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@4ward_thnkr

Please contact @nygovcuomo on every platform so we can get funding for #sicklecell • • • • • #sicklecell #sickecellawareness #sicklecellanemia #sicklecellsucks #sicklecellwarriors #sicklecellmatters at Brooklyn, New York

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@niassong

Monday, 12/10/18 (DAY +290) So Nia was potty trained in 2 days at 2 years old! I literally started on a Saturday and by Monday, we had ditched the pull ups and were well on our way! SO WE THOUGHT! Although she was trained to go to the potty during the day, she was plagued with enuresis or bedwetting at night! Enuresis is defined as urinating when you do not intend to go and is referred to as "bed-wetting" when done at night! It is a common problem for children and teens with Sickle Cell Disease. It happens because they are unable to concentrate their urine well, and they are encouraged to drink lots of fluids to prevent pain crises. Bed-wetting is a symptom of sickle cell disease; it cannot be helped. Punishment will not correct this condition. SINCE TRANSPLANT, I'M HAPPY AND EXCITED TO REPORT THAT NIA HASN'T WET THE BED IN NEARLY 3 MONTHS!!! 🎉 That's a huge feat as kids often have a sense of embarrassment and social anxiety because of it! When she gets older and realized I divulged this info, she's gonna be like, "Really?" Yes really! Transparency through this process will always be the goal! https://www.stjude.org/treatment/patient-resources/caregiver-resources/patient-family-education-sheets/hematology/enuresis-and-sickle-cell-disease.html ❤❤❤❤❤ Visit our website for more stories and updates: http://www.niassong.com Like on Facebook: https://www.facebook.com/babyniassong/ Follow on Instagram: https://www.instagram.com/niassong/ Subscribe to YouTube: https://www.youtube.com/channel/UCtwkf6rdx2k9rwBYsetJh6Q Make a tax-deductible donation at: https://www.gofundme.com/niassong #sicklecellawareness #sicklecell #sicklecellwarrior #sicklecellanemia #sicklecelldisease #sicklecellsucks #sicklecellstrong #sicklecellfighter #sicklecellmatters #teamsicklecell #sicklecelllife #sicklecellsoldier #sicklecellfamily #sicklecellsurvivor #transplanted #bonemarrowtransplant #transplantrecipient #bethematch #transplantlife #transplantation #bonemarrow #NiasSong #HLA #HLAIdentical #MatchedSibling #MatchSibling #TeamNia #FutureSickleCellSurvivor #BMTThriver #NiaStrong💪🏽

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@niabadia1

Monday, 12/10/18 (DAY +290) So Nia was potty trained in 2 days at 2 years old! I literally started on a Saturday and by Monday, we had ditched the pull ups and were well on our way! SO WE THOUGHT! Although she was trained to go to the potty during the day, she was plagued with enuresis or bedwetting at night! Enuresis is defined as urinating when you do not intend to go and is referred to as "bed-wetting" when done at night! It is a common problem for children and teens with Sickle Cell Disease. It happens because they are unable to concentrate their urine well, and they are encouraged to drink lots of fluids to prevent pain crises. Bed-wetting is a symptom of sickle cell disease; it cannot be helped. Punishment will not correct this condition. SINCE TRANSPLANT, I'M HAPPY AND EXCITED TO REPORT THAT NIA HASN'T WET THE BED IN NEARLY 3 MONTHS!!! 🎉 That's a huge feat as kids often have a sense of embarrassment and social anxiety because of it! When she gets older and realized I divulged this info, she's gonna be like, "Really?" Yes really! Transparency through this process will always be the goal! https://www.stjude.org/treatment/patient-resources/caregiver-resources/patient-family-education-sheets/hematology/enuresis-and-sickle-cell-disease.html ❤❤❤❤❤ Visit our website for more stories and updates: http://www.niassong.com Like on Facebook: https://www.facebook.com/babyniassong/ Follow on Instagram: https://www.instagram.com/niassong/ Subscribe to YouTube: https://www.youtube.com/channel/UCtwkf6rdx2k9rwBYsetJh6Q Make a tax-deductible donation at: https://www.gofundme.com/niassong #sicklecellawareness #sicklecell #sicklecellwarrior #sicklecellanemia #sicklecelldisease #sicklecellsucks #sicklecellstrong #sicklecellfighter #sicklecellmatters #teamsicklecell #sicklecelllife #sicklecellsoldier #sicklecellfamily #sicklecellsurvivor #transplanted #bonemarrowtransplant #transplantrecipient #bethematch #transplantlife #transplantation #bonemarrow #NiasSong #HLA #HLAIdentical #MatchedSibling #MatchSibling #TeamNia #FutureSickleCellSurvivor #BMTThriver #NiaStrong💪🏽

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@cellss_scd

New New Coming soon!! Who wants one?? Very limited and once there gone there gone !

