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A poem from one of my all-time favorite living poets, #janehirshfield, that reminds me of when I was in treatment for what felt like forever. Hang in there, everyone. #poetrypower #stayathome #cancerfree #noevidenceofdisease #covidreads

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NED....No evidence of disease! What a joyful time this is for our family. We are so amazed at how God is healing our boy. We decided to celebrate with a trip to memaw and papaws play set and a cake from @1823_bakehouse #cheeringforcharlie #1823bakehouse #supportsmallbusiness #ned #noevidenceofdisease

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FEAR, WORRIES and STRESS is all over the media at the moment and whereas these are worrying times for sure, this is just a little glimpse of how a cancer patient feels everyday going through treatment, living in the unknown, unsure whether you are living or dying. Every single day is a blessing. Being alive is a gift, nothing that anyone should take for granted. 🙏 In this photo I celebrated my last clear scan. I felt, once again, that I was given some breathing room and time to relax and be me, worryfree and happy. I am so incredibly grateful to our NHS, to our doctors and nurses, not just now in the time of the Coronavirus outbreak, but for saving my life, for enable me to live on post stage III cancer. 🙏 Why do we always find it so hard to celebrate the little things and why do we always need a big wakeup call or near death experience to value what we have right here right now? Left and right people are dying of the Coronavirus and at the same time the same thing is happening in the bowel cancer world. In the past few months many people across the world have lost their lives to colon cancer, some of them were young, in their 20s and 30s, and had had a late diagnosis, which meant they were already stage IV when they found out they had the disease. I know it seems like the worst time to promote early cancer detection, but April is Bowel Cancer Awareness month so I beg you all to start checking your poo and to bring any troubling tummy ache, blood in your stools and severe fatigue up with your GP. Early detection is key as it will save lives. NHS is already under great pressure I know but you must still ensure your voice is heard if you know something isn't right. #standuptocancer #raisecancerawareness #bowelcancer #nevertooyoung #teambowelcancer #lifeaftercancer #noevidenceofdisease #remission #gratitude #gratefultobealive @bowelcanceruk @pennybrohnuk

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by @leashy2 Today was a GOOD day! It’s been 11 months since I was diagnosed with Triple Negative Breast Cancer and today my Oncologist said the words I’ve been waiting so long to hear: NO EVIDENCE OF DISEASE! I can’t even begin to express my joy, excitement, relief and every other emotion possible. The pain, stress, hair loss, body changes and crappy days were all worth it! I’m incredibly happy and pretty damn proud of myself. This experience has been brutal from start to finish physically, mentally, financially and emotionally, but I’m still here and have nothing but gratitude and hope! ⠀ To all my family and friends, THANK YOU! Thank you for your support, your prayers, your emails, your texts and all your phone calls have been so wonderful and have boosted my spirit throughout this journey. I mean that with my whole heart! The words you’ve shared matter and the time you’ve shared with me by being encouraging and kind matter more than you’ll ever know. Thank you for taking the time out of your lives to be so supportive of this battle. ⠀ Now the real healing begins. I’ll move forward to find my new normal in life and try not to live in fear of a reoccurrence. I’d be lying if I said that every headache, pain or any other ailment, that it’s not at the back of my mind. My poor husband tends to worry about it more than I do! ⠀ But, I try to remember that worrying does not take away the troubles of tomorrow, but it does take away today’s peace. So today I will be at peace and celebrate this amazing victory! ❤️ ⠀ #mysurvivalstory #cancerstory #cancerjourney #madeformore #cancercommunity #cancersupport #cancerrightnow #cancercare #cancersucks #cancerrecovery #cancerawareness #strongerthancancer #fuckcancer #tnbc #triplenegativebreastcancer #survivor #triplenegativebreastcancersurvivor #isurvived #godisgood #ned #noevidenceofdisease #breastcancerawareness #breastcancerunder40 #breastcancerwarrior #cancersurvivor #strongerthancancer #fightingpretty

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STILL NED...... Celebrating a CLEAN CT SCAN and SALUTING all our frontline healthcare workers with a safe-distance #strongarmselfie from my SuperNurse Zozo! 30 months NED from Stage 4 CRC 💪 #fightcrc #fightcolorectalcancer #colonclub #colorectalcancer #fuckcancer #cancersucks #colorectalcanceralliance #coloncancer #safedistance #safehands #socialdistancing #colorectalcancerawareness #relentlesschampions #NED #su2c #noevidenceofdisease #remission #rockymountaincancercenter

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This Women's History Month, we'll be posting about some of the women who have inspired us over the years. With the spread of coronavirus, we also wanted to thank our medical professionals for all the tireless work they do to keep us safe and healthy. Today, we're posting a clip from No Evidence of Disease featuring the inspirational GYN oncologist Dr. Joanie Hope! Learn more about her story at www.nedthemovie.com. #womenshistorymonth #womenshealth #endgyncancer #sheinspires #sheinspiresus #womenwarriors #guerreras #sparkstories #inspiration #noevidenceofdisease

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Bye bye cancer apartment. 👋.⁠ ⁠ It's so weird but I was diagnosed with the terminal, stage 4 lung cancer less than one week after moving in and my last scans confirmed NO ACTIVE DISEASE (!!!) just a few days before leaving.⁠ ⁠ Here is where I spent 3 weeks racked with sweats and vomiting after my first round of radiosurgery. (The second time I was back at work a few days later thanks to fasting). ⁠ ⁠ Here is where the oxygen concentrator was when I couldn't recline without it.⁠ ⁠ Here is where I vomited up the lifesaving targeted therapies.⁠ ⁠ And here is where I cooked so many nutritious meals. And rolled out my yoga mat every morning.⁠ ⁠ Some of this energy I'll take to the next place. Some of it I'm happy to leave behind 💕🌈⁠ ⁠ #cancersurvivor #cancerwarrior #cancerthriver #thriver #thriverforlife #survivor #remission #cancerremission #stage4cancer #stage4 #terminalcancer #cancersucks #fuckcancer #fcancer #fucancer #ned #noevidenceofdisease #cancerjourney #healing #healingjourney #wellnessjourney #lifestylechange #healthylifestyle #ketoforcancer

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The wait is over. ⏰ Delays in my CT scan results due to COVID-19 meetings. ⏰ And just as well I’ve been heavily distracted by work and our own COVID-19 meetings. Although with so many mixed and heightened emotions along with scanxiety this time. ⏰ 3 letters I’ve been waiting to hear for a good few days. ⏰ NED - no evidence of disease. Clear liver and lungs. ⏰ Grateful on so so many levels, but importantly, that I can go on with a job on the frontline, at such a critical time. Thankyou to those that have distracted me no end during the wait. 💜💜💜 Look after yourselves but also don’t forget to think about those around you too xx #waitisover #ned #scanclear #noevidenceofdisease #andbreathe #scanxiety #stillonthefrontline #freetoservetheNHS #gettingonwiththejobathand #fromdoctortopatient #frompatienttodoctor #inthistogether

