Sicklecellsucks Photos on Instagram

See related and similar tags

@21st.century.kid

When the #nurse is right on #time with them #pain meds 🕺🏾😂 . . . ◼️◼️◼️◼️◼️◼️◼️◼️◼️◼️◼️ #life #godfirst #LiveAsickLyfe #BloodLine #WARRIORS #WarriorMom #WeOutcha #MyDNA #MySCD #DNA #SCD #BLESSED #SICKLECELL #LIVEASICKLIFE #SINCE1LIKETHIS #SICKLECELLSUCKS #FUCKSICKLECELL #SICKLECELLISME #TEAMSICKLECELL #SICKLECELLWARRIOR #WEAINTPLAYING #WORLDSICKLECELLDAY #WORLDSICKLECELLAWARENESSDAY 🔴🔴🔴🔴🔴🔴🔴🔴🔴🔴🔴

When the #nurse is right on #time with them #pain meds 🕺🏾😂 . . . ◼️◼️◼️◼️◼️◼️◼️◼️◼️◼️◼️ #life #godfirst #LiveAsickLyfe #BloodLine #WARRIORS #WarriorMom #WeOutcha #MyDNA #MySCD #DNA #SCD #BLESSED #SICKLECELL #LIVEASICKLIFE #SINCE1LIKETHIS #SICKLECELLSUCKS #FUCKSICKLECELL #SICKLECELLISME #TEAMSICKLECELL #SICKLECELLWARRIOR #WEAINTPLAYING #WORLDSICKLECELLDAY #WORLDSICKLECELLAWARENESSDAY 🔴🔴🔴🔴🔴🔴🔴🔴🔴🔴🔴)?>

0
@bossmayne_shell

just wanna give a shout out to my best friend who has become more than that and now holds the title as my BigSister .. thank you for taking the time to help nurse me back to good health so I can get back to my regular life . I'm so grateful for you and I appreciate all that you do .. I love you sissy, to the moon and back #MySisNotUrs #SickleCellSucks #SickleCellWarrior #MySupportSystemIsEverything .

just wanna give a shout out to my best friend who has become more than that and now holds the title as my BigSister .. thank you for taking the time to help nurse me back to good health so I can get back to my regular life . I'm so grateful for you and I appreciate all that you do .. I love you sissy, to the moon and back #MySisNotUrs #SickleCellSucks #SickleCellWarrior #MySupportSystemIsEverything .)?> at New Orleans, Louisiana

14
@ladyjess217

#itgoesup🔝ontuesday🦅💧 #mopaint🌹legacy🎼💫217💫rp🌟 #modelzgalery🌹 ..@sicklecellmatters . . .. .Your pain is gone and your spirit is free 🕊 heaven has warrior angels Rest peacefully warrior❤️😢 @estefy_roycee To anyone close to her and needs information on @estefy_roycee Memorial service in houston please visit her page. #weneedacureNOW #beauty #pain #sicklecellsucks #sicklecell #houston #warrior #angel👼🏼🙏🏾

#itgoesup🔝ontuesday🦅💧 #mopaint🌹legacy🎼💫217💫rp🌟 #modelzgalery🌹 ..@sicklecellmatters . . .. .Your pain is gone and your spirit is free 🕊 heaven has warrior angels Rest peacefully warrior❤️😢 @estefy_roycee To anyone close to her and needs information on @estefy_roycee Memorial service in houston please visit her page. #weneedacureNOW #beauty #pain #sicklecellsucks #sicklecell #houston #warrior #angel👼🏼🙏🏾)?>

0
@theebbyeffect

A day in the life of #sicklecell I’m ok my doctor just being proactive. I’m get hydrated. #sicklecellwarrior #sicklecellsucks #sicklecellawareness

A day in the life of #sicklecell I’m ok my doctor just being proactive. I’m get hydrated. #sicklecellwarrior #sicklecellsucks #sicklecellawareness)?>

19
@magically_living

One thing for sure is that with FAITH all things are possible. I remember when I was once frustrated with the way I was building my brand. Frustrated that I couldn’t accomplish what I wanted to accomplish in a timely manner but I knew that if I just give it to God, prayed on it and worked just a little harder everything will be okay. Here I am today spreading awareness on Magically Living about Sickle cell disease. What are some things you have faith in? #scd #faith #sicklecellwarrior #sicklecellsucks #sicklecellawearness #hopeful #blessed #youarecapable

One thing for sure is that with FAITH all things are possible. I remember when I was once frustrated with the way I was building my brand. Frustrated that I couldn’t accomplish what I wanted to accomplish in a timely manner but I knew that if I just give it to God, prayed on it and worked just a little harder everything will be okay. Here I am today spreading awareness on Magically Living about Sickle cell disease. What are some things you have faith in? #scd #faith #sicklecellwarrior #sicklecellsucks #sicklecellawearness #hopeful #blessed #youarecapable)?>

2
@mellissadrake

We COME to SLAY! I am so honored to be a part of this years I SLAY SICKLE CELL event! It is truly a pleasure working with @islaysicklecellfoundation, @kcdivalyfe and @shawsangels . This special charitable event is all about brining awareness to sickle cell including a fabulous fashion show. We are bringing awareness of the disease and want to share with everyone the importance of how we can make a difference in the community. . . . . . #islaysicklecellfoundation #islaysicklecell #sicklecell #atlanta #sicklecellatlanta #divalyfe #charity #georgia #esmvcreativearts #esmv #sicklecellgeorgia #charitable #charitableevents #sicklecellevent #sicklecellcharity #sicklecellanemia #sicklecellawareness #sicklecelldisease #sicklecellsucks #sicklecellwarrior #sicklecellmatters #modelliason

We COME to SLAY! I am so honored to be a part of this years I SLAY SICKLE CELL event! It is truly a pleasure working with @islaysicklecellfoundation, @kcdivalyfe and @shawsangels . This special charitable event is all about brining awareness to sickle cell including a fabulous fashion show. We are bringing awareness of the disease and want to share with everyone the importance of how we can make a difference in the community. . . . . . #islaysicklecellfoundation #islaysicklecell #sicklecell #atlanta #sicklecellatlanta #divalyfe #charity #georgia #esmvcreativearts #esmv #sicklecellgeorgia #charitable #charitableevents #sicklecellevent #sicklecellcharity #sicklecellanemia #sicklecellawareness #sicklecelldisease #sicklecellsucks #sicklecellwarrior #sicklecellmatters #modelliason)?> at ESMV Creative Arts Agency

7
@prettygirlcoco23

My MCM @scorpios901realest he has been by my side since I've been here at the hospital. That's true support, friendship, love, dedication, and a beautiful spirit. This is one of the worst sickle cell crisis I've had in a long time. To have support during this crisis means the world to me. Thank you pumpkin! #sicklecellblogginglife #Sicklecell #sicklecellawareness #sicklecellsupport #sicklecellsucks

My MCM @scorpios901realest he has been by my side since I've been here at the hospital. That's true support, friendship, love, dedication, and a beautiful spirit. This is one of the worst sickle cell crisis I've had in a long time. To have support during this crisis means the world to me. Thank you pumpkin! #sicklecellblogginglife #Sicklecell #sicklecellawareness #sicklecellsupport #sicklecellsucks)?>

6
@trwashnton

Although it's been 7 years Not a day goes by that I don't think of you. Wish you were still here But knowing we will reunite again Helps to make the days a little easier! Miss you so much Big Bro! Continue to rest easy! #Siblings4Life #MyBigBro #110 #GoneButNeverForgotten #62412 #SickleCellSucks #SickleCell #SickleCellAnemia #SickleCellDisease #SCA #SCD #SickleCellAwareness

Although it's been 7 years Not a day goes by that I don't think of you. Wish you were still here But knowing we will reunite again Helps to make the days a little easier! Miss you so much Big Bro! Continue to rest easy! #Siblings4Life #MyBigBro #110 #GoneButNeverForgotten #62412 #SickleCellSucks #SickleCell #SickleCellAnemia #SickleCellDisease #SCA #SCD #SickleCellAwareness)?>

4
@prettygirlcoco23

This is why I love my #powerport in my chest. It saved me tonight. I went to feeling ok, to passing out, and now I'm in the hospital having a sickle cell crisis. They think I'm having internal issues with my kidneys as well. My hemoglobin (blood count) is below an 8 and they want to give me a blood transfusion(s) to get my blood count up. Every inch of my body hurts, it hurts to have someone touch me. Hard to breath and move around. At least I'm not alone @scorpios901realest is by my side. I'm so glad to have a support system to be with me. #sicklecellblogginglife #sicklecellawareness #sicklecellsucks #sicklecellpain