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@sparkleforsicklecell

I am all grateful for today 😊 to everyone that showed up. That joined me live on instagram, that sent in questions, contributions. I am so humbled and grateful for my life and the grace to walk with my passion for life. The amazing people I talk to and meet everyday. Sparkleforsicklecell Is my dream come true and I pray it only puts smiles on people's faces and helps me have a bigger, amazing family, spread awareness, and celebrate amazing, unique individuals( STARS) ⭐. To all who have reached out to work with me God bless u😊 to my friends and family who keep showing me love, I love u all right back. Cheers to more amazing journeys🤗 #sparkleforsicklecell #sicklecellstars #sicklecell #sicklecellwarrior #sicklecellawareness #sicklecellsucks #sicklecell101 #fighter #teamsparkle #lovesomeonewithsicklecell #showlove #star #sicklecelldontstopme #sicklecelldisease #sicklecellanemia #sicklecelladvocate #sicklecellslayers #sicklecellawarenessmonth #scdawarenes

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@pinke121

Had to get my babies together 💕💕 none of us want to be here 🤷🏽‍♀️ but I do my best to make them smile threw the pain when they are here 🙏🏽🙏🏽🙏🏽🙏🏽 #sicklecellwarrior #sicklecellsucks #sicklecell

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@loyaltynicole__

I am a WARRIOR, Sickle Cell Queen 👸🏽 I fight for my life all day everyday so I can see my son grow! I’ve been fighting for my life for the past 24 years 💪🏽👊🏽✊🏽🙌🏽🙏🏽 and I plan on fighting for the rest of my life til I’m 100 years old and plus! #sicklecellmatters #chronicpainwarrior #sicklecellsucks #sicklecellanemia #sicklecelldisease #sicklecell #sicklecellawareness #sicklecell #sicklecellsucks #sicklecell101 #sicklecellmatters #sicklecelleducation #sicklecellsupport #sicklecelladvocacy #sicklecelllifestyle #chronicillness #chronsdisease #chronicloveclub @sicklecell101 @sicklecellmatters @chronicloveclub @sicklecellunite @sicklemoments “** I DONT OWN THE COPYRIGHTS TO THE MUSIC/CONTENT PLAYING IN THE BACKGROUND**” at Harper University Hospital

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@onescdvoice

Painful events associated with Sickle Cell can be more severe and occur more frequently in cold weather. Make sure you're keeping up with our tips for what to do AND not do to prevent this! Read more on our platform (link in bio) #scd #sicklecellawareness

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@fightingthroughourpaintv

Hello Everyone Here Are Some Clips Of Dr.Harrington Explaining #SickleCellRetinopathy In These Clips He Explains The Difficulties Sickle Cell Patients Face With Their Vision. Please Take A Few Minutes To Watch And Share. For The Full Interview Check Out Our YouTube Channel at #Fightingthroughourpaintv And Please Tell A Friend,Family Members,Coworkers,Associates or Anyone To Follow And Subscribe To Our Pages On Facebook Instagram and YouTube at Fightingthroughourpaintv or Our Website at www.fightingthroughourpaintv.com Also if you would like to be featured and tell your story on your fight with Sickle Cell Anemia send us a DM or email. #essencefestival2019 #tylerperrystudios #ellenshow #tylerperry #wynwood #artbasel2018 #artbaselmiami #fightingthroughourpain #fightingthroughourpainpodcast #fightingthroughourpainstories #sicklecellawareness #sicklecell #sicklecellwarrior #sicklecelldisease #sicklecellsucks #sicklecellmatters #sicklecellstrong #nurses #doctors #hematology #blood #blooddisorder #freeform #aenetworks #youtube #facebook #followus #podcast