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Today is my Cancerversary (The anniversary of the day I was diagnosed). It’s also the same day that I bought my house 5 years ago. This is sort of a coincidence, but not really. After treatment I was so terrified of a major recurrence that I saved everything I made. I was going to need it in this broken healthcare system. Except by the grace of god there was no major recurrence. So I stopped living in fear and turned that savings into a home. It’s not big or fancy, but I’m grateful everyday. It’s amazing how such devastation can eventually create so much joy. #picclinepretty #advancedmelanoma #cancersurvivor #melanomaawareness #earlydetectionsaveslives #mystory #healthcareforall #homeownerlife #cancerversary #noevidenceofdisease #ned

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On Friday the 13th I became a miracle.⁠ ⁠ I knew my oncologist was wrong when he said I had a new brain tumor - my would-be fifth. Having just returned from the @metabolichealthsummit I'd heard Dr. Seyfried talk about the risk of radiation necrosis in patients like me and done my own research.⁠ ⁠ My oncologist refused to consider any possibility but progression of my cancer. We fought. There are no neuro-oncologists in private practice in Hong Kong so I saw a neurosurgeon who ordered the scans I needed to prove my case. ⁠ ⁠ After almost 5 months of uncertainty, I finally have the definitive proof that the lesion in my brain is radiation necrosis from previous treatment. There is NO cancer anywhere in my brain - nor my body, based on the last scans which I will redo again Monday to confirm.⁠ ⁠ I am a walking miracle.⁠ ⁠ But I would have been dead if I'd followed my oncologist's proposal of more brain radiation. ⁠ ⁠ I'm horrified by the fact I had to fight so hard to educate the doctors who are supposed to be the experts. How many people blindly follow their doctor's advice and die as a result? I am truly enraged. ⁠ ⁠ It is impossible to differentiate radiation necrosis from cancer progression in the brain using MRI and the standard treatment for one could kill or disable you if you have the other. This is not something to be taken lightly or a time to let ego interfere.⁠ ⁠ #cancerfree #remission #cancerremission #braintumors #leptomeningealdisease #noevidenceofdisease #braintumorssuck #stage4needsmore #noactivedisease #fcancer #fucancer #fuckcancer #cancerwarrior #cancersurvivor #survivor #warrior #cancerthriver #thriver #brainradiation #radiation #necrosis #tumornecrosis #tumors #metastaticcancer #brainmets #cancertreatment #healingjourney #cancerjourney #healing #livingwell⁠ ⁠

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Fuck you cancer! Yesterday I got the results of my big double scan and it was totally clear. My body shows no evidence of disease. . I was so shocked. I sobbed big happy tears. I’d truly come to believe that it wasn’t going to be good news.... . Thank you life for giving me another chance, for allowing me the opportunity to see my children grow some more. . I feel completely reborn. . Now to focus on prevention and living again. . To everyone who’s been there for me, I cannot begin to explain how it’s helped during my darkest moments. Thank you to each and every one of you. . BIG L💋VE AND BE VIGILANT!!!! . . . . #cancersucks #cancer #breastcancer #chemohair #breastcancerwarrior #diep #diepflapreconstruction #breastcancerawareness #fightlikeagirl #invasiveductalcarcinoma #fuckcancer #youngbreastcancer #stronggirlsclub #remission #noevidenceofdisease

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In the midst of all this coronavirus anxiety, I figured I'd give everyone some good news. No evidence of disease, remission, whatever you want to call it, there is no cancer left in my body. I've been struggling to process this, second guessing my results and thinking about the future, and struggling with anxiety over this virus since I am still immunosuppressed, but I'm going to try and focus on this as a win. I will never be able to thank the people who have supported my family, in any and all forms, enough. The past 6 months have been absolute insanity, but we have made it to the other side of this. The only way out was through, and I am officially OUT. ✌🖕

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6 months NED and day 32 of the bone growth. I only have 38 more days until my next surgery and then 30 more days of bone growth before I can have my final surgery to take the device out and be able to bare weight on my leg. Muscle atrophy sucks and has made it almost impossible for me to bend my knee. #ewingsarcoma #morethan4 #bonegrowth #bonegrowthstimulator #hairgrowth #6monthsned #6months #muscleatrophy #noevidenceofdisease #cancersucks #negu

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RESULTS!! When the ‘have’ becomes the ‘had’! Just call me NED - no evidence of disease! Scan was clear and bloods were great!! Liver enzymes are back to normal, white blood cells are good (meaning I can now go in the pool and eat steak because my immune system is stronger) and my platelets are great! Can’t get much better than that! Feeling good as hell!! (Thanks @shez_agar_ for the song request 😝😂) Now I’m free for 3 months before going back in for more bloods and then a scan in about 4-6 months! Finally getting my life back 🙌🏼 (Even though I still lived as best I could throughout this whole journey) #results #NED #noevidenceofdisease #feelinggoodashell #gratefulforyouall #checkyourpoo #shitsandgiggles #whoslaughingnow #iwin

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Celebrating 10 years cancer free this year! #noevidenceofdisease #cancersurvivor #cancersucks #cancerfailed

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1 year N.E.D. . 1 five hour surgery, 4 PET scans, 1 MRI, countless hours of physical therapy, too many compression socks to keep track of, way too many doctor’s appointments, and even more mental health issues I’m sometimes honestly shocked I got 1 year of good health under my belt. . - When I was diagnosed my obgyn came up to my mother baby unit room to pray for me and said “don’t worry this isn’t a disease that women die from anymore”. In the last year I’ve seen more women than I can count pass away from cervical cancer, so I beg to differ. Some fighting for years and some who were diagnosed too late. All gone way too soon. Recently a woman my same age, same cancer stage, kids also same age as mine passed away after just after fighting a recurrence for less than 8 months. My cancer isn’t “the easy cancer”. It can come back with no warning and come back strong. I’m reminded of that every time I see a teal sister pass away. . - While my chances of cancer coming back is greatly under debate I am forever thankful for the year of good health I’ve had. That is not always something women get with this disease. This year would never have happened with out the amazing help of my husband, my family, and friends. The support was overwhelming and I cannot say thank you enough. Between the simple well wishes, prayers, to my awesome mother in law jumping on a plane last minute to come help with the kids. I’m truly blessed for all the AMAZING people in my life. So thank you from the deepest part of my heart to all of you. Here is to 1 year of no evidence of disease. Hopefully 1 year turns into many more ❤️❤️

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Happy 1 year #Remission day to me!!! I felt like I waited forever to be able to say these words. But I am so so so extremely thankful for these scars to help me be able to say these words today. When I say thank you to everyone who stood behind, beside or in front of me, I can tell you there is not enough words in the world to help me convey all the appreciation I have. Thankful for my team of doctors, every shoulder I’ve cried on, every prayer, well wish, good vibes sent. This is just the beginning and I know there will be more. But most of all, THANK YOU, GOD. Point. Blank. Period. They say I was so strong willed, I was mistaken for being cavalier, but that wasn’t the case. I just didn’t want to allow sickness to take living away from me. Thankful to my family, friends and those who’ve helped me in any sort of way along the way. And THANK YOU to my Parents, Brothers, Sisters, Nieces, Nephews and Girlfriend. Without you, I never would’ve fought as hard as I did. My driving force. Here’s to more years!! . . . . . . . . #YearRemissionUpdate #YearRemissionCheckUp #CancerSucks #FuckCancer #ColonCancerAwareness #ColorectalCancerAwareness #1YearRemission #NED #Love #Live #NoEvidenceOfDisease #CheckTheBooty #GoodVibes #PositiveVibes #VibeWithMe #FeelGoodVibes #Golden