This is why I love my #powerport in my chest. It saved me tonight. I went to feeling ok, to passing out, and now I'm in the hospital having a sickle cell crisis. They think I'm having internal issues with my kidneys as well. My hemoglobin (blood count) is below an 8 and they want to give me a blood transfusion(s) to get my blood count up. Every inch of my body hurts, it hurts to have someone touch me. Hard to breath and move around. At least I'm not alone @scorpios901realest is by my side. I'm so glad to have a support system to be with me. #sicklecellblogginglife #sicklecellawareness #sicklecellsucks #sicklecellpain)?>

71
@livingwithsicklecellfs

Over the last few years I have been going hospital more frequently. 96 % percent of the time I go alone and I spend all night in a and e by myself. It can get very boring and depressing in hospital. To make my time a bit easier I befriend most of the nurses and doctors. Whenever I get a great nurse I always leave positive feedback and thank you letters. I always let everyone know that this nurse is amazing. I sometimes bring snacks and sweets. They love that. Nurses around then realise they they can improve the way they interact with patients. I build a good relationship with the nurses. When you have a good relationship with a nurse you always have someone to talk to. You don’t feel so alone. They always have your back and make sure you get treated right. They look out for you. They bring you treats and try to cheer you up. It’s always nice to have a nurse like that, especially when you always come in alone. It’s the same thing for doctors, you get seen quicker and you get treated better. They start listening to your concerns. Having a good relationship with the staff helps a lot. Don’t be afraid to tell them Thank you or compliment them. They don’t hear “Thank you” a lot so you showing that you appreciate them makes your stay more bearable. @thenurselovers @nursingsarcasm @we_love_nurses @nurses.station @_nurse_of_heart_ @nurse_life_ @nurse__today__ @nurses.co.uk #SickleCell #SickleCellAnemia #Sicklecellsucks #Chronicpain #pain #joints #hospital #nurses #sicklecellcrisissucks #fighter #geneticblooddisorder #redbloodcells #hiddenillness #silentillness #invisibleillness #chronicpain #chronicillness #sicklecelldisease #doctors #nurses #nhs #healthcare #ulcers #melanin #blackgirlmagic #blackisbeautiful #instadaily #awareness

Over the last few years I have been going hospital more frequently. 96 % percent of the time I go alone and I spend all night in a and e by myself. It can get very boring and depressing in hospital. To make my time a bit easier I befriend most of the nurses and doctors. Whenever I get a great nurse I always leave positive feedback and thank you letters. I always let everyone know that this nurse is amazing. I sometimes bring snacks and sweets. They love that. Nurses around then realise they they can improve the way they interact with patients. I build a good relationship with the nurses. When you have a good relationship with a nurse you always have someone to talk to. You don’t feel so alone. They always have your back and make sure you get treated right. They look out for you. They bring you treats and try to cheer you up. It’s always nice to have a nurse like that, especially when you always come in alone. It’s the same thing for doctors, you get seen quicker and you get treated better. They start listening to your concerns. Having a good relationship with the staff helps a lot. Don’t be afraid to tell them Thank you or compliment them. They don’t hear “Thank you” a lot so you showing that you appreciate them makes your stay more bearable. @thenurselovers @nursingsarcasm @we_love_nurses @nurses.station @_nurse_of_heart_ @nurse_life_ @nurse__today__ @nurses.co.uk #SickleCell #SickleCellAnemia #Sicklecellsucks #Chronicpain #pain #joints #hospital #nurses #sicklecellcrisissucks #fighter #geneticblooddisorder #redbloodcells #hiddenillness #silentillness #invisibleillness #chronicpain #chronicillness #sicklecelldisease #doctors #nurses #nhs #healthcare #ulcers #melanin #blackgirlmagic #blackisbeautiful #instadaily #awareness)?> at London, United Kingdom

5
@mogajiseun_woscf_sicklecell

#sicklecellanemia #sicklcellispain #sicklecellsucks #sicklecellproblems lord help me.. send me helpers plss lord....

#sicklecellanemia #sicklcellispain #sicklecellsucks #sicklecellproblems lord help me.. send me helpers plss lord....)?>

4
@phrozen_deuception

😍Camp Sickle Stars was one of the most incredible times I've ever had! My counselors and campers always get me emotional beyond compare!! 😭The last day tested the strength of my heart. We said bye to our babies and good bye to our beloved Isha Howard👼🏾!! Make your memories count people I know I always and forever will!!😏 #campsicklestars #sicklecellwarrior #sicklecellsucks #iloveyou

😍Camp Sickle Stars was one of the most incredible times I've ever had! My counselors and campers always get me emotional beyond compare!! 😭The last day tested the strength of my heart. We said bye to our babies and good bye to our beloved Isha Howard👼🏾!! Make your memories count people I know I always and forever will!!😏 #campsicklestars #sicklecellwarrior #sicklecellsucks #iloveyou)?>

6
@cutiepopglitzyglitterz

❤️😍😍😍😍😍😍😍❤️❤️😍😍😍😍😍 Posted @withrepost • @theebbyeffect Omg I’m melting!!! Inspo from @zasia_makeup!!! . . Lips @thecrayoncase Presidential 🖍 @cutiepopglitzyglitterz —————————————— #blackgirlmagic #makeupforblackwomen #makeuplooks #makeuplover #melanin #sfxmakeup #melting #mua #mue #future #crayoncutie #sicklecell #sicklecellwarrior #sicklecellsucks

❤️😍😍😍😍😍😍😍❤️❤️😍😍😍😍😍 Posted @withrepost • @theebbyeffect Omg I’m melting!!! Inspo from @zasia_makeup!!! . . Lips @thecrayoncase Presidential 🖍 @cutiepopglitzyglitterz —————————————— #blackgirlmagic #makeupforblackwomen #makeuplooks #makeuplover #melanin #sfxmakeup #melting #mua #mue #future #crayoncutie #sicklecell #sicklecellwarrior #sicklecellsucks)?>

2
@cutiepopglitzy

❤️😍😍😍😍😍😍😍❤️❤️😍😍😍😍😍 Posted @withrepost • @theebbyeffect Omg I’m melting!!! Inspo from @zasia_makeup!!! . . Lips @thecrayoncase Presidential 🖍 @cutiepopglitzyglitterz —————————————— #blackgirlmagic #makeupforblackwomen #makeuplooks #makeuplover #melanin #sfxmakeup #melting #mua #mue #future #crayoncutie #sicklecell #sicklecellwarrior #sicklecellsucks

❤️😍😍😍😍😍😍😍❤️❤️😍😍😍😍😍 Posted @withrepost • @theebbyeffect Omg I’m melting!!! Inspo from @zasia_makeup!!! . . Lips @thecrayoncase Presidential 🖍 @cutiepopglitzyglitterz —————————————— #blackgirlmagic #makeupforblackwomen #makeuplooks #makeuplover #melanin #sfxmakeup #melting #mua #mue #future #crayoncutie #sicklecell #sicklecellwarrior #sicklecellsucks)?>

0
@theebbyeffect

Omg I’m melting!!! Inspo from @zasia_makeup!!! . . Lips @thecrayoncase Presidential 🖍 @cutiepopglitzyglitterz —————————————— #blackgirlmagic #makeupforblackwomen #makeuplooks #makeuplover #melanin #sfxmakeup #melting #mua #mue #future #crayoncutie #sicklecell #sicklecellwarrior #sicklecellsucks

Omg I’m melting!!! Inspo from @zasia_makeup!!! . . Lips @thecrayoncase Presidential 🖍 @cutiepopglitzyglitterz —————————————— #blackgirlmagic #makeupforblackwomen #makeuplooks #makeuplover #melanin #sfxmakeup #melting #mua #mue #future #crayoncutie #sicklecell #sicklecellwarrior #sicklecellsucks)?>

17
@shakshope

It’s world WORLD SICKLE CELL DAY and I'm breaking the SILENCE...In 2016 my ❤ was shattered when I lost my cousin/childhood friend to Sickle Anemia & just three days later my grandmother passed away. However I inherited the strongest support system ever aside from family and friends I inherited ShaKs Warriors (whom I absolutely love). Shaks warriors led by her mother @fandangles_andy are continuing the fight for Shaks and so many others suffering from Sickle Cell. Shak’s Hope is a 501C (3) non-profit foundation dedicated to serve the community of people living with Sickle Cell Anemia. I am a proud Warrior & advocate for Sickle Cell Anemia. I got checked for the trait/disorder back in 2016 and encourage everyone to know your status. Sickle Cell is not a BLACK thing nor is it a WHITE thing it's a HUMAN thing. If your not already doing so follow us @shakshope for information, updates, events, support, and volunteer opportunities. #shakshope #sicklecellawareness #sicklecelldisease #sicklecellsucks #worldsicklecellawarenessday #continuingshaksfight #knowyourstatus #iloveASCDWarrior