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@loyaltynicole__

So guess who photo made it to the explore page on Instagram!!!!!?????? Of COURSE MY PHOTO DID!!! I am so speechless at this time, it may not be a big deal to y’all but it’s a big deal to me because I got to share my story and life dealing with SICKLE CELL and it made it to the explore page!!! I’m to HAPPY 😊 I told y’all once I let the drama and negativity things and people go BLESSINGS started to head my way!!!! One day one of my makeup photos will be on it!!! #chronicpainwarrior #chronicillness #chronicpain #sicklecellwarriorprincess #sicklecellanemia #sicklecellsucks #sicklecellmatters #sicklecellawareness #sicklecell101 #sicklecelldisease #chronicloveclub @chronicloveclub thank you 🥰😘 @sicklecellmatters @sicklemoments @sicklecell101 @sicklecellunite at Harper University Hospital

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@joeypricemusic

It’s not too late...come through and support the @branlin_foundation They are a non-profit organization established to promote awareness and educate about the adverse impact of Sickle Cell Disease. They support children and families affected by this devastating illness. Meet us @refugechicago located at 416 S. Clark St. Chicago, IL 60605. Come help honor loved ones who battled with Sickle Cell and those who are currently fighting. There will be food, drink specials and raffles. #JoeyPrice #TwoGuardMedia #AgencyAbron #sicklecell #sicklecellawareness #sicklecellwarrior #sicklecelldisease #sicklecellsucks #Chicago #HipHop #artist #music #genre #song #songs #follow4follow #followme #hiphop #rap #beats #myjam #party #newsong #lovethissong #favoritesong #bestsong #pleasefollow #bumpin #listentothis #goodmusic at Refuge Chicago

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@fightingformyfitlife

Happy to say I'm home from the hospital! Thank you for your prayers and love, I appreciate it beyond measure. I'm resting and looking through wedding pictures to lift my spirits. I'm more motivated now more than to get my health together, being this sick and having it put a dark cloud over what should've been the greatest time of my life. #SickleCell #sicklecellwarrior #bwlw #AVN #sicklecellsucks

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@dear_missb

Here we go again 😤 Sickle Cell be like “She doing to good right now. She’s a little to happy. Let me knock her back down real quick.” #sicklecell #sicklecellwarrior #sicklecellawareness #sicklecellsucks

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@natural.beauu

I hate this! But hated hearing about the suffering even more! Rest peacefully Sharnaye! You girls are together now ❤️ I love you twins! Everyone please pray for my husbands family 😣 I hate seeing them go through this again #RIPTwins #SickleCellSucks

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@niassong

I LOVE HER SO!❤ We've been taking a little break to regroup! Nia's doing better than I could ever hope for! She's still at risk for GVHD, but we're claiming she wont have any! Additionally, she's still at risk for infections and contracting colds, flus and other illnesses! In fact, I developed a virus and became very sick and had no interaction with my baby for a little over a week! TORTUROUS BUT NECESSARY! Please remember that those who are immune deficient need not be exposed to ANY illnesses! It's not to hurt your feelings, but a necessary prevention to spare their lives! My daughter can't enter back into a school setting right now because of this! She recently had a BMT appointment to check chimerisms and her %S! (waiting on results) Appointments are now every other month until her 1 year anniversary 2/23/19! 🎉🎉🎉 Here's the results from her latest visit: Thursday, November 29, 2018 (DAY +279) WBC (white blood count) 4.76 🙌🏾 HGB (hemoglobin) 14.0 🙌🏾 Platelets 236 🙌🏾 ANC 1.58 🙌🏾 Eosinophils 🙌🏾 Chemistries, including vital organ functions 🙌🏾 Some of y'all know where we came from! Some of y'all know how Sickle Cell Disease threatened to take her life! Some of y'all know how often she was hospitalized! MY BABY HAS COME A LOOOOONG WAY! Thanks for your continued support! ❤❤❤❤❤ Visit our website for more stories and updates: http://www.niassong.com Like on Facebook: https://www.facebook.com/babyniassong/ Follow on Instagram: https://www.instagram.com/niassong/ Subscribe to YouTube: https://www.youtube.com/channel/UCtwkf6rdx2k9rwBYsetJh6Q Make a tax-deductible donation at: https://www.gofundme.com/niassong #sicklecellawareness #sicklecell #sicklecellwarrior #sicklecellanemia #sicklecelldisease #sicklecellsucks #sicklecellstrong #sicklecellfighter #sicklecellmatters #teamsicklecell #sicklecelllife #sicklecellsoldier #sicklecellfamily #sicklecellsurvivor #transplanted #bonemarrowtransplant #transplantrecipient #bethematch #transplantlife #transplantation #bonemarrow #NiasSong #HLA #HLAIdentical #MatchedSibling #MatchSibling #TeamNia #FutureSickleCellSurvivor #BMTThriver #NiaStrong💪🏽