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The day before chemo started we shared a bottle of Apricot Vanilla and we made a promise that when I was cancer free we would celebrate again with another bottle. 11 months later we get to celebrate! #fuckcancer #osteosarcomasurvivor #cancersurvivor #lovemyhusband #mysupportperson #caseybrewing #bonecancer #noevidenceofdisease #cancerfree

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The official results are in and Justin is still in remission! There is NO EVIDENCE OF DISEASE! Praise the lord! #babyjustinsjourney #justinmillerjr #amlleukemia #pediatriccancer #stjudeschildrensresearchhospital #morethan4 #remission #noevidenceofdisease #stjudeheroes #mysonismyhero

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By the grace of our Lord Jesus Christ, I rang the bell 🔔 today!!! Im done with 4 cycles Doxo chemo “Red Angel” and 12 cycles of paclitaxel, 16 cycles all in all!!! Isa lang akong ma ingon. Opaw gihapon ko hangtod karun pero okeahkeyoh, ok lang!!! God will provide!!! God will do it all for you. All you have to do is trust and obey God. Unsang secreto? PRAY!!! Pray!!! Pray harder!!! Kneel, beg the Lord for everything especially beg the Lord for miracle kay mao na IYANG specialty. WALAY IMPOSSIBLE SA GINOO. There’s too much to share pa. But just want to make this post short and clear that my God is the God of miracles, possibilities and everlasting over flowing LOVE!!! Thank you sa tanan naga pray for me. Gi dungog sa Ginoo tanan nato pag ampo. Lets continue praying 🧎‍♀️and dont give up naay Ginoo. His Name is Jesus Christ!!!

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Ya dos años que le gané la batalla al #coloncancer, hoy mis resultados salieron limpios #ned #noevidenceofdisease gracias Dios 🙏🏼 de tú mano siempre 😉

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"NED" (No evidence of disease) yes this is me! ⁣ ⁣ "There is no cancer showing on your scan Nicola" 🙏the words I have dreamt hearing almost every day since May 8th last year. ⁣ ⁣ I've read many books where people have shared their incredible cancer surviving stories and they use the term NED many times. ⁣ ⁣ I wondered if I'd ever be able to use this word in my story and found myself daily wondering if I too would be a SURVIVOR or fortunate to have a SURVIVOR story.⁣ ⁣ Whilst Im not a survivor yet as there's still a little way to go yet today I got to use the word NED for me and my body.🙌🙌 There was no evidence of disease found on my scans. It was my first scan post chemo and I will be having these every 3 months for the next 2yrs. ⁣ ⁣ The scan also showed some complications from surgery which explains why I've been in a lot of pain and felt that Im going backwards which will require more surgery and recovery. ⁣ ⁣ Focusing on the positives, I'm cancer free right now. 🙌⁣ ⁣ We're so pleased and I'd love to take the opportunity writing this post to thank everyone who has offered and shared their love, support & well wishes. Special thanks to all those who said prayers for me I truly believe they have worked and am so touched that many of you whom I've never met before have still sent me lots and lit candles & asked their fellow churches to join them. ⁣ ⁣ I'm convinced my heart has felt heavier with the amount of love and gratitude that has been sent. I truly believe it works. I'm so thankful and it really does help. 🙏🙏🙏🙏⁣ ⁣ The Next step is to keep super focused on the positives, take the time to come to terms with the new me, block any pathways for cancer to grow back with my specific diet and supplements and to become pain free. ⁣ ⁣ Heres to a life of good healthy & happiness! ⁣ ⁣ Lots of love ⁣ Nicola 😘 . #cancer #grateful #pray #blessed #anorectalsurgery #neuroendocrinecancer #highgrade #ned #noevidenceofdisease #cancerfree

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3rd anniversary of my cancer diagnosis. #repost #nightmarebegan #040317 #onthisdate during a week before the #judgmentday , I prayed hard , made merits to calm down and hope for the better. Still, it was #worldfallingapart I was diagnosed with the dreadful disease whoever never wants to have. I'm exercise fanatic but it eventually came into me. It's been 3 years now and I'm on #hormonetherapy hope to be in complete #remission #ned #noevidenceofdisease #endcancer #endBRCA #cancerfree #battletotheend #fightoffcancer I'll #domybest , the rest is destiny #gopro #hdr #3rdcancerversary #✌🏻️✌🏻 #👊🏻👊🏻 #🏊🏻🏊🏻🏊🏻 #reflection #040317 - #040320 #cancerversary

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12th and final round! ☘️🥊 Get the champagne on ice baby! #fuckcancer #comeback2020 #noevidenceofdisease #NED

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Happy birthday to one of our neuroblastoma warriors, Ethen, who turns 4 today!. . “It has been bittersweet with the loss of his little hospital buddy last week. So we are ever more thankful for the treasure of his life. And know we have an undeserved gift in him. He is so excited about being 4 that it has already been a super sweet morning!” -Christie, Ethen’s Mom. . Ethen was diagnosed with Stage 4 High Risk Neuroblastoma at 13 months old in April 2017. Ethen continues to show no evidence of disease! #beatgrowlive #neuroblastoma

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Dear boobs, Last year on this day, we said goodbye. The idea of losing a part of my body was scary and unfamiliar and it has taken the better part of a year to understand the complex layers of grief encased in that process. I remember when you first showed up. I was a tomboy, content to wear t-shirts and jeans, uncomfortable with the way you changed the shape of my body. Later, wishing that you had filled out just a bit more, so that I could feel feminine and attractive and desirable. For a lot of the time I didn’t pay much attention to you. I managed your existence and scarcely revealed you as I moved through life, never realizing that the chance to fully enjoy you might be taken away. You were supposed to nurse babies and feel tender touches, but instead, you were amputated from my chest. I don’t think I’ve ever acknowledged that I’m sorry for doing that to you. I know you didn’t deserve it, but I had to make an agonizing choice—you or life—and while I wish it could have been you and life, that choice was life. I miss you every day, but I’m learning to accept and move forward with this second chance I’ve been given. Here’s to figuring out life with foobs, in all of its weird ways. And here’s to learning to love my altered body with its 9 new scars. It will never be the same as before, but with time, it’ll be even better. Because today marks ONE YEAR CANCER FREE. I used to feel like I was jinxing my luck by acknowledging these kinds of milestones. That if I uttered my good fortune into the universe that I was somehow giving cancer a reason to show back up. But fuck that noise. “Life is amazing. And then it’s awful. And then it’s amazing again. And in between the amazing and awful it’s ordinary and mundane and routine. Breathe in the amazing, hold on through the awful, and relax and exhale during the ordinary. That’s just living heartbreaking, soul-healing, amazing, awful, ordinary life. And it’s breathtakingly beautiful.” The fact that I still get to be here to experience it all is not lost on me. “These mountains will shape you in ways you have yet to know. It will not be an easy journey, but you will not be traveling alone.” @morganharpernichols

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What a lovely thoughtful surprise 💝 #thened #noevidenceofdisease #alsohappybirthdayLiam 🎂 #february2020 #london🇬🇧