It’s world WORLD SICKLE CELL DAY and I'm breaking the SILENCE...In 2016 my ❤ was shattered when I lost my cousin/childhood friend to Sickle Anemia & just three days later my grandmother passed away. However I inherited the strongest support system ever aside from family and friends I inherited ShaKs Warriors (whom I absolutely love). Shaks warriors led by her mother @fandangles_andy are continuing the fight for Shaks and so many others suffering from Sickle Cell. Shak’s Hope is a 501C (3) non-profit foundation dedicated to serve the community of people living with Sickle Cell Anemia. I am a proud Warrior & advocate for Sickle Cell Anemia. I got checked for the trait/disorder back in 2016 and encourage everyone to know your status. Sickle Cell is not a BLACK thing nor is it a WHITE thing it's a HUMAN thing. If your not already doing so follow us @shakshope for information, updates, events, support, and volunteer opportunities. #shakshope #sicklecellawareness #sicklecelldisease #sicklecellsucks #worldsicklecellawarenessday #continuingshaksfight #knowyourstatus #iloveASCDWarrior)?>

0
@shakshope

It’s world WORLD SICKLE CELL DAY and I'm breaking the SILENCE...In 2016 my ❤ was shattered when I lost my cousin/childhood friend to Sickle Anemia & just three days later my grandmother passed away. However I inherited the strongest support system ever. Aside from family and friends I inherited ShaKs Warriors (whom I absolutely love). Shaks warriors led by her mother @fandangles_andy are continuing the fight for Shaks and so many others suffering from Sickle Cell. Shak’s Hope is a 501C (3) non-profit foundation dedicated to serve the community of people living with Sickle Cell Anemia. I am a proud Warrior & advocate for Sickle Cell Anemia. I got checked for the trait/disorder back in 2016 and encourage everyone to know your status. Sickle Cell is not a BLACK thing nor is it a WHITE thing it's a HUMAN thing. If your not already doing so follow us @shakshope for information, updates, events, support, and volunteer opportunities. #shakshope #sicklecellawareness #sicklecelldisease #sicklecellsucks #worldsicklecellawarenessday #continuingshaksfight #knowyourstatus #iloveASCDWarrior

It’s world WORLD SICKLE CELL DAY and I'm breaking the SILENCE...In 2016 my ❤ was shattered when I lost my cousin/childhood friend to Sickle Anemia & just three days later my grandmother passed away. However I inherited the strongest support system ever. Aside from family and friends I inherited ShaKs Warriors (whom I absolutely love). Shaks warriors led by her mother @fandangles_andy are continuing the fight for Shaks and so many others suffering from Sickle Cell. Shak’s Hope is a 501C (3) non-profit foundation dedicated to serve the community of people living with Sickle Cell Anemia. I am a proud Warrior & advocate for Sickle Cell Anemia. I got checked for the trait/disorder back in 2016 and encourage everyone to know your status. Sickle Cell is not a BLACK thing nor is it a WHITE thing it's a HUMAN thing. If your not already doing so follow us @shakshope for information, updates, events, support, and volunteer opportunities. #shakshope #sicklecellawareness #sicklecelldisease #sicklecellsucks #worldsicklecellawarenessday #continuingshaksfight #knowyourstatus #iloveASCDWarrior)?>

0
@irene_ivelisee

✨✨TEAM ARI ✨✨ Walk with the Stars Walk for my oldest Arianna who was diagnosed with Sickle Cell Disease SS . The older she gets the more complications she’s been having so this walk is very important for us because it’s raising awareness and money for a CURE ! Ari really is our little Warrior, toughest girl you’ll ever meet💪🏼 #support #supportsicklecell #sicklecellsucks #sicklecellawareness #sicklecellanemia

✨✨TEAM ARI ✨✨ Walk with the Stars Walk for my oldest Arianna who was diagnosed with Sickle Cell Disease SS . The older she gets the more complications she’s been having so this walk is very important for us because it’s raising awareness and money for a CURE ! Ari really is our little Warrior, toughest girl you’ll ever meet💪🏼 #support #supportsicklecell #sicklecellsucks #sicklecellawareness #sicklecellanemia)?> at Sickle Cell Disease Association of America, Inc.

0
@niassong

Summer getaways are what we're doing this summer! Still a little guarded because of transplant, but we're taking it one day at a time! Chemotherapy can cause sun exposure sensitivity, so we made sure Nia had on SPF50 and a sun visor! Also, Kia and Oliver pitched the canopy for shade! We had a blast!❤ ❤❤❤❤❤ Visit our website for more stories and updates: http://www.niassong.com Like on Facebook: https://www.facebook.com/babyniassong/ Follow on Instagram: https://www.instagram.com/niassong/ Subscribe to YouTube: https://www.youtube.com/channel/UCtwkf6rdx2k9rwBYsetJh6Q Make a tax-deductible donation at: https://www.gofundme.com/niassong #sicklecellawareness #sicklecell #sicklecellwarrior #sicklecellanemia #sicklecelldisease #sicklecellsucks #sicklecellstrong #sicklecellfighter #sicklecellmatters #teamsicklecell  #sicklecelllife #sicklecellsoldier #sicklecellfamily #sicklecellsurvivor #transplanted #bonemarrowtransplant #transplantrecipient #bethematch #transplantlife #transplantation #bonemarrow #NiasSong #HLA #HLAIdentical #MatchedSibling #MatchSibling #TeamNia #FutureSickleCellSurvivor #BMTThriver #NiaStrong💪🏽

Summer getaways are what we're doing this summer! Still a little guarded because of transplant, but we're taking it one day at a time! Chemotherapy can cause sun exposure sensitivity, so we made sure Nia had on SPF50 and a sun visor! Also, Kia and Oliver pitched the canopy for shade! We had a blast!❤ ❤❤❤❤❤ Visit our website for more stories and updates: http://www.niassong.com Like on Facebook: https://www.facebook.com/babyniassong/ Follow on Instagram: https://www.instagram.com/niassong/ Subscribe to YouTube: https://www.youtube.com/channel/UCtwkf6rdx2k9rwBYsetJh6Q Make a tax-deductible donation at: https://www.gofundme.com/niassong #sicklecellawareness #sicklecell #sicklecellwarrior #sicklecellanemia #sicklecelldisease #sicklecellsucks #sicklecellstrong #sicklecellfighter #sicklecellmatters #teamsicklecell  #sicklecelllife #sicklecellsoldier #sicklecellfamily #sicklecellsurvivor #transplanted #bonemarrowtransplant #transplantrecipient #bethematch #transplantlife #transplantation #bonemarrow #NiasSong #HLA #HLAIdentical #MatchedSibling #MatchSibling #TeamNia #FutureSickleCellSurvivor #BMTThriver #NiaStrong💪🏽)?> at Myrtle Beach, South Carolina

2
@niassong

I spent my 7TH BIRTHDAY in the hospital (May 28th)! It wasn't Sickle Cell or Transplant related!🤦🏾‍♀️I had a reaction to the vaccination and came down with a respiratory infection! I'M OKAY! My immune system responded like it should've and I got to leave after the 2nd day! MOST IMPORTANTLY! I'M FINALLY 7!🙌🏾😜 Thanks for the continued support! ❤❤❤❤❤ Visit our website for more stories and updates: http://www.niassong.com Like on Facebook: https://www.facebook.com/babyniassong/ Follow on Instagram: https://www.instagram.com/niassong/ Subscribe to YouTube: https://www.youtube.com/channel/UCtwkf6rdx2k9rwBYsetJh6Q Make a tax-deductible donation at: https://www.gofundme.com/niassong #sicklecellawareness #sicklecell #sicklecellwarrior #sicklecellanemia #sicklecelldisease #sicklecellsucks #sicklecellstrong #sicklecellfighter #sicklecellmatters #teamsicklecell  #sicklecelllife #sicklecellsoldier #sicklecellfamily #sicklecellsurvivor #transplanted #bonemarrowtransplant #transplantrecipient #bethematch #transplantlife #transplantation #bonemarrow #NiasSong #HLA #HLAIdentical #MatchedSibling #MatchSibling #TeamNia #FutureSickleCellSurvivor #BMTThriver #NiaStrong💪🏽

