamomile (for me)...the recovery process has begun.. kiddos home from the hospital... but he’s got along ways to go... im kickin it in to supermom mode to get him through it. #igotthis #hesgotthis #adultkids #notthemostsympatheticmother #changingmyways #grateful #hesalive #bloodclots #aps #blooddiseases #antiphospholipidsyndrome

1
@chronicallyshan

Had a quick appointment this morning with my allergist/immunologist because of a weird reaction I had on Tuesday. He thinks that it’s my acid reflux flaring combined with an issue with my vocal chords. I’m adding Prilosec into my medication regimen to see if it helps. I’ve been feeling down and discouraged this month because I have not been feeling good at all. It can be scary when a flare starts because there’s no given timeframe of when it will end. Just another harsh reality of chronic illness 🤷🏼‍♀️ #Spoonie #ChronicIllness #InvisibleIllness #AutoImmune #Warrior #AntiPhospholipidSyndrome #UndifferentiatedConnectiveTissueDisease #GERD #POTS #OrthostaticHypotension #IST #MastCellActivationSyndrome #Sjorgens #Raynauds #Potsie #Dysautonomia #Sick #DisabilityAwareness #StayStrong #SpoonieWarrior #SpoonieCommunity #SpooniesUnite #ButYouDontLookSick #Awareness #RareDisease #Advocate #LifeWithChronicIllness at Los Angeles, California

3
@zo_ro_sw

Send help... Fourth night in hospital now with a blood clot in my kidney!! #hospital #sick #poorly #bored #sendhelp #getmeoutofhere #antiphospholipidsyndrome

2
@stilllifewithblaine

Shoutout to Blaine for successfully alerting during labs after 11 months seizure free. Always good to have a heads up. Love my helpful boy 💕

23
@queenbtrfly_

It's a dreary, no makeup, messy hair day for me. I can not get over this crud! Starting to feel frustrated by it. I've been on steroids for weeks and got more last night! Sheesh! I'm literally about to be SHE-RA lol My momma calls me that. I sure haven't felt like one though. I feel like I've been in a flare up all month basically. So everything hurts and it's hard to explain how it hurts or how much! My family completely understands that though thankfully! That's exactly what I'm grateful for today the First of November. FAMILY 💖💕😍🙏👌👨‍👩‍👦‍👦🤼👩‍👧💞💓💙💟💫👑🦋 . . . #family #thankful #grateful #gratitude #spoonie #queenbtrfly #notfeelingtoogood #flareupssuck #aps #antiphospholipidsyndrome #invisibleillness #autoimmunedisorder

1
@justlikemardigra

I voted! Will you? #whenweallvote at Duncanville Public Library

2
@justlikemardigra

🎃🎃🎃 My precious lil #sugarskull is hitting the streets and looking marvelous doesn't she!!! at Dallas, Texas

3
@lexilee06

So two weeks ago I went and had my second blood draw in order to find out if I indeed have Antiphospholipid antibody syndrome or APS. Two days ago I finally got a call back with the results as well as the results from my daughter’s autopsy report. I am positive for APS more specifically I have cardiolipin IgM antibodies. I won’t be able to get in to meet with my PCM until after Thanksgiving to determine where we go from here and what the next step will be but I have been informed by my midwife and the OB that delivered and has been seeing me that future pregnancies will be considered high risk. That means I will be on a pregnancy safe blood thinner, most likely via injection every day up until about 36 weeks-ish, I’ll undergo non stress tests twice a week to check on baby, and I will most likely be induced somewhere around or before 38 weeks. Now as for her autopsy report, it stated she had “segmental vascular necrosis of the umbilical cord the cause of which is uncertain...however it is likely the changes in the placental vasculature compromised her circulation leading to death.” So it’s more than likely that my having APS and not knowing led to losing her. So to those who may have suffered from miscarriages, if you haven’t already then I recommend asking to be tested for APS as it’s often overlooked and some women go on to have several heartbreaking losses never knowing why. People with APS can look perfectly healthy and even be asymptotic (no symptoms or not recognize the symptoms). #APS #antiphospholipidsyndrome #antiphospholipidantibodysyndrome #hughessyndrome #autoimmunedisease #autoimmunedisorder #childloss #stillbirth #miscarriage #miscarriageawareness #stillbirthawareness #angelbaby #angelmommy #grievingmother #grievingfather #grief #loss #mourning

8
@justlikemardigra

Don't be #clueless this #halloween 🎃 who's excited for treats? at Dallas, Texas

2
@justlikemardigra

Meet my new companion animal! I love him so!!! Happy Happy #Halloween yawl!!! at Dallas, Texas

2
@justlikemardigra

Here's my definition. What is Dope to you? at Dallas, Texas

1
@justlikemardigra

Let's discuss this @whowhatwear faux leather skirt shall we!!! Best looking, best quality and best price faux leather skirt ever in life!!! #barnone #whowhatwear 😍😍😍 available at @target at Dallas, Texas

4
@justlikemardigra

Introducing a #veggi #pattie at participating @subway locations in Dallas! Ooooooo 😘 at Shell

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