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In case you missed it. 💛🎗 . . We still have just under a year left of treatment in NYC, but we are getting close to the end of the clinical trial that she’s on. This is her second time doing it after relapsing in October of ‘18 and we hope that it will be more effective this time around! With three relapses over the last 6.5 years I’ve come to expect bad news, so when we get GOOD news, a little bit of weight is lifted off my chest. At least until it’s scan time again. 😆 They will continue to scan her every 3 months, and we will continue to pray that this neuroblastoma vaccine is working to get rid of every single cancer cell that might be hiding in her little body. I have complete faith and trust in both our team here at home and in NYC! #cancermom #neuroblastoma #warrior #noevidenceofdisease #tinyandmighty #strongertogether

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First scans without chemo. #noevidenceofdisease 🥂💃🏽 So yalla, let's go for the first deserved mini vacay. #vibes #flows #cancerpatients #normallife #backtomyself #healthy #happy #vienna PS: Never travel without the treats for the crew 😝. #saltedcaramel #m&m

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A message from Davis. #noevidenceofdisease #nomorechemo #byebyecancer #prayfordavis

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Five years ago today, I finished my FINAL ROUND OF #CHEMO!!!! 🙌🙌🙌🙌🙌⁣ ⁣ I was bald and advised to not drink alcohol nor eat sushi during #chemotherapy, since raw food was a risk with my low immune system — not to mention that my taste buds were gone (and everything tasted like metal!) — which was the worst for this serious foodie. 😢⁣ ⁣ Tonight, I celebrated not only the return of my hair & taste buds with some yummy sushi + wine 😋...but the absolute GIFT to still have #noevidenceofdisease (NED) for almost FIVE YEARS! 🎉🎉🎉🎉🎉⁣ ⁣ Today, I #celebratelife! ❤️❤️❤️❤️❤️ ⁣ ⁣ #lifeaftercancer #breastcancersurvivor #cancersurvivor #cancerversary #chemoversary #stillhere #getbusyliving #fuckcancer

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I can’t keep up with all the messages and comments I’ve received in regards to being cancer free. I’m overwhelmed and it means the world to me to finally be surrounded by an amazing group of friends. Y’all rock and my life wouldn’t be even remotely as incredible had it not been for my support nets. I’ve always said that people need to seek out their lighthouses. Lighthouses guide a ship to safety during times of trouble and disaster. I’m beyond lucky to have an entire platoon of light houses in my life! Thank you!. . . . #fuckcancer #inspiration #cancersurvivor #cancersucks #ovariancancer #breastcancer #cancerawareness #ned #noevidenceofdisease #cancerfree #remission #waltdisneyworld #disney #disneyworld #disneyfan #mouseears

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On Wednesday, I met with my radiation oncologist. While I’m still suffering a number of side effects that need to be addressed, he did use the words “no evidence of disease” aka NED which is everything!!! • He’s sending me for another PET scan as well as a colonoscopy and cystoscopy. Waiting to hear when these will be. • Currently, I’m working on regaining strength by doing home work outs and yoga once a week. The fatigue is still killing me though. I sleep 12 hours most days and still feel tired.. it’s frustrating. Slowly but surely I am recovering though.

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NO EVIDENCE OF DISEASE! 🎉🎉 It looks like the last lymph node metastasis was contained enough to keep from spreading further down my lymphatic system. This giant scare was just fatty tissue surrounding auxiliary lymph nodes. It feels like I’ve been paralyzed with fear for a month and I’m finally free. It’s palpable relief like I have never felt before. THANK YOU to everyone for all the love and support. My enormous fear of “showing weakness” has been assuaged by all the positivity I’ve been met with through this difficult time. To everyone who reached out, thank you for not letting me suffer alone. Each and every one of you helped validate my decision to speak up instead of just continuing to pretend like everything is fine. For all of you, I am so grateful. One of my biggest inspirations, Brené Brown, created a vulnerability mantra she uses that says “give me the courage to show up and let myself be seen.” I see you. Thank you for seeing me. #noevidenceofdisease #ned #melanoma #melanomaawareness #advancedmelanoma #earlydetectionsaveslives #cancersurvivor

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4 years ago Feb 2016 - 2 surgeries.... my soul was strengthened 💪🏻🙏🏻 #4yearslater #noevidenceofdisease

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Saw the oncologist today. This beast of a man wants to tell everyone HE BEAT CANCER because for now he has NO EVIDENCE OF DISEASE. Truthfully, they're not sure that they got it all because his tumor was ulcerated. But it could take years to regrow and show signs. So, for now we watch and wait and live our lives. They don't have good data on stage 2B Melanoma (which is the official cancer staging) so there are a couple clinical trials (out of state) for immunotherapy but Jake's not interested in doing them. The oncologist said that scans are not going to help at this point because it's too early after the surgery. If there is still cancer it could take 5-10 years to reoccur. So at this point we are checking labs now and doing his first scan and more labs in 3 months. He will see the oncologist and dermatologist every 3 months for awhile. There is a 20% chance of the cancer reappearing (it can sit dormant for years or take years to grow enough to see or show signs) but the risk goes up as years go on. So just frequent checks for life, occasional scans and labs, and watching for symptoms and being safe in the sun. He's feeling pretty good. There's still a lot of swelling and pain that's spreading down his arm from removing the lymph nodes that should clear up in the next couple weeks. But, they'll be watching it to make sure it's not lymphodema. His primary tumor site is healing so well! He's hoping to go back to work in 11 days, but he'll be restricted to desk duty for a few weeks while he continues to heal. So, I guess, we just keep doing what we're doing. It's gone... But it will always be a part of our lives. Another new normal. The outcome was ideal. Doc said we should feel very blessed for where we are sitting with the size and ulceration of the tumor. And that we do. Thank you God and thank you to our unbelievably incredible support system. Love you all and love this man. #melanoma #noevidenceofdisease

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Davi be like: My Magic 8 Ball says “Don’t Count On It”, do there you go. #noevidenceofdisease #dogsaresafe #dachshund #dogsofinstagram #wearedifferentfromhumans

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📝1 OF TODAYS MANY LEARNING POINTS.... 🤓🤰 This is a really useful infographic released by the Royal College of Obstetricians and Gynecologists reviewing exercise guidelines for women during pregnancy 🤰🏃‍♀️🧘‍♀️💃🏊‍♀️ #pregnancy #exercise #keepactive #noevidenceofdisease harm #150mins #talktest #3daysaweek #strength #cardio #pelvicfloorexercises #listentoyourbody #bekindtoyourself #dontbumpthebump #newmums #mumstobe #resilent #superwomen #strong #blackheath #physiotherapy #specialism #mskpaininpregnancy

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No Evidence of Disease (NED) ❤️ . I got the news this week that I am in remission from cancer 🙌 It’s taken a few days to sink in, as I was completely convinced that it was being stubborn and hadn’t gone, but my PET scan was completely clear! I’m not out of the woods yet, the first two years are when this type of cancer is most likely to return (if it’s going to), so I’ll be seeing my oncologist every 3 months for the next 2 years. But fingers crossed it is gone for good 🤞 . I’m so grateful to have reached this point and acknowledge that there are so many that dream of reaching this moment, but this awful disease denies them. I can’t help but think how different things could have been if it wasn’t caught when it was. Once you have cancer, the feeling of what could have been and the worry about what the future will bring, never goes away. It’s something that I will have to learn to live with and be grateful that I am given this chance, that so many are not 🎗🖤 . . . #cervicalcancer #cervicalcancerawareness #cancerawareness #lifeaftercancer #trekstock #youngadultcancer #petscan #noevidenceofdisease #remission #girlvscancer #truecancerbodies