I spent my 7TH BIRTHDAY in the hospital (May 28th)! It wasn't Sickle Cell or Transplant related!🤦🏾‍♀️I had a reaction to the vaccination and came down with a respiratory infection! I'M OKAY! My immune system responded like it should've and I got to leave after the 2nd day! MOST IMPORTANTLY! I'M FINALLY 7!🙌🏾😜 Thanks for the continued support! ❤❤❤❤❤ Visit our website for more stories and updates: http://www.niassong.com Like on Facebook: https://www.facebook.com/babyniassong/ Follow on Instagram: https://www.instagram.com/niassong/ Subscribe to YouTube: https://www.youtube.com/channel/UCtwkf6rdx2k9rwBYsetJh6Q Make a tax-deductible donation at: https://www.gofundme.com/niassong #sicklecellawareness #sicklecell #sicklecellwarrior #sicklecellanemia #sicklecelldisease #sicklecellsucks #sicklecellstrong #sicklecellfighter #sicklecellmatters #teamsicklecell  #sicklecelllife #sicklecellsoldier #sicklecellfamily #sicklecellsurvivor #transplanted #bonemarrowtransplant #transplantrecipient #bethematch #transplantlife #transplantation #bonemarrow #NiasSong #HLA #HLAIdentical #MatchedSibling #MatchSibling #TeamNia #FutureSickleCellSurvivor #BMTThriver #NiaStrong💪🏽)?> at China Xinhua Sci-Tech

0
@hajji_pheezy

Hello Abuja, In recognition of the World Sickle Cell Day, we will be hosting a free sickle cell outdoor event in collaboration with EpiConsult Diagnostics (A Sickle Cell Walk-in Center). Entertainment meets advocacy plus free goodies to benefit from. Get registered with our Exchange Blood Transfusion plan. The best in the city of Abuja. Vendor stands are available for a token, so holla to make reservations. Join in the fight against SCD today. Show support and create awareness. #chasinglifedocumentary #asicklecelldocumentary #awarriorsjourney #afightersjourney #sicklecellmovie #sicklecellanemia #sicklecellmatters #sicklcelldisease #sicklecelldocumentary #sicklecellfilmmaker #sicklecellstrong #sicklecellfilm #sicklecellawareness #sicklecellpain #sicklecellwarrior #sicklecellkings #sicklecellsucks #sicklecell

Hello Abuja, In recognition of the World Sickle Cell Day, we will be hosting a free sickle cell outdoor event in collaboration with EpiConsult Diagnostics (A Sickle Cell Walk-in Center). Entertainment meets advocacy plus free goodies to benefit from. Get registered with our Exchange Blood Transfusion plan. The best in the city of Abuja. Vendor stands are available for a token, so holla to make reservations. Join in the fight against SCD today. Show support and create awareness. #chasinglifedocumentary #asicklecelldocumentary #awarriorsjourney #afightersjourney #sicklecellmovie #sicklecellanemia #sicklecellmatters #sicklcelldisease #sicklecelldocumentary #sicklecellfilmmaker #sicklecellstrong #sicklecellfilm #sicklecellawareness #sicklecellpain #sicklecellwarrior #sicklecellkings #sicklecellsucks #sicklecell)?>

0
@king_of_epheezy

Hello Abuja, In recognition of the World Sickle Cell Day, we will be hosting a free sickle cell outdoor event in collaboration with EpiConsult Diagnostics (A Sickle Cell Walk-in Center). Entertainment meets advocacy plus free goodies to benefit from. Get registered with our Exchange Blood Transfusion plan. The best in the city of Abuja. Vendor stands are available for a token, so holla to make reservations. Join in the fight against SCD today. Show support and create awareness. #chasinglifedocumentary #asicklecelldocumentary #awarriorsjourney #afightersjourney #sicklecellmovie #sicklecellanemia #sicklecellmatters #sicklcelldisease #sicklecelldocumentary #sicklecellfilmmaker #sicklecellstrong #sicklecellfilm #sicklecellawareness #sicklecellpain #sicklecellwarrior #sicklecellkings #sicklecellsucks #sicklecell

Hello Abuja, In recognition of the World Sickle Cell Day, we will be hosting a free sickle cell outdoor event in collaboration with EpiConsult Diagnostics (A Sickle Cell Walk-in Center). Entertainment meets advocacy plus free goodies to benefit from. Get registered with our Exchange Blood Transfusion plan. The best in the city of Abuja. Vendor stands are available for a token, so holla to make reservations. Join in the fight against SCD today. Show support and create awareness. #chasinglifedocumentary #asicklecelldocumentary #awarriorsjourney #afightersjourney #sicklecellmovie #sicklecellanemia #sicklecellmatters #sicklcelldisease #sicklecelldocumentary #sicklecellfilmmaker #sicklecellstrong #sicklecellfilm #sicklecellawareness #sicklecellpain #sicklecellwarrior #sicklecellkings #sicklecellsucks #sicklecell)?>

0
@therealkingofepheezy

Hello Abuja, In recognition of the World Sickle Cell Day, we will be hosting a free sickle cell outdoor event in collaboration with EpiConsult Diagnostics (A Sickle Cell Walk-in Center). Entertainment meets advocacy plus free goodies to benefit from. Get registered with our Exchange Blood Transfusion plan. The best in the city of Abuja. Vendor stands are available for a token, so holla to make reservations. Join in the fight against SCD today. Show support and create awareness. #chasinglifedocumentary #asicklecelldocumentary #awarriorsjourney #afightersjourney #sicklecellmovie #sicklecellanemia #sicklecellmatters #sicklcelldisease #sicklecelldocumentary #sicklecellfilmmaker #sicklecellstrong #sicklecellfilm #sicklecellawareness #sicklecellpain #sicklecellwarrior #sicklecellkings #sicklecellsucks #sicklecell

Hello Abuja, In recognition of the World Sickle Cell Day, we will be hosting a free sickle cell outdoor event in collaboration with EpiConsult Diagnostics (A Sickle Cell Walk-in Center). Entertainment meets advocacy plus free goodies to benefit from. Get registered with our Exchange Blood Transfusion plan. The best in the city of Abuja. Vendor stands are available for a token, so holla to make reservations. Join in the fight against SCD today. Show support and create awareness. #chasinglifedocumentary #asicklecelldocumentary #awarriorsjourney #afightersjourney #sicklecellmovie #sicklecellanemia #sicklecellmatters #sicklcelldisease #sicklecelldocumentary #sicklecellfilmmaker #sicklecellstrong #sicklecellfilm #sicklecellawareness #sicklecellpain #sicklecellwarrior #sicklecellkings #sicklecellsucks #sicklecell)?>

0
@sickle_mosha

)?>

1
@sicklecellmatters

Your pain is gone and your spirit is free 🕊 heaven has warrior angels Rest peacefully warrior❤️😢 @estefy_roycee To anyone close to her and needs information on @estefy_roycee Memorial service in houston please visit her page. #weneedacureNOW #beauty #pain #sicklecellsucks #sicklecell #houston #warrior #angel

Your pain is gone and your spirit is free 🕊 heaven has warrior angels Rest peacefully warrior❤️😢 @estefy_roycee To anyone close to her and needs information on @estefy_roycee Memorial service in houston please visit her page. #weneedacureNOW #beauty #pain #sicklecellsucks #sicklecell #houston #warrior #angel)?>

74
@strongcellfoundation

Hello Fam❤❤ Thank God it's Friday!! Here is something to help you stay motivated 💪 - - Yeah we are still counting down to our seminar 💃💃 it's 5days to go I am super excited.😊 - - We are going to have an awesome time come 26th June 2019. Venue 👉Hawthorne Suite Hotel, 1 Uke Street Garki (Near Sahad, Area11) Abuja - - For Enquiries and sponsorship please call: 08135329644, 08036046871 #strongcellfoundation #StrongCells #sicklecellmatters #sicklecellwithpurpose #sicklecellfoundation #sicklecellnigeria #sicklecellsucks #sicklecellfamily #awarenesss #naijafitfam #coolfm969 #sicklecellwarriors #wazobiafm #worldsicklecellday

Hello Fam❤❤ Thank God it's Friday!! Here is something to help you stay motivated 💪 - - Yeah we are still counting down to our seminar 💃💃 it's 5days to go I am super excited.😊 - - We are going to have an awesome time come 26th June 2019. Venue 👉Hawthorne Suite Hotel, 1 Uke Street Garki (Near Sahad, Area11) Abuja - - For Enquiries and sponsorship please call: 08135329644, 08036046871 #strongcellfoundation #StrongCells #sicklecellmatters #sicklecellwithpurpose #sicklecellfoundation #sicklecellnigeria #sicklecellsucks #sicklecellfamily #awarenesss #naijafitfam #coolfm969 #sicklecellwarriors #wazobiafm #worldsicklecellday)?>

