Phighter Photos on Instagram

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It’s been almost 5 months since Penny and I went our separate ways. If you’re following along with my story, thank you! 🥰 And if you’re new around here, Penny is what I named my Cadd Legacy IV Infusion pump. ❤️ Hard to believe that this time last year, I was hooked up to a pump 24/7. Today things look a little different, still in Alabama but now I’m pump free y’all! After a long trying year of scary hospitalizations, unbelievable joy, and a lot of unknowns, I thought this next year MUST be easier right? But 2020 looks like it said, hold my beer. 🍺 There’s a ton of unknowns and things coming down the pipe I’m excited to share with you guys! We have a lot of big decisions to make and your prayers are coveted! We trust that God always has a bigger plan and we’re praying his will be done. 2020 bring it on 👏🏽 . . . . . . . . #lifegivingsquares #theeverygirl #lovelysquares #thehappynow #flashesofdelight #our_everyday_moments #thatsdarling #nothingisordinary #documentyourdays #simplemoments #pulmonaryhypertension #phaware #imawarethatimrare #phawareness #phighter #therightheart #chronicillness #invisibleillness #livingwithph #invisibledisability #invisibledisease #raredisease #phwarrior #livingwithchronicillness #pha #patientleader #patientadvocate #healthevoices #thespooniesisterhood

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I am working on my decade in review as suggested by @marieforleo and it has been quite emotional. So many life changing things have happened this last decade. It’s so crazy to look back and see how much has changed in 10 years! One thing I realized is that I don’t think I have ever shared was how I came up with my business name. Back in 2014, my 3 year old daughter was very suddenly diagnosed with a rare life threatening disease called Idiopathic Pulmonary Arterial Hypertension. It was a very traumatic year. When we found out, her little heart was actually 4 times it’s sized because it had been working so hard. I threw myself into studying herbalism because I wanted to help her but I also needed something for me to help me through all the long hospital nights. The name came to me one sleepless night as a nod to my daughter and all the amazing kiddos and families we have met along the way. This disease is such a large part of our life now that it makes sense it is a part of my business as well. Without it, I wouldn’t have been pushed to pursue this dream. Sometimes trauma and heartache put things in perspective and in this case it made us stronger as a family and as individuals. #phaware #phneedsacure #hope4acure #phawareness #phighter #phighter💜

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When you come home to find a super cool and thoughtful little gift in the mail ☺️ Thank you @snowcompanies for making me feel so appreciated! Happy holidays to all of you there too 💜 #phighter

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9/9/19 is the day my son made his transition. 3 whole months today. The hardest months of my entire life. Learning to live with a hole in my heart. God has been doing some amazing things however...to comfort me in a way. To let me know that I’m not alone. I met 3 mothers randomly last month who lost their child as well. And Malachi “My Angel” have been giving me signs he’s near...even before he made his transition. ☺️ My brain was just in a haze. I love you and miss you so much Son. #FlyHigh !! . . . #bereavedmother #grief #griefjourney #grieving #mysonisnowmyAngel #childloss #childlossawareness #pulmonaryhypertension #pulmonaryhypertensionawareness #organdonorawareness #doublelungtransplant #antibodymediatedrejection #justbreathe #lungtransplant #lifeisshort #myAngel #godsmessage #restinparadiseson #flyhighangel #rest #myson #myoldest #hisjourney #phkid #phighter #handsomeson #angelmommy #rarelungdisease #11inHeaven

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A chilled day of self-teaching the ukulele 🎶 #phighter #musician #ukulele #pulmonaryhypertension #NoCureAlwaysHope

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Our Christmas Angel trying on his costume for his Christmas Nativity ready to take into school for dress rehearsal. So can't wait to see him in his first ever school concert ... another massive and emotional milestone for our Jax and us 💙👼😍🌟 #perfectlyjaxonjude #ourjourney #astoldbymummy #jaxonjude #ourhero #truewarrior #phighter #showingushowitsdone #lifesgreatestteacher #comesofar #comealongway #firstschoolchristmasconcert #nativity #ourangel #christmas2019 #anothermassivemilestone #emotional #downsyndromeawareness #DS #downsyndrome #T21 #trisomy21 #pulmonaryhypertensionawareness #PH #pulmonaryhypertension #IPAH #morealikethandifferent #wouldntchangeathing #theluckyfew

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I made my ghostsona for Phight Club and they’re basically me but dead. #ghostsona #dannyphantom #phight #phighter #phandomphightclub