23

Time for #FridayIntroductions, so here's some fun facts you may not know about me! 🤗 . 1) Hi, I'm Rachel 👋, the founder of @rachelparkties. I proudly create made-to-order luxury ties, bow ties & wedding ties and recently had one worn to the @televisionacad #Emmys! 😱 (I love the HONOR of being a small part of my clients' big day!) ❤️ . 2) I'm a #triplenegativebreastcancer #breastcancersurvivor. 💕 I had 15 rounds of chemotherapy, three surgeries, 32 radiation treatments and officially passed 4+ years of having #NoEvidenceofDisease (N.E.D.)! 🙌 . 3) With my fashion design background, I used my sewing skills during #breastcancer treatment to create the #ParkPuff seatbelt pillow for #breastcancersurvivors. (Yep, I sew them all myself...with love!) ✂️💗 . 4) I am a #KoreanADoptee ( #KAD) 🇰🇷 and used to live in Madrid. Everyone expects me to speak Korean (I don't), so they're confused when I start to speak Spanish! 😝 . 5) This is what #breastcancer REALLY looks like!! Over four years ago, my fiancé captured my first walk after my major surgery (on left) — which you can see my IV & nurse had to go with me — I couldn’t even walk on my own. 😢 . On right, I walked the @nyfw runway in the 2018 @anaonointimates x @projectcancerland #nyfw show by @artheartsfashion benefiting @metavivor (w/ @mirasorvino). As an introverted #fashiondesigner, this is the LAST place I ever thought I’d find myself — and I can never thank my dear friend, @daynadono, enough for this AMAZING HONOR. 😘 . Although I once felt my body betrayed me, I CELEBRATED it that day, SCARS & ALL...because it’s also what got me through #cancer. 💪 [📷 Lovingly borrowed from the talented @iampetercooper 😙] . The AMAZING #AnaOno team will be rocking the #NYFW runway again this Sunday with #FearLESS — in partnership with #cancerland and benefiting #metavivor — featuring all breast cancer patient-models! 👏 . Wish I could be there with you all 😢...will be cheering you all on from California! 🥰 . #nohairdontcare #lifeaftercancer #breastcancerawareness #youngwomencananddogetbreastcancer #dontignorestageiv #stageivneedsmore #triplenegativebreastcancersurvivor #researchnotribbons

6

This day has become one of the best days of my life. Celebrating it for the 2nd time, and I’m immensely grateful. Hoping for many more “cancer free” (NED) February 6th’s in my future!

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😭I have the BEST husband and mom ever!! ⠀ ⠀ You guys 👉🏼 this is what true love looks like. 💙⠀ ⠀ My husband sat with me for almost 10 hours in the ER this weekend. He didn’t complain once. He didn’t get his normal breakfast and coffee. He called my mom to come watch the kids and didn’t say one thing about missing the super bowl. He’s so patient and cares for me probably more than I know. ⠀ ⠀ 💗My mom came over right away without asking questions and took care of my kids. When I text her to make me banana bread (they didn’t let me eat or drink anything ALL day 😢) she had it ready for me when I got home. I don’t know what I would do without either of them!! ⠀ ⠀ 😖My pain in my rib cage/ top stomach has been going on for almost two years now. The pain is, no joke, worse than labor pains. And NOTHING helps when it comes on.⠀ ⠀ 💣PLEASE don’t give me your suggestions. ⠀ This is just an update. ⠀ ⠀ I had a CT scan yesterday, followed by and MRI and then an ultrasound. Things we know. I have a cyst on my ovaries the size of a grapefruit. I have some spots on my liver but they didn’t think they look cancerous. And my gallbladder looks angry and I do have stones. 🙄⠀ ⠀ 📲So I will be following up with my OB and with a doctor about my gallbladder. Right now we just need answers so I can get some relief. 🙏🏼🙏🏼🙏🏼⠀ •⠀ •⠀ •⠀ ⠀ #cancerthriver #breastcancerthriver #cancerfree #lifeaftercancer #cancersucks #cancersucks👎 #breastcancerawareness #breastcancerwarriors #breastcancerfight #cancerfighter #lifeafterbreastcancer ⠀⠀⠀ #strongwomen #breastcancersurvivor #cancersurvivor #breastcancerwarrior #triplenegativebreastcancer #triplenegativebreastcancersurvivor #breastcancersupport⁣⠀⠀⠀ #tnbc #breastcancercommunity #fear #noevidenceofdisease #breastcancer #tnbccancersupport #warrior #cancerslayer #thisisreallife #marriagegoals #marriagematters #besthusbandever

19

Polar and I came across this painted pebble on our walk last week. It was small but caught my eye, as did the feather next to it. ⁣ Today, on World Cancer Day, I want to share it with anyone directly affected by cancer of any kind. ⁣ ⁣ Those of us who know the feeling in the pit of your stomach when you’re told you have it. Those of us who have had to hear the words “I’ve got cancer” come out of our own mouths over and over again as we tell the people close to us before even coming to terms with it ourselves. Those of us who didn’t tell anyone at all, because we just couldn’t face it.⁣ ⁣ This pebble is for those that have been (and are going) through surgery, chemotherapy, radiation and other conventional treatments, as well as those who have been (and are going) through ‘alternative’ treatments, such as IV vitamin C, ozone therapy, immunotherapy, emotional healing, infra-red saunas, nutritional protocols, immunomodulants, CBD, etc. ⁣ ⁣ It’s for those having a good, or a bad week. Those who feel strong, resilient and empowered and those who don’t. Those who identify as fighters and those who identify as self-healers. ⁣ ⁣ This stone is especially for those who don’t have anyone close to them and are going through this shitty journey alone. ⁣ ⁣ @ascending_cancer recently wrote: “Cancer patients and survivors are the strongest people on this planet....There is so much trauma involved in cancer. It’s the ultimate mind f*ck.” ⁣ ⁣ I took a screenshot because her words so perfectly articulated how I felt that day. How I’ve felt every day for the last 12 months, on both good days and bad days. How I might just feel for the rest of my life. ⁣ ⁣ But there’s a flip side. A light that accompanies the darkness. An enhanced knowledge of self (physically and emotionally), deep gratitude for things previously taken for granted. A renewed vigour for finding joy. And for those of us fortunate enough to experience remission, or ‘No Evidence of Disease’ status, feelings of triumph, relief and resilience. ⁣ ⁣ Wherever you are on your cancer journey, this is for you. This pebble appeared for me when I needed to see it - I hope this post has done the same for you ❤️

16

This the face of a little boy who has a clear MRI!!! One more scan tomorrow, but no evidence of disease from the MRI is huge!! #cancersurvivor #cancerwarrior #fightchildhoodcancer #noevidenceofdisease