2
@andyfandangles

It’s world WORLD SICKLE CELL DAY and I'm breaking the SILENCE...In 2016 my ❤ was shattered when I lost my cousin/childhood friend to Sickle Anemia & just three days later my grandmother passed away. However I inherited the strongest support system ever aside from family and friends I inherited ShaKs Warriors (whom I absolutely love). Shaks warriors led by her mother @fandangles_andy are continuing the fight for Shaks and so many others suffering from Sickle Cell. Shak’s Hope is a 501C (3) non-profit foundation dedicated to serve the community of people living with Sickle Cell Anemia. I am a proud Warrior & advocate for Sickle Cell Anemia. I got checked for the trait/disorder back in 2016 and encourage everyone to know your status. Sickle Cell is not a BLACK thing nor is it a WHITE thing it's a HUMAN thing. If your not already doing so follow us @shakshope for information, updates, events, support, and volunteer opportunities. #shakshope #sicklecellawareness #sicklecelldisease #sicklecellsucks #worldsicklecellawarenessday #continuingshaksfight #knowyourstatus #iloveASCDWarrior

It’s world WORLD SICKLE CELL DAY and I'm breaking the SILENCE...In 2016 my ❤ was shattered when I lost my cousin/childhood friend to Sickle Anemia & just three days later my grandmother passed away. However I inherited the strongest support system ever aside from family and friends I inherited ShaKs Warriors (whom I absolutely love). Shaks warriors led by her mother @fandangles_andy are continuing the fight for Shaks and so many others suffering from Sickle Cell. Shak’s Hope is a 501C (3) non-profit foundation dedicated to serve the community of people living with Sickle Cell Anemia. I am a proud Warrior & advocate for Sickle Cell Anemia. I got checked for the trait/disorder back in 2016 and encourage everyone to know your status. Sickle Cell is not a BLACK thing nor is it a WHITE thing it's a HUMAN thing. If your not already doing so follow us @shakshope for information, updates, events, support, and volunteer opportunities. #shakshope #sicklecellawareness #sicklecelldisease #sicklecellsucks #worldsicklecellawarenessday #continuingshaksfight #knowyourstatus #iloveASCDWarrior)?>

0
@niassong

So much has gone on since I last shared! I went on a getaway in the Tennessee Mountains with my parents, grandparents and one of my besties! Then I was finally able to go to a water park and swim without having a Sickle Cell crisis!🙌🏾 Now I'm taking private swimming lessons to learn how to swim!❤ I've been feeling really good! ❤❤❤❤❤ Visit our website for more stories and updates: http://www.niassong.com Like on Facebook: https://www.facebook.com/babyniassong/ Follow on Instagram: https://www.instagram.com/niassong/ Subscribe to YouTube: https://www.youtube.com/channel/UCtwkf6rdx2k9rwBYsetJh6Q Make a tax-deductible donation at: https://www.gofundme.com/niassong #sicklecellawareness #sicklecell #sicklecellwarrior #sicklecellanemia #sicklecelldisease #sicklecellsucks #sicklecellstrong #sicklecellfighter #sicklecellmatters #teamsicklecell  #sicklecelllife #sicklecellsoldier #sicklecellfamily #sicklecellsurvivor #transplanted #bonemarrowtransplant #transplantrecipient #bethematch #transplantlife #transplantation #bonemarrow #NiasSong #HLA #HLAIdentical #MatchedSibling #MatchSibling #TeamNia #FutureSickleCellSurvivor #BMTThriver #NiaStrong💪🏽

So much has gone on since I last shared! I went on a getaway in the Tennessee Mountains with my parents, grandparents and one of my besties! Then I was finally able to go to a water park and swim without having a Sickle Cell crisis!🙌🏾 Now I'm taking private swimming lessons to learn how to swim!❤ I've been feeling really good! ❤❤❤❤❤ Visit our website for more stories and updates: http://www.niassong.com Like on Facebook: https://www.facebook.com/babyniassong/ Follow on Instagram: https://www.instagram.com/niassong/ Subscribe to YouTube: https://www.youtube.com/channel/UCtwkf6rdx2k9rwBYsetJh6Q Make a tax-deductible donation at: https://www.gofundme.com/niassong #sicklecellawareness #sicklecell #sicklecellwarrior #sicklecellanemia #sicklecelldisease #sicklecellsucks #sicklecellstrong #sicklecellfighter #sicklecellmatters #teamsicklecell  #sicklecelllife #sicklecellsoldier #sicklecellfamily #sicklecellsurvivor #transplanted #bonemarrowtransplant #transplantrecipient #bethematch #transplantlife #transplantation #bonemarrow #NiasSong #HLA #HLAIdentical #MatchedSibling #MatchSibling #TeamNia #FutureSickleCellSurvivor #BMTThriver #NiaStrong💪🏽)?>

2
@drsicklecell

#Repost @iamveranweke ・・・ GENOTYPE AWARENESS How well do you know your status? Yesterday was WORLD SICKLE CELL DAY 19TH JUNE. So my team and I went out to create awareness not just on Genotype but also on sickle cell. Are you going into a love relationship or marriage?? It is advisable to know your partner's Genotype as well as medical status. 75% of sickle cell anemia patients were either born out of love or carelessness, therefore it is advisable that 'AS' partners should not marry themselves so as not to produce offsprings that will suffer health crisis in the future. P. S show love, care and support to those with this disorder, sicklecell crisis hurt but doesn't have to be ugly. 🎗️🎗️🎗️ Be guided. PLEASE Always watch full video on YouTube. Link is on my bio👆 don't forget to like, subscribe and share. #genotype #genotypeawareness #sicklecell #sicklecellsucks #sicklecelltrait #sicklecellanaemia #sicklecellawareness #sicklecellwarriors #sicklecellawarenessmonth #sicklecellmatters #healthyliving #ACSCD2019

#Repost @iamveranweke ・・・ GENOTYPE AWARENESS How well do you know your status? Yesterday was WORLD SICKLE CELL DAY 19TH JUNE. So my team and I went out to create awareness not just on Genotype but also on sickle cell. Are you going into a love relationship or marriage?? It is advisable to know your partner's Genotype as well as medical status. 75% of sickle cell anemia patients were either born out of love or carelessness, therefore it is advisable that 'AS' partners should not marry themselves so as not to produce offsprings that will suffer health crisis in the future. P. S show love, care and support to those with this disorder, sicklecell crisis hurt but doesn't have to be ugly. 🎗️🎗️🎗️ Be guided. PLEASE Always watch full video on YouTube. Link is on my bio👆 don't forget to like, subscribe and share. #genotype #genotypeawareness #sicklecell #sicklecellsucks #sicklecelltrait #sicklecellanaemia #sicklecellawareness #sicklecellwarriors #sicklecellawarenessmonth #sicklecellmatters #healthyliving #ACSCD2019)?>

1
@iamveranweke

GENOTYPE AWARENESS How well do you know your status? Yesterday was WORLD SICKLE CELL DAY 19TH JUNE. So my team and I went out to create awareness not just on Genotype but also on sickle cell. Are you going into a love relationship or marriage?? It is advisable to know your partner's Genotype as well as medical status. 75% of sickle cell anemia patients were either born out of love or carelessness, therefore it is advisable that 'AS' partners should not marry themselves so as not to produce offsprings that will suffer health crisis in the future. P. S show love, care and support to those with this disorder, sicklecell crisis hurt but doesn't have to be ugly. 🎗️🎗️🎗️ Be guided. PLEASE Always watch full video on YouTube. Link is on my bio👆 don't forget to like, subscribe and share. #genotype #genotypeawareness #sicklecell #sicklecellsucks #sicklecelltrait #sicklecellanaemia #sicklecellawareness #sicklecellwarriors #sicklecellawarenessmonth #sicklecellmatters #healthyliving

GENOTYPE AWARENESS How well do you know your status? Yesterday was WORLD SICKLE CELL DAY 19TH JUNE. So my team and I went out to create awareness not just on Genotype but also on sickle cell. Are you going into a love relationship or marriage?? It is advisable to know your partner's Genotype as well as medical status. 75% of sickle cell anemia patients were either born out of love or carelessness, therefore it is advisable that 'AS' partners should not marry themselves so as not to produce offsprings that will suffer health crisis in the future. P. S show love, care and support to those with this disorder, sicklecell crisis hurt but doesn't have to be ugly. 🎗️🎗️🎗️ Be guided. PLEASE Always watch full video on YouTube. Link is on my bio👆 don't forget to like, subscribe and share. #genotype #genotypeawareness #sicklecell #sicklecellsucks #sicklecelltrait #sicklecellanaemia #sicklecellawareness #sicklecellwarriors #sicklecellawarenessmonth #sicklecellmatters #healthyliving)?> at Lagos, Nigeria