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@joeypricemusic

@branlin_foundation is a non-profit organization established to promote awareness and educate about the adverse impact of Sickle Cell Disease. They support children and families affected by this devastating illness. On Saturday, December 8, 2018 from 5:30p.m. - 9:30p.m. @branlin_foundation is throwing their REMINISCING event at @refugechicago located at 416 S. Clark St. Chicago, IL 60605. I, along with other talented Chicago artists, will be performing that night. Don’t come out to support the artists. Come help honor loved ones who battled with Sickle Cell and those who are currently fighting. There will be food, drink specials and raffles. I hope to see you there. Ticket link is in my bio👆🏾 #JoeyPrice #TwoGuardMedia #AgencyAbron #sicklecell #sicklecellawareness #sicklecellwarrior #sicklecelldisease #sicklecellsucks #Chicago #HipHop #artist #music #genre #song #songs #follow4follow #followme #hiphop #rap #beats #myjam #party #newsong #lovethissong #favoritesong #bestsong #pleasefollow #bumpin #listentothis #goodmusic at Refuge Chicago

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@aidencaiser

Family, Faith, Fun, togetherness, kindness, love, perseverance, satisfaction, optimism, important lessons for or children to learn. Friday night family fun. #family #nogamesfortwohours #justus #familyfun #dinner #christmas #justlearning #pausefortnite #sharingiscaring #toddler #sicklecell #sicklecellsucks

1
@theanalytical_1

First day out of the house I’ve been sick for my entire vacation.... #sicklecellsucks

4
@healingblendsglobal

As a Sickle Cell Disease fighter, its vital that your body is functioning at its highest. This begins with getting the most nutrients our bodies need in order to reduce crisis and avoiding those foods which can cause issues. #sicklecellsurvivor #sicklecellfighter #teamlove #family #friendsplease #sicklecelltrait #sicklecellanemia #sicklecelldisease #sicklecellsucks #boldlipsforsicklecell #sicklestrong #sicklecellanaemia #healthmatters #sicklecell #wellnesswarrior #healthyeating #healthydiet #food #diet #eatwelllivewell #youarewhatyoueat #llwl

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@soulpretty

It’s that time of year again...Time to brighten the day of a child living with #sicklecelldisease . Mini is hosting a paint and sip...and she is asking all her guests to bring a toy to donate to her old hospital. In the past, many of you have expressed interest in donating. Please DM me if you would like to donate and help Mini give back to the community that changed her life ❤️. . . . #sicklesellsgiveaway #sicklecellsucks @scdaa #sicklecellwarrior #bonemarrowtransplant #cohenschildrenshospital #spelman19 @spelman_college #likethis #likephoto #givebackchallenge #givebacktothecommunity #teamsicklecell #veganlife #loa #vibratehigher #lifeisgood #blackvegansofig at New York, New York

2
@soulpretty

It’s that time of year again...Time to brighten the day of a child living with #sicklecelldisease . Mini is hosting a paint and sip...and she is asking all her guests to bring a toy to donate to her old hospital. In the past, many of you have expressed interest in donating. Please DM me if you would like to donate and help Mini give back to the community that changed her life ❤️. . . . #sicklesellsgiveaway #sicklecellsucks @scdaa #sicklecellwarrior #bonemarrowtransplant #cohenschildrenshospital #spelman19 @spelman_college #likethis #likephoto #givebackchallenge #givebacktothecommunity #teamsicklecell #veganlife #loa #vibratehigher #lifeisgood #blackvegansofig at New York, New York

0
@soulpretty

It’s that time of year again...Time to brighten the day of a child living with #sicklecelldisease . Mini is hosting a paint and sip...and she is asking all her guests to bring a toy to donate to her old hospital. In the past many of you have expressed interest in donating. Please DM me if you are would like to donate and help Mini give back to the community that changes her life. ❤️. . . . #sicklesellsgiveaway #sicklecellsucks @scdaa #sicklecellwarrior #bonemarrowtransplant #cohenschildrenshospital #spelman19 @spelman_college #likethis #likephoto #givebackchallenge #givebacktothecommunity #teamsicklecell at New York, New York

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@crnljns1989

I hate to do this but health comes first and she will understand 😭😭 #sicklecellisnojoke #sicklecellmatters #sicklecelldisease #sicklecellsucks #stressedtfout #findacureforsicklecelldisease #helpmelord

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@healing_abeline

It has been over a year since the stroke that changed our world forever and today we celebrated Abeline’s 6th birthday! This little girl have overcome so much in her short life and I am constantly amazed by her strength and resilience. Sickle Cell will not keep her down. She is going to change the world one day.