3

almost three years I’ve been in the cancer arena. It’s a gigantic wave demolishing several life expectations of mine. Wish I could overcome it through technical knockout in a few years until being in remission and #noevidenceofdisease #NED #worldcancerday #battlingcancer #endBRCA #icancervive #cancervivor #livingwithcancer #liveinthemoment #worldcancerday2020 #04022020

0

WORLD CANCER DAY 💉 A good day to remind everyone out there to check your boobs, your poos, your moles, your testicles, your prostate and to get those smear tests done. If you don't feel right, don't let anyone tell you that you are and that is all in your head. 💊 We all know of someone who is battling cancer right now, someone who has lost their life. They are our sisters, our brothers, our mums, our dads, our in laws, that parent from school, our childhood friend. Getting a cancer diagnosis is tough and so is battling the disease. Being the carer or closest family, I feel, is probably even harder. Despite cancer diagnoses often being missed and delayed, I want to give a special thanks to the NHS in England for the amazing work that you do, especially all the specialist and hospital staff that look after you once a diagnosis has been done. 💊 I'm not bitter about what happened to me and the fact my cancer was found late, but change needs to happen. I feel optimistic for a future where we will find a way to combat cancer and where everyone can work closely together and put the emphasis on prevention and early detection to stop cancer from getting diagnosed too late. 💊 People get really uncomfortable on the subject of cancer, but it shouldn't be something dirty, taboo and unusual that only other people get. It is happening here and now and having the talk is key. #worldcancerday #lifeaftercancer #raisingcancerawareness #earlydetection #preventionratherthancure #bowelcanceruk #noevidenceofdisease #bowelcancersurvivor #nevertooyoung #standuptocancer

3

🤔As I’m sitting here, I’m trying to think about what I want to say on this day. ⠀ ⠀ Many doctors use different days to say you are NED (no evidence of disease) or cancer free. My doctor said it’s the day they removed the cancer. ⠀ ⠀ In July of 2017 at the age of 35 I was diagnosed with triple negative breast cancer. Healthy (so I thought) breast fed 3 babies, no family history of cancer and there I was with this horrible news. I ended up doing chemo first and then a double mastectomy. It was a year that changed my life forever. Both in a physical way and in a mental way. ⠀ ⠀ This weekend was two years ago the cancer was removed, but so were my breast. A part of my body, a part that made me a women. ⠀ ⠀ I had lost my hair from chemo and gained 30lbs from steroids. I was in the darkest place I had ever been. ⠀ ⠀ The FEAR. So much fear. The fear of the unknown. Fear of having to leave my babies without a mom. The fear of never getting to be myself again. I truly didn’t know if I would get a whole other year. ⠀ ⠀ The type of breast cancer I got has the highest reoccurrence rate with in 5 years. ⠀ ⠀ And while even typing that gives me anxiety, I can’t help but be grateful I’m still here. I got MORE summers with my family. One MORE school year with the kids. One MORE Christmas to make more memories.⠀ ⠀ To celebrate I’m just going to reflect on ALL the things I’m thankful for. All the things that I’ve gotten to do since that day a 2 years ago. ⠀ ⠀ I’m ALIVE! And I’m sooo thankful for that simple thing. 🙌🏼🙌🏼🙌🏼🙌🏼⠀ ⠀ •⠀ •⠀ •⠀ #cancerthriver #breastcancerthriver #cancerfree #lifeaftercancer #cancersucks #cancersucks👎 #breastcancerawareness #breastcancerwarriors #breastcancerfight #cancerfighter #lifeafterbreastcancer ⠀⠀ #strongwomen #breastcancersurvivor #cancersurvivor #breastcancerwarrior #triplenegativebreastcancer #triplenegativebreastcancersurvivor #breastcancersupport⁣⠀⠀ #tnbc #breastcancercommunity #fear #noevidenceofdisease #breastcancer #tnbccancersupport #warrior #anxiety #mentalhealthawareness #warriors #mentalhealthmatters #gratitude

46

NOW PLAYING: “DONT COUNT ME OUT “ OFF OF THE PINKHONEY ALBUM OUT ON ALL DIGITAL OUTLETS OFFICIALLY TODAY, MY BREAST CANCER IS IN REMISSION !!!! 💃🏽🥳 MY SHORT TERM GOAL ! PREVENT & DESTROY OVARIAN CANCER (BCRA 1 POSITIVE AND GET PAST THE MOST DANGEROUS YEAR, WHICH IS YEAR 3 LONG TERM GOAL ! REMAIN CANCER FREE ! LOVE TO ALL THAT PRAYED FOR ME AND WITH ME ! THOSE WHO CONSTANTLY ENCOURAGED ME AND SUPPORTED ME ! LOVE TO THOSE WHO SENT GIFTS , NONE MORE SPECIAL THAN ANY OTHERS AND NONE THAT WERE SMALL BUT GRAND IN LOVE AND GESTURE! AND SPECIAL LOVE TO THOSE REMAINING #WARRIORS AND THOSE IM PARADISE WHO FOUGHT WELL ! ALL THE GLORY GOES TO THE MOST HIGH WHO TOLD ME BEFORE ANY DIAGNOSIS “ WHATEVER ITS GONNA BE, HOWEVER IT GOES DOWN, YOU WILL BE ALRIGHT !!!!!!!!!!!!!!!!!! 🤲🏾💗 Love is Love - Me #JEFFERSSTRONG #HONEYDINERO #PINKHONEY #BREASTCANCER #BREASTCANCERWARRIOR #BREASTCANCERSUPPORT #PINKIE #BRCA1 #OVARIANCANCER #TRIPLENEGATIVEBREASTCANCER #REMISSION #NOEVIDENCEOFDISEASE

4

NOW PLAYING: “DONT COUNT ME OUT “ OFF OF THE PINKHONEY ALBUM OUT ON ALL DIGITAL OUTLETS OFFICIALLY TODAY , MY BREAST CANCER IS IN REMISSION !!!! 💃🏽🥳 MY SHORT TERM GOAL ! PREVENT & DESTROY OVARIAN CANCER (BCRA 1 POSITIVE AND GET PAST THE MOST DANGEROUS YEAR, WHICH IS YEAR 3 LONG TERM GOAL ! REMAIN CANCER FREE ! LOVE TO ALL THAT PRAYED FOR ME AND WITH ME ! THOSE WHO CONSTANTLY ENCOURAGED ME AND SUPPORTED ME ! LOVE TO THOSE WHO SENT GIFTS , NONE MORE SPECIAL THAN ANY OTHERS AND NONE THAT WERE SMALL BUT GRAND IN LOVE AND GESTURE! AND SPECIAL LOVE TO THOSE REMAINING #WARRIORS AND THOSE IM PARADISE WHO FOUGHT WELL ! ALL THE GLORY GOES TO THE MOST HIGH WHO TOLD ME BEFORE ANY DIAGNOSIS “ WHATEVER ITS GONNA BE, HOWEVER IT GOES DOWN, YOU WILL BE ALRIGHT !!!!!!!!!!!!!!!!!! 🤲🏾💗 Love is Love - Me #JEFFERSSTRONG #HONEYDINERO #PINKHONEY #BREASTCANCER #BREASTCANCERWARRIOR #BREASTCANCERSUPPORT #PINKIE #BRCA1 #OVARIANCANCER #TRIPLENEGATIVEBREASTCANCER #REMISSION #NOEVIDENCEOFDISEASE