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Eeeeeek 🙉 my suit is here!!!!! If you only knew the week I’ve had. The suit that I chose and paid for did not get shipped, loooong story. So I had to scramble to find another and it had to be purple because now more than ever , I have to represent my #phighters. Thank the lord It has worked itself out. 3 more days and it’s off to #losangeles I go. #npcmastersnationals #npcfigurecompetitor #Icompetewithpulmonaryhtpertension #phighter #phaware #purpleforph #Eeeeeek 🙉 my suit is here!!!!! If you only knew the week I’ve had. The suit that I chose and paid for did not get shipped, loooong story. So I had to scramble to find another and it had to be purple because now more than ever , I have to represent my #phighters. Thank the lord It has worked itself out. 3 more days and it’s off to #losangeles I go. #npcmastersnationals #npcfigurecompetitor #I competewithpulmonaryhypertension #phighter #phaware #purpleforph #representingmypeople

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Today we had F.U.N. Dats all matters... 😍 #phaware #PHighter #pulmonaryarterialhypertension #phsg #phsingapore #

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Shh don’t tell my music students I’ve had my nails done 😂 I haven’t had them done for over a year, as I can’t play piano or cello with long nails, so I keep them short. But it’s nearly Christmas and I’ve decided to treat myself 💅🏼 #phighter #gelnails #pulmonaryhypertension #NoCureAlwaysHope

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So I’ve bought by myself a new workout program to do every morning. I’m not doing too long as I get breathless quickly, but I hope to slowly increase my workouts. I am doing this to help control my breathing and improve my fitness. I know people say New Year, New Me, but whilst my health is stronger than usual, I want to get in better shape and be fit for 30!! 💜 #fitness #phighter #pulmonaryhypertension #NoCureAlwaysHope

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What’s up Birmingham!? ✌🏽I’ve been waiting to see the doctor for over 2.5 hours. Also, I drove 3.5 hours to get here, and will turn around after actually having face time with the doctor for [20 minutes] and drive 3.5 hours home. 🤦🏽‍♀️ TALK ABOUT A LONG ASS DAY! But 👏🏽hell👏🏽yes to only doing this every two months, cause doing this monthly was some bullllllllllspit. Are we done yet? I’m ready to get home! . . . . . . . . #lifegivingsquares #theeverygirl #lovelysquares #thehappynow #flashesofdelight #our_everyday_moments #thatsdarling #nothingisordinary #documentyourdays #simplemoments #pulmonaryhypertension #phaware #imawarethatimrare #phawareness #phighter #therightheart #chronicillness #invisibleillness #livingwithph #invisibledisability #invisibledisease #raredisease #phwarrior #livingwithchronicillness #pha #patientleader #patientadvocate #healthevoices #thespooniesisterhood

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Oh my, how on earth have we hit December, the last month of 2019?! Business wise, music exams are over, so the Christmas song books are out and we can start to have some fun! There are only 3 weeks left of the school term, but Terry and I are busy every weekend leading up to Christmas, with Christmas meals, seeing friends and watching Pantos. There's lots going onto I'm a super happy that my health has turned around so I enjoy it all. Obviously with rest between the busy days. I hope you are all going into December with positivity and happiness.. keep PHighting! 💜 #PHighter #pulmonaryhypertension #December #christmas #NoCureAlwaysHope

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For the last day of Pulmonary Hypertension Awareness Month I am posting a poem I wrote about 2 years ago called PHight! I won first place in the poetry category of my Employee Art Show this year! I am very proud to always be fighting for myself and others with this disease! .... I'll just keep on fighting, and I know I will win!💜💜💪 #pulmonaryhypertensionawarenessmonth #phighter #poetry #pah #nocurealwayshope

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Day 30: My PH Wish Thank you for following my 30 day photo challenge for ph awareness month. Keep phighting everyone 💜 #phighter #phawarenessmonth #NoCureAlwaysHope #pulmonaryhypertension

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This is for the #phighter out there. Pulmonary Rehab has helped me overall with learning to live with this illness and learn to accomplish tasks that were simple. . . . #pulmonaryhypertension #pha #Lupus #mommiemogul

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It's the last day of #pulmonaryhypertensionawarenessmonth. We are throwing back to #walk4ph 2019. Pulmonary Hypertension exists in Nigeria, but it is in the dark, we have made it our major goal to raise awareness and #shinealight on this deadly disease in Nigeria. You can join the #phight too, join us for our next walk and help us get #PH out of the dark in Nigeria. #yousabiPH #Novembertoremember #phighter #lasgidi #phawareness #phnigeria #lagosevents #naijaevents #lagoshealth #lagosdoctors #nigeriahealth #bluelipschallenge

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