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@onescdvoice

How much do you know about Hemoglobin? Share your knowledge below or visit our community to get the correct answer. Link in bio. #scd #sicklecellawareness

5
@keevieskia

Major shoutout to @markusgolden !!!!!! This is what support looks like! #sicklecellsucks #cimoneandfriends @scdaa @mdsicklecelldiseaseassociation @sicklecell_ne_sinerge

0
@ohmeekohmy

On the road to 500 subs follow my YouTube page and link in the bio

1
@fightingthroughourpaintv

Here’s a few clips from interview we did with our medical commentator... Who Also Happens To Be Our Doctor The Best Hematologist Ever.... #DrThomasHarrington Please Listen As He Talks About Strokes With Sickle Patients .... This Is Very Informative Knowledge Of What Sickle Cell Patients Have To Deal With, There Will Be Several Interviews With Dr.Harrington Please Watch Support And Share For The Full Interview Please Head Over To Our YouTube Page at fightingthroughourpaintv. #fightingthroughourpain #fightingthroughourpaintv #fightingthroughourpainpodcast #fightingthroughourpainstories #sicklecellawareness #sicklecell #sicklecellwarrior #sicklecellanemia #sicklecelldisease #sicklecellmatters #sicklecellsucks #doctors #nurses #hospitals #insurances #essence #essencefestival2019 #oprah #ellenshow #tylerperry #freeform #aenetworks #blood #hematology #umiami. #universityofmiami

3
@niabadia1

We've been taking a little break to regroup! Nia's doing better than I could ever hope for! She's still at risk for GVHD, but we're claiming she wont have any! Additionally, she's still at risk for infections and contracting colds, flus and other illnesses! In fact, I developed a virus and became very sick and had no interaction with my baby for a little over a week! TORTUROUS BUT NECESSARY! Please remember that those who are immune deficient need not be exposed to ANY illnesses! It's not to hurt your feelings, but a necessary prevention to spare their lives! My daughter can't enter back into a school setting because of this! She recently had a BMT appointment to check chimerisms and her %S! (waiting on results) Appointments are now every other month until her 1 year anniversary 2/23/19! 🎉🎉🎉 Here's the results from her latest visit: Thursday, November 29, 2018 (DAY +279) WBC (white blood count) 4.76 🙌🏾 HGB (hemoglobin) 14.0 🙌🏾 Platelets 236 🙌🏾 ANC 1.58 🙌🏾 Eosinophils 🙌🏾 Chemistries, including vital organ functions 🙌🏾 Some of y'all know where we came from! Some of y'all know how Sickle Cell Disease threatened to take her life! Some of y'all know how often she was hospitalized! MY BABY HAS COME A LOOOOONG WAY! Thanks for your continued support! ❤❤❤❤❤ Visit our website for more stories and updates: http://www.niassong.com Like on Facebook: https://www.facebook.com/babyniassong/ Follow on Instagram: https://www.instagram.com/niassong/ Subscribe to YouTube: https://www.youtube.com/channel/UCtwkf6rdx2k9rwBYsetJh6Q Make a tax-deductible donation at: https://www.gofundme.com/niassong #sicklecellawareness #sicklecell #sicklecellwarrior #sicklecellanemia #sicklecelldisease #sicklecellsucks #sicklecellstrong #sicklecellfighter #sicklecellmatters #teamsicklecell #sicklecelllife #sicklecellsoldier #sicklecellfamily #sicklecellsurvivor #transplanted #bonemarrowtransplant #transplantrecipient #bethematch #transplantlife #transplantation #bonemarrow #NiasSong #HLA #HLAIdentical #MatchedSibling #MatchSibling #TeamNia #FutureSickleCellSurvivor #BMTThriver #NiaStrong💪🏽

0
@norahmaroulis

#Repost @dkms_us ・・・ Darian is one of the bravest kids we know. He's fighting #sicklecelldisease. . This #summerbreak, while his friends are out playing, Darian will be managing the pain from his disease. He CAN get better, but he needs YOU. Click the link in our bio to learn how you can get involved. . . . #DKMSPlusMe #deletebloodcancer #DKMS #Getswabbed #DoitForDarian #sicklecellwarrior #sicklecellawareness #sicklecellsucks #sicklecellstrong at Royal Oaks Country Club

21
@knuckles4serenity

..... there’s a