4

NOW PLAYING: “DONT COUNT ME OUT “ OFF OF THE PINKHONEY ALBUM OUT ON ALL DIGITAL OUTLETS OFFICIALLY TODAY , MY BREAST CANCER IS IN REMISSION !!!! 💃🏽🥳 MY SHORT TERM GOAL ! PREVENT & DESTROY OVARIAN CANCER (BCRA 1 POSITIVE AND GET PAST THE MOST DANGEROUS YEAR, WHICH IS YEAR 3 LONG TERM GOAL ! REMAIN CANCER FREE ! LOVE TO ALL THAT PRAYED FOR ME AND WITH ME ! THOSE WHO CONSTANTLY ENCOURAGED ME AND SUPPORTED ME ! LOVE TO THOSE WHO SENT GIFTS , NONE MORE SPECIAL THAN ANY OTHERS AND NONE THAT WERE SMALL BUT GRAND IN LOVE AND GESTURE! AND SPECIAL LOVE TO THOSE REMAINING #WARRIORS AND THOSE IM PARADISE WHO FOUGHT WELL ! ALL THE GLORY GOES TO THE MOST HIGH WHO TOLD ME BEFORE ANY DIAGNOSIS “ WHATEVER ITS GONNA BE, HOWEVER IT GOES DOWN, YOU WILL BE ALRIGHT !!!!!!!!!!!!!!!!!! 🤲🏾💗 Love is Love - Me #JEFFERSSTRONG #HONEYDINERO #PINKHONEY #BREASTCANCER #BREASTCANCERWARRIOR #BREASTCANCERSUPPORT #PINKIE #BRCA1 #OVARIANCANCER #TRIPLENEGATIVEBREASTCANCER #REMISSION #NOEVIDENCEOFDISEASE

5

🌻The symbol for Osteosarcoma is a sunflower 🌻 Sunflowers usually face the sun but when they can’t find it they face each other 💛 The color that represents osteosarcoma is yellow 💛 . . . . . . . . #instagood #instamood #statigram #iphonesia #blog #blogger #igers #instadaily #tweegram #instagramhub #follow #bestoftheday #igdaily #picstitch #followme #instagramhub #osteosarcoma #picoftheday #life #cancer #sunflower #cancerawareness #cancersurvivor #nature #cancerfighter #noevidenceofdisease #california

1

Today! Oh it's such an incredibly special day! Today mark's 2 years that our daughter Adeleen 🥰received her bone marrow transplant from a very special donor...her big sister Emmarie❤ We are reminded of everything that the Lord has brought her through and though at the time we didnt understand why, we had a peace knowing and believing that our babygirl was going to be healed even in those hardest and toughest times. As we fought in prayer and worship with her we saw a beautiful miracle unfold right before our eyes during so many different moments in her battle against leukemia. From having no platelets to do an emergency splenectomy and needing to do so because of the risk of keeping her spleen would do further harm to her to when we almost lost her due to complications and went into septic shock... Being in that ICU with her for what seemed like forever and feeling like the wind got knocked out of us everytime she would dstat from a collapsed lung and so many other moments we will forever be grateful to God for getting her through them. I mean there is just so much I probably dont have room to go through every detail. We are just so incredibly grateful to have our precious girl with us here today. We also received great news yesterday that her very last bone marrow aspirate she had in December showed no evidence of the Kras mutation!!! Praise God for our Leeny girl because she would not be here if it werent for His healing power upon her life. NAHUM 1:9 #Heisfaithful #GlorytoGod #remission #noevidenceofdisease #bonemarrowtransplantanniversary #fighter #thispreciouslife #cherishingeverymoment

5

Well this was a fun memory to wake up to this morning 😄 + #breastcancersurvivor #survivor #thriver #breastcancer #stage4breastcancer #stage4needsmore #remission #ned #noevidenceofdisease

0

Got to see my koi buddies @leviticusbodypiercing and @jackthepiercer for my #traguspiercing checkup today 😍😍😍🤗🤗🤗 This piercing is a #fu@kcancer move for me. I've had #vasovagalsyncope with #needles precancer but my treatments and #mediation got me over that. 🙌🙌 I'm finally in a good place right now and hope to share that #peaceofmind with others that are struggling. 3 years NED #noevidenceofdisease on 2/10/30!!! xoxo -d

4

#thriverthursday: Hi 👋🏻 my name is Sarah - @flow.and.flux! In July 2018 I was diagnosed with ER+ PR- HER2+ breast cancer. At first, they said I was probably "very early stage 2", however after a PET scan, they unfortunately found two small spots on my sternum which automatically made me Stage 4. It was crushing to hear, but I soon learned that I belonged to a category called "oligometastatic", which basically means that although the cancer has spread to another part of my body, it has only spread to one area and in a very small amount. I also learned that being stage 4 from the start )also known as De Novo) is different than having a recurrence. The upside? I was told that I had a shot at a "cure" and that I had a good long-term prognosis. For treatment, I did 8 rounds of chemo, a partial mastectomy, and 25 rounds of radiation. I also began my maintenance therapy drugs which include tamoxifen, lupron, and herceptin/perjeta. In January 2019, I was told that I had a pathologically complete response to treatment and that I was cancer-free! 🎉💕 . To this day, I am still cancer-free. But the process of healing both mentally and physically continues. A big part of my journey has been sharing my story online and starting a blog (flowandflux.com). If you're curious to know more about my story please feel free to check out my blog or send me a message 💓 It's my mission to continue thriving despite my diagnosis. I'm so grateful to be a part of such an amazing community of women who are striving to do the same 🙏 We are all so much stronger and more capable than we realize ❤️ #nobaddays

6

One year clear!! Whoop whoop! Latest scans show No Evidence of Disease! - Just high cholesterol 😬 and a delicate bowel... which I can live with 😊👏👏👏 Tbt charity walk in September... @bowelcanceruk #noevidenceofdisease #bowelcancer #oneyearclear #checkyourpoo #lovetolive

30

The run up to the 19th of January is never easy for me. My body goes into a weird funk, my headspace changes and this year? I was too caught up with being busy and feeling crap to really listen to my body and acknowledge why she was doing what she was doing. For the last 7 years, in the run up to the 19th of January, my body remembers. She remembers that the 19th of January 2012 was my last day of radiotherapy. It was the last day in hospital-based cancer treatment. 8 years, year 7 has been the most turbulent health wise. With my chronic health issues all playing up. It was hard, I feel like a stone that has been ground so much that I’m turning into a fine powder. And yet, I’m still here. I’m taking that powder and sculpting it into something new. Into me, the me I choose to be despite and enriched by all these circumstances. 8 years done. It’s never a celebration. There’s a very small yay in recognition that I’m still going and a relief that I remain in “no evidence of disease” but there’s also grief, grief because I wish I had never had a cancerversary. Grief at knowing I will never really get that anxiety and trauma fully out of my system. I wish for a day where cancer was something I didn’t have to think about. My life is changing so much right now and yet, so many of my future decisions will be necessarily impacted by having had cancer. It’s the loss of carefree and spontaneous choice that I grieve the most. Be it cancer, EDS or my gut issues, this is the hardest part of living with the consequences of having been acutely or chronically ill. @shinecancersupport @ehlersdanlosuk Thanks @lisabennettinsta @sunnylux 📸 #cancersucks #cancersurvivor #chronicillness #chronicpain #chronicfatigue #paraclimber #grief #newnormal #newyearnewme #cancerversary #silverlining #mentalhealthmatters #mentalhealth #headspace #trauma #leanintoit #acceptance #noevidenceofdisease #luckyfin #limbdifference #ehlersdanlossyndrome #inflammatoryboweldisease #ibd #pcos #adversity #youareenough #youarewhoyouchoosetobe #believeinyourself #makeyourimpossiblepossible