0
@vintagefab_vibes

#Repost @king_of_epheezy (@get_repost) ・・・❤❤❤❣ June 19 is World Sickle Cell day and here are Our awareness T-shirts y'all. Support our fight, support our cause, support our reality. DM for details. I love you all. #sicklecellanemia #sicklecellmatters #sicklcelldisease #sicklecellstrong #sicklecellawareness #sicklecellking #sicklecellpain #sicklecellwarrior #sicklecellsucks #fightsicklecell #sicklecellfighter #notadeathsentence #warriornotsickler

#Repost @king_of_epheezy (@get_repost) ・・・❤❤❤❣ June 19 is World Sickle Cell day and here are Our awareness T-shirts y'all. Support our fight, support our cause, support our reality. DM for details. I love you all. #sicklecellanemia #sicklecellmatters #sicklcelldisease #sicklecellstrong #sicklecellawareness #sicklecellking #sicklecellpain #sicklecellwarrior #sicklecellsucks #fightsicklecell #sicklecellfighter #notadeathsentence #warriornotsickler)?>

0
@vintagefab_vibes

#Repost @prettygirlcoco23 (@get_repost) ・・・❤❤❤❣ I never apologize and don't want to hear "I'm sorry" from others. I was chosen to go through this journey and tell my own story so others will understand and know more about sickle cell but through a patient's eyes. I'm so glad I got hand chosen for this... #sicklecellblogginglife #sicklecellawareness #sicklecellawarenessdayjune19 #Sicklecell #sicklecellsucks #sicklecellpain #sicklecellwarrior

#Repost @prettygirlcoco23 (@get_repost) ・・・❤❤❤❣ I never apologize and don't want to hear "I'm sorry" from others. I was chosen to go through this journey and tell my own story so others will understand and know more about sickle cell but through a patient's eyes. I'm so glad I got hand chosen for this... #sicklecellblogginglife #sicklecellawareness #sicklecellawarenessdayjune19 #Sicklecell #sicklecellsucks #sicklecellpain #sicklecellwarrior)?>

0
@the_cardinal_academy_org

My love/muneca @lulu_marinda, you got this and I am thinking of you and wishing you all the best for a swift recovery. ................... World Sickle Cell Day is today. June 19th, 2019. The day almost went by without me posting but it’s because today I’m in a lot of pain and in the E.R. I will be fine but sickle cell is not fun. I’ve dealt with it my entire life and it doesn’t get easier. Getting myself well enough to function on a daily basis. #sicklecellawareness #sicklecellanemia #sicklecellsucks #lulu_marinda.

My love/muneca @lulu_marinda, you got this and I am thinking of you and wishing you all the best for a swift recovery. ................... World Sickle Cell Day is today. June 19th, 2019. The day almost went by without me posting but it’s because today I’m in a lot of pain and in the E.R. I will be fine but sickle cell is not fun. I’ve dealt with it my entire life and it doesn’t get easier. Getting myself well enough to function on a daily basis. #sicklecellawareness #sicklecellanemia #sicklecellsucks #lulu_marinda.)?>

1
@lpf_artcompetition

Yesterday we learnt so much at the Sickle Cell Day lecture and celebration. One most important message we took home was to love and care for individuals with the disease, they are just like us and sickle cell is like any other disease not a curse. We also learnt about how the disease travelled from Africa to the rest of the world. Truly insightful. The introduction of Hydroxyurea, a drug that makes SCD blood healthier, increases Hb level, reduces the sickle cell pain and many other benefits. #SickleCell #sicklecellawareness #sicklecellsucks #LetLoveLead #lovelife

Yesterday we learnt so much at the Sickle Cell Day lecture and celebration. One most important message we took home was to love and care for individuals with the disease, they are just like us and sickle cell is like any other disease not a curse. We also learnt about how the disease travelled from Africa to the rest of the world. Truly insightful. The introduction of Hydroxyurea, a drug that makes SCD blood healthier, increases Hb level, reduces the sickle cell pain and many other benefits. #SickleCell #sicklecellawareness #sicklecellsucks #LetLoveLead #lovelife)?> at Airport Residential Area

0
@_awarriorsway

New Video Alert go Check it out!!! Like, comment, share, and subscribe. Make sure you watch until the end. Today is June 19th and it is World Sickle Cell Day. I am telling my story because a lot of people who know me dont really know what I've been through. I dont tell my story for pity. I tell my story so someone who dont understand what its like can be informed of this horrific condition and to let my sicklers know they are not alone. Please go like, share, and comment especially if you want to know more about this topic. Follow us on FB for FULL Video @awarriorsway19 IG: _awarriorsway Twitter: @CedrickaJackson Our go fund me link is https://www.gofundme.com/1n8itzl5dc https://youtu.be/gb5gHq-i8ss @fightingsicklecell @sicklecellplus @sicklecelluk @sicklecellwellafrica @sicklecell101 @sicklecellwarriorsofwi #sicklecellanemia #strength #fighter #warriors #fightingsicklecell #sicklecelladvocates #sicklecellawareness #sicklecellwarrior #fightforyourlife #sicklecell101 #sicklecellsucks #warriorsway #nonprofitorganization #sicklecellmatters

New Video Alert go Check it out!!! Like, comment, share, and subscribe. Make sure you watch until the end. Today is June 19th and it is World Sickle Cell Day. I am telling my story because a lot of people who know me dont really know what I've been through. I dont tell my story for pity. I tell my story so someone who dont understand what its like can be informed of this horrific condition and to let my sicklers know they are not alone. Please go like, share, and comment especially if you want to know more about this topic. Follow us on FB for FULL Video @awarriorsway19 IG: _awarriorsway Twitter: @CedrickaJackson Our go fund me link is https://www.gofundme.com/1n8itzl5dc https://youtu.be/gb5gHq-i8ss @fightingsicklecell @sicklecellplus @sicklecelluk @sicklecellwellafrica @sicklecell101 @sicklecellwarriorsofwi #sicklecellanemia #strength #fighter #warriors #fightingsicklecell #sicklecelladvocates #sicklecellawareness #sicklecellwarrior #fightforyourlife #sicklecell101 #sicklecellsucks #warriorsway #nonprofitorganization #sicklecellmatters)?>

0
@patrice_ophelia

Last night I had the honor to serve as a panelist for “Shine the Light on Sickle Cell,” On World Sickle Cell Day. Thank you to Ms. Gloria Rochester, QSCAN and Queens Hospital for your advocacy and support for us Sickle Cell Warriors. I was able to reunite with some of my dear friends in the Sickle Cell community such as my fellow warrior Dr. Dobson, and Jonathan McCreary @Jon athan_mccreary who is a 5 year Sickle Cell Survivor! It was also a great privilege to meet Nurse Practitioner, Arturo Ceniza, RN, MSN-ANP whom is a God send to Sickle Cell patients. I never knew people like him existed! He has improved the quality of life of many Sickle Cell Warriors with his knowledge, expertise, and overall compassion, care and concern! And I give much thanks to my 6 year old for being such an amazing travel companion and caregiver. I’m amazed by his willingness to learn more about the disease that affects his mama and so many others fighting for their lives. The hardest part about having sickle cell isn’t finding a cure it’s finding someone who cares! God bless you all! #sicklecell #sicklecellawareness #worldsicklecellday #worldsicklecellday2019 #queenshospital #qscan #scdaa #internationalmsny #internationalmsnewyork #internationalms #internationalmspageant #sicklecellsucks #sicklecellanemia #sicklecellwarrior #fightsicklecell #findacure #bethecure

Last night I had the honor to serve as a panelist for “Shine the Light on Sickle Cell,” On World Sickle Cell Day. Thank you to Ms. Gloria Rochester, QSCAN and Queens Hospital for your advocacy and support for us Sickle Cell Warriors. I was able to reunite with some of my dear friends in the Sickle Cell community such as my fellow warrior Dr. Dobson, and Jonathan McCreary @Jon athan_mccreary who is a 5 year Sickle Cell Survivor! It was also a great privilege to meet Nurse Practitioner, Arturo Ceniza, RN, MSN-ANP whom is a God send to Sickle Cell patients. I never knew people like him existed! He has improved the quality of life of many Sickle Cell Warriors with his knowledge, expertise, and overall compassion, care and concern! And I give much thanks to my 6 year old for being such an amazing travel companion and caregiver. I’m amazed by his willingness to learn more about the disease that affects his mama and so many others fighting for their lives. The hardest part about having sickle cell isn’t finding a cure it’s finding someone who cares! God bless you all! #sicklecell #sicklecellawareness #worldsicklecellday #worldsicklecellday2019 #queenshospital #qscan #scdaa #internationalmsny #internationalmsnewyork #internationalms #internationalmspageant #sicklecellsucks #sicklecellanemia #sicklecellwarrior #fightsicklecell #findacure #bethecure)?>

6
@sogonemoremi

Hafla fupi ya kuadhimisha siku ya SICKLE CELL (SELI MUNDU) duniani hapo jana 19/06/2019. Mgeni rasmi alikuwa ni mganga mkuu wa mkoa wa Dar es salaam (RMO). Ilifanyika @sicklecellmuhas na kuhudhuriwa na madaktari, wagonjwa na wadau mbalimbali wa sekta ya afya. #worldsicklecellday2019 #sicklecell #sicklecellanemia #sicklecellawareness #sicklecellwarrior #sicklecelltrait #sicklecelleducation #sicklecellsucks #sicklecellsupport #sicklecelladvocacy #sicklestrong #sicklecelllife

Hafla fupi ya kuadhimisha siku ya SICKLE CELL (SELI MUNDU) duniani hapo jana 19/06/2019. Mgeni rasmi alikuwa ni mganga mkuu wa mkoa wa Dar es salaam (RMO). Ilifanyika @sicklecellmuhas na kuhudhuriwa na madaktari, wagonjwa na wadau mbalimbali wa sekta ya afya. #worldsicklecellday2019 #sicklecell #sicklecellanemia #sicklecellawareness #sicklecellwarrior #sicklecelltrait #sicklecelleducation #sicklecellsucks #sicklecellsupport #sicklecelladvocacy #sicklestrong #sicklecelllife)?> at Muhimbili University of Health and Allied Sciences

0
@simply_pretty_me

This was the day, my fitness journey took a hit and had to be placed on pause. 😣 Nearly reaching the top of Stone Mountain ⛰, a form of cardio I’ve done numerous times before. I reached the top of the rails and my body went into a sickle cell crisis, breathing became difficult, my hips locked, my back, arms and legs instantly started to tremble and feel as if my bones were being twisted and crushed. I laid across a rock and finished my second bottle of water, cried and pleading to God! I was alone, as I had done it alone many of times before and experienced no signs of pain or swelling. It took a lot of tears, praying and extremely slow walking (1 1/2 hours) to get back down the mountain and up the street to get back to my car! Called my best friend @da_nextbigthing to meet me at my house because I also had trapped gas and my stomach had expanded so far breathing became even worse. After sitting with me for almost an hour, he called 911 to pick me up! I spent 10 days in the hospital! Received a blood transfusion and found out I went into a crisis because I had a virus festering in me. Strep almost took me out. As I lay here still recovering I felt like I should share part of my story. Life can literally be going just as normal as any day and then boom 💥 my body can shut down. I refuse to allow sickle cell to control my life. I will continue to fight this fight. I truly appreciate everyone that came to visit me, stay the night with me, called, text, DM and show any form of concern. This journey isn’t easy. Mentally, emotionally, spiritually and definitely physically it takes a toll on me. But I’m not quitting. @miss_prototype_12 @trans4rmher @nailsbyletice @drbryant2019 @noignirmy @noigO @bymsq @courtneymck27 @_mskeke_ @bigreese0923 @immachocolatedrop @patreice.sarita thank you all for being at the hospital with me. Thank you @tceedesigns for checking on me daily, several times throughout the day every day! I appreciate you sis. @mrs2weeksout and @mr2weeksout for checking in on me and making sure I knew you both were/are here whenever I need you. There’s so many more people to thank and I appreciate and value you all. ♥️♥️♥️♥️♥️♥️♥️

This was the day, my fitness journey took a hit and had to be placed on pause. 😣 Nearly reaching the top of Stone Mountain ⛰, a form of cardio I’ve done numerous times before. I reached the top of the rails and my body went into a sickle cell crisis, breathing became difficult, my hips locked, my back, arms and legs instantly started to tremble and feel as if my bones were being twisted and crushed. I laid across a rock and finished my second bottle of water, cried and pleading to God! I was alone, as I had done it alone many of times before and experienced no signs of pain or swelling. It took a lot of tears, praying and extremely slow walking (1 1/2 hours) to get back down the mountain and up the street to get back to my car! Called my best friend @da_nextbigthing to meet me at my house because I also had trapped gas and my stomach had expanded so far breathing became even worse. After sitting with me for almost an hour, he called 911 to pick me up! I spent 10 days in the hospital! Received a blood transfusion and found out I went into a crisis because I had a virus festering in me. Strep almost took me out. As I lay here still recovering I felt like I should share part of my story. Life can literally be going just as normal as any day and then boom 💥 my body can shut down. I refuse to allow sickle cell to control my life. I will continue to fight this fight. I truly appreciate everyone that came to visit me, stay the night with me, called, text, DM and show any form of concern. This journey isn’t easy. Mentally, emotionally, spiritually and definitely physically it takes a toll on me. But I’m not quitting. @miss_prototype_12 @trans4rmher @nailsbyletice @drbryant2019 @noignirmy @noigO @bymsq @courtneymck27 @_mskeke_ @bigreese0923 @immachocolatedrop @patreice.sarita thank you all for being at the hospital with me. Thank you @tceedesigns for checking on me daily, several times throughout the day every day! I appreciate you sis. @mrs2weeksout and @mr2weeksout for checking in on me and making sure I knew you both were/are here whenever I need you. There’s so many more people to thank and I appreciate and value you all. ♥️♥️♥️♥️♥️♥️♥️)?> at Conyers, Georgia

31
@21st.century.kid

◼️◼️◼️◼️◼️◼️◼️◼️◼️◼️◼️ #life #godfirst #LiveAsickLyfe #BloodLine #WARRIORS #WarriorMom #WeOutcha #MyDNA #MySCD #DNA #SCD #BLESSED #SICKLECELL #SINCE1LIKETHIS #SICKLECELLSUCKS #FUCKSICKLECELL #SICKLECELLISME #TEAMSICKLECELL #SICKLECELLWARRIOR #WEAINTPLAYING #WORLDSICKLECELLDAY #WORLDSICKLECELLAWARENESSDAY #LIVEASICKLIFE 🔴🔴🔴🔴🔴🔴🔴🔴🔴🔴🔴

◼️◼️◼️◼️◼️◼️◼️◼️◼️◼️◼️ #life #godfirst #LiveAsickLyfe #BloodLine #WARRIORS #WarriorMom #WeOutcha #MyDNA #MySCD #DNA #SCD #BLESSED #SICKLECELL #SINCE1LIKETHIS #SICKLECELLSUCKS #FUCKSICKLECELL #SICKLECELLISME #TEAMSICKLECELL #SICKLECELLWARRIOR #WEAINTPLAYING #WORLDSICKLECELLDAY #WORLDSICKLECELLAWARENESSDAY #LIVEASICKLIFE 🔴🔴🔴🔴🔴🔴🔴🔴🔴🔴🔴)?>

0
@knuckles4serenity

S I C K L E C E L L D I S E A S E: an inherited group of disorders, red blood cells contort into a sickle shape. The cells die early, leaving a shortage of healthy red blood cells (sickle cell anemia), and can block blood flow causing pain (sickle cell crisis). I remember the first day of diagnosis.Thinking how are we gonna get through it. You have been through countless of test, the pain, blood work, surgery, xrays, breathing tubes, oxygen issues, catheters, the fevers, pneumonia, 15+ blood transfusions, and after all this you still smile, you make me smile, you have captured so many hearts. You make me push through because you push through. Today and everyday I’m aware and I study so that I can advocate for you. This road has been hectic and scary, but you continue to strive and show your strength. Sickle cell is only two words and with every hospital stay you show me how much we can handle this disease as a team. You make sickle cell look good❤️ #WorldSickleCellDay #sicklecellawareness #sicklecelldisease #findacureforsicklecell #sicklecell101 #sicklecellsucks #sicklecellwarrior #sicklecellmatters #sicklecellmom