27

Crazy to think that one year ago today I was in the midst of a 12 hour surgery to save my life. 😮 Over the past twelve months, HJ and I have spoken a lot about how grateful we are for our family and friends who’ve been so important in my recovery. 🥰 But today I wanted to acknowledge all the doctors and medical professionals without whom I wouldn’t be here. Specifically I’d like to thank Dr. Suzy Melkonian, who moved mountains to ensure I had the best care and treatment on the outset of my journey. I also want to thank Dr’s Amit Gupta and Kambiz Kosari at Cedars Sinai, who performed my surgery. I am VERY grateful to have been under their care. I also need to thank Dr’s Bahiraei, Koehler and Sindell at Mammoth Hospital for helping me finally get rid of a tenacious post-operative infection (not acquired at Cedars, but rather another hospital that put in a surgical drain afterwards), and finally Dr. Haris Zahoor at USC/Norris, who continues to supervise my recovery and has given me the confidence to move forward with my life. I also need to thank all the nurses, CNA’s, and other staff who were all so kind to us. THANK YOU to all these folks - and to everyone else who’s supported us this past year ❤️ #noevidenceofdisease #kidneycancer

49

After many tears shed and a very long physically and emotionally day .. The IV was a mess 😭Maddie is now sleeping all comfy in her bed. We met with her oncologist and her all her labs are pretty good except her iron again . I will continue to give her a iron supplement until all the labs are done again in July . Her Mri results show the same as last six months No Evidence of disease!!!!! Thank the Lord !! God is good !! She will have her next mri in July . Then her oncologist we might go to once a year !! When she turns 10 she will have full body scans every year to monitor her bc of her rare genetic syndrome. But for right now we are taking the clear scans and thanking God!! Her oncologist said she is still being talked about all over the country . She is a miracle , a true miracle!!Thank you for all the love prayers and support. #teammaddiestrong #lifraumenisyndrome #choroidplexuscarcinoma #noevidenceofdisease #nevergiveup💪 #miracleshappen

38

Hi my name is Eden Hynes I am a breast cancer survivor. I was diagnosed with breast cancer at the age of 24 I am 32 now. January 13, 2012 would be the day my life changed forever. Today I celebrate 8 years of being cancer free! I am extremely blessed to be able to be with out a reoccurrence in that time. Although I have been NED (no evidence of disease) for 8 years it does not mean that these 8 years have been a smooth cake walk once I “beat” breast cancer. Over that time I have over come many complications due to surgery and treatment. Surgery did not just stop at a one and done there were 4 that proceeded my initial and each one was a little harder on my body then the last. . Unfortunately at 8 years out I find myself looking down the surgical barrel again. This one will be one of the biggest yet and makes me so angry. No one tells you the troubles that will follow when you undergo full breast radiation with implant reconstruction, that the two aren’t compatible and furthermore that it will result in your implants to continuously fail due to the radiated skin. Which no longer makes me a candidate for implants therefore leaves me very little options for resolution. When does any of it end? Maybe year 9 will be the year maybe it wont be who knows. . I am now plagued with the question of what to do? Do I go flat and rock it like a lot of the badass women I follow and some I have the pleasure of knowing or do I give it one last shot at having breasts? Like many women I always loved my breasts but all of the issues year after year are making me second guess if I should even try one last time. . As I celebrate 8 years of life after breast cancer I will not take these moments of celebration for granted even if the road ahead maybe a little bumpy. . . . . #cancerversary #8years #8yearscancerfree #breastcancer #cancer #NED #noevidenceofdisease #youngbreastcancersurvivor #breastsurgery #breastrecon #breastconstruction #radition #cancertreatment #treatment #complications #flat #diepflap #choices #grateful #blessed #cancersucks

23

Tonight's dinner! Jackfruit burritos with mango salsa and avocado, lemon and garlic dip, kale and all the other ridiculously tasty fillings. Served in a sweet potato wrap. I made the jackfruit in the slow cooker which meant I was able to free up time for other things...did I mention laundry, emails and planning for the week ahead? #mexicanfood #pulledjackfruit #quickand easymeals #eatingforhealth #eatingtherainbow #lifeaftercancer #instafoodie #wholefoods #stuffed #noevidenceofdisease

12

I had somebody reach out earlier today asking for suggestions on top 3 things to give a friend who was starting radiation. I said a @radiantwrap, a tube of jeanscream.com, and a great book. What would you add to the list? (And thankfully my awesome radiation oncology team from @rexhealthcare lets patients choose a free radiant wrap. #itsthelittlethings) #radiation #radiationoncology #cancer #breastcancer #breastcancersurvivor #nursesrock #healthcare #healthyliving #noevidenceofdisease

9

I’ve had a few DMs concerned that my silence means bad news or that I’ve gone into labour. Neither is the case! ⁣ ⁣ Very happy to say that it’s another clear scan for Teddy 🙌🏻 (And clearly the baby very much still tucked up in here 😊)⁣ ...my absence has just been a case of extreme nesting, and also a very clingy little boy who isn’t giving me a minute to myself. Whilst I know he’s excited, I think he’s very aware that they baby is imminent and is also anxious about how things will change. He’s been pretending to a baby and is needing lots of cuddles, reassurance, and me at his side at all times. So I’m trying to give him as much attention as possible, baths together and lots of playing together while I’m still able to devote all my time to him.⁣ ⁣ #lifeaftercancer #noevidenceofdisease #childhoodcancer #neuroblastoma #38weekspregnant #secondbaby

95

#Milestones:. We were so happy to celebrate his halfway point. He was free of cancer, as the scans showed. We were blind to the future. But this was a happy day. . . Ask every question you can because if you don’t being blindsided hurts more than knowing the truth beforehand. I encourage conversations with your #oncologists daily. . . #momcologist #childhoodcancerawareness #angels #askquestions #livingwithscanxiety #gonetoosoon #noevidenceofdisease #scanxiety #livingwithscanxiety #childhoodcancer #gogold🎗 #pediatriconcology #pediatriccancer #pediatriconcologysocialwork #shutterfly

0

Apologies I have been a bit quiet as of late on my #NeuroendocrineTumour journey. Truth is I have started to forget (which is a real blessing, believe me!) how unwell I use to feel, and life has been a wonderful whirlwind recently with getting married, leaving work and moving country...! But I wanted to share my news that I continue to show ‘no evidence of disease’ following 3 separate operations and a lot of will power and trust. It’s been a long journey spanning nearly 4 years since diagnosis but worth every scan, appointment, injection, surgery to get here...! For now, no news is good news 😉 stay healthy x #NeuroendocrineCancer #NETCancer #PETScan #CTScan #MRIScan #NoEvidenceOfDisease #NED

10