S I C K L E C E L L D I S E A S E: an inherited group of disorders, red blood cells contort into a sickle shape. The cells die early, leaving a shortage of healthy red blood cells (sickle cell anemia), and can block blood flow causing pain (sickle cell crisis). I remember the first day of diagnosis.Thinking how are we gonna get through it. You have been through countless of test, the pain, blood work, surgery, xrays, breathing tubes, oxygen issues, catheters, the fevers, pneumonia, 15+ blood transfusions, and after all this you still smile, you make me smile, you have captured so many hearts. You make me push through because you push through. Today and everyday I’m aware and I study so that I can advocate for you. This road has been hectic and scary, but you continue to strive and show your strength. Sickle cell is only two words and with every hospital stay you show me how much we can handle this disease as a team. You make sickle cell look good❤️ #WorldSickleCellDay #sicklecellawareness #sicklecelldisease #findacureforsicklecell #sicklecell101 #sicklecellsucks #sicklecellwarrior #sicklecellmatters #sicklecellmom)?>

7
@royalslays_

National Sickle Cell Awareness day ❤️. . Acknowledging Royal ( @royalcells )on this day and everyone fighting Sickle Cell Disease or Sickle Cell Trait . . What is Sickle Cell ? . . Sickle is a group of disorders that cause red blood cells to become misshapen and break down. With sickle cell disease, an inherited group of disorders, red blood cells contort into a sickle shape. The cells die early, leaving a shortage of healthy red blood cells (sickle cell anemia), and can block blood flow causing pain (sickle cell crisis) #sicklecell #sicklecellawareness #sicklecelltrait #sickle #sicklecellsucks #sicklecellanemia #sicklecelleducation #sicklecelllife #healthyeating #healthy #water #blood

National Sickle Cell Awareness day ❤️. . Acknowledging Royal ( @royalcells )on this day and everyone fighting Sickle Cell Disease or Sickle Cell Trait . . What is Sickle Cell ? . . Sickle is a group of disorders that cause red blood cells to become misshapen and break down. With sickle cell disease, an inherited group of disorders, red blood cells contort into a sickle shape. The cells die early, leaving a shortage of healthy red blood cells (sickle cell anemia), and can block blood flow causing pain (sickle cell crisis) #sicklecell #sicklecellawareness #sicklecelltrait #sickle #sicklecellsucks #sicklecellanemia #sicklecelleducation #sicklecelllife #healthyeating #healthy #water #blood)?>

1
@burningroseartistry

Getting my make up done by my cousin. I showed up and I am going to show out. #scdart #sicklecelladvocate #sicklecellanemia #sicklecellmatters #sicklecellsucks

Getting my make up done by my cousin. I showed up and I am going to show out. #scdart #sicklecelladvocate #sicklecellanemia #sicklecellmatters #sicklecellsucks)?> at Pasadena, California

2
@medicalm_pa

Everyday should be!

Everyday should be!)?>

2
@thecalleddr_d

It’s world WORLD SICKLE CELL DAY and I'm breaking the SILENCE...In 2016 my ❤ was shattered when I lost my cousin/childhood friend to Sickle Anemia & just three days later my grandmother passed away. However I inherited the strongest support system ever. Aside from family and friends I inherited ShaKs Warriors (whom I absolutely love). Shaks warriors led by her mother @fandangles_andy are continuing the fight for Shaks and so many others suffering from Sickle Cell. Shak’s Hope is a 501C (3) non-profit foundation dedicated to serve the community of people living with Sickle Cell Anemia. I am a proud Warrior & advocate for Sickle Cell Anemia. I got checked for the trait/disorder back in 2016 and encourage everyone to know your status. Sickle Cell is not a BLACK thing nor is it a WHITE thing it's a HUMAN thing. If your not already doing so follow us @shakshope for information, updates, events, support, and volunteer opportunities. #shakshope #sicklecellawareness #sicklecelldisease #sicklecellsucks #worldsicklecellawarenessday #continuingshaksfight #knowyourstatus #iloveASCDWarrior

It’s world WORLD SICKLE CELL DAY and I'm breaking the SILENCE...In 2016 my ❤ was shattered when I lost my cousin/childhood friend to Sickle Anemia & just three days later my grandmother passed away. However I inherited the strongest support system ever. Aside from family and friends I inherited ShaKs Warriors (whom I absolutely love). Shaks warriors led by her mother @fandangles_andy are continuing the fight for Shaks and so many others suffering from Sickle Cell. Shak’s Hope is a 501C (3) non-profit foundation dedicated to serve the community of people living with Sickle Cell Anemia. I am a proud Warrior & advocate for Sickle Cell Anemia. I got checked for the trait/disorder back in 2016 and encourage everyone to know your status. Sickle Cell is not a BLACK thing nor is it a WHITE thing it's a HUMAN thing. If your not already doing so follow us @shakshope for information, updates, events, support, and volunteer opportunities. #shakshope #sicklecellawareness #sicklecelldisease #sicklecellsucks #worldsicklecellawarenessday #continuingshaksfight #knowyourstatus #iloveASCDWarrior)?>

3
@nekia_the_classy1

A fellow warrior posted this and I had to repost bc I these are my feelings exactly! #Repost @sparkleforsicklecell with @get_repost ・・・ I have lost alot cos of Sicklecell even my mind, there were days I couldn't pray cos I felt hopeless, there were days I was soo scared, there were days death felt so close, there were days where I was just helpless and sad. There were these days I may have lost alot but the most important thing is I haven't lost it all. God loves me, he cares, he is the reason I'm still here, when I stopped looking to man and looked to him. That I have Jesus is enough. #countyourblessings #sparkleforsicklecell #treatusbetter #sicklecellstars #sicklecell #sicklecellwarrior #sicklecellawareness #sicklecellsucks #sicklecell101 #fighter #teamsparkle #lovesomeonewithsicklecell #showlove #star #sicklecelldontstopme #sicklecelldisease #sicklecellanemia #sicklecelladvocate #sicklecellslayers #sicklecellawarenessmonth #scdawarenes #chronicillness #menatalhealth #mentalhealthawareness #mentalhealthawarenessmonth

A fellow warrior posted this and I had to repost bc I these are my feelings exactly! #Repost @sparkleforsicklecell with @get_repost ・・・ I have lost alot cos of Sicklecell even my mind, there were days I couldn't pray cos I felt hopeless, there were days I was soo scared, there were days death felt so close, there were days where I was just helpless and sad. There were these days I may have lost alot but the most important thing is I haven't lost it all. God loves me, he cares, he is the reason I'm still here, when I stopped looking to man and looked to him. That I have Jesus is enough. #countyourblessings #sparkleforsicklecell #treatusbetter #sicklecellstars #sicklecell #sicklecellwarrior #sicklecellawareness #sicklecellsucks #sicklecell101 #fighter #teamsparkle #lovesomeonewithsicklecell #showlove #star #sicklecelldontstopme #sicklecelldisease #sicklecellanemia #sicklecelladvocate #sicklecellslayers #sicklecellawarenessmonth #scdawarenes #chronicillness #menatalhealth #mentalhealthawareness #mentalhealthawarenessmonth)?>

3
@aah_athletix

Outside and in, some of us carry loads that you wouldn't know we have to bear. . This #SickleCellAwarenessDay I recognize the warriors and family if warriors who endure this disease together. I couldn't have endured it without my brothers, especially @htex_jade1983 💯 . He's the only other person I know whose handled this disease with zeal and strength enough to hardly ever suffer from it. He has his days, as all carriers do, but he's got this silent killer in a chokehold, and taught me a few moves as well. . Big bro is definitely an inspiration to me and all that I am doing with #AahAthletix . . . . . . . . . . #sicklecell #brothers #family #healthyaf #unstoppable #stillstandingstillhere #sicklecellwarrior #sicklecellanemia #sicklecellsucks #sicklecellawareness #sicklecellstrong #sicklecellth #sicklecellmatters #sicklecelllife #fitstagram #houstonfitness #htownfit #houstonfitfam #houston_insta #livingstrong #eatinghealthy #lifematters

Outside and in, some of us carry loads that you wouldn't know we have to bear. . This #SickleCellAwarenessDay I recognize the warriors and family if warriors who endure this disease together. I couldn't have endured it without my brothers, especially @htex_jade1983 💯 . He's the only other person I know whose handled this disease with zeal and strength enough to hardly ever suffer from it. He has his days, as all carriers do, but he's got this silent killer in a chokehold, and taught me a few moves as well. . Big bro is definitely an inspiration to me and all that I am doing with #AahAthletix . . . . . . . . . . #sicklecell #brothers #family #healthyaf #unstoppable #stillstandingstillhere #sicklecellwarrior #sicklecellanemia #sicklecellsucks #sicklecellawareness #sicklecellstrong #sicklecellth #sicklecellmatters #sicklecelllife #fitstagram #houstonfitness #htownfit #houstonfitfam #houston_insta #livingstrong #eatinghealthy #lifematters)?> at Houston, Texas

2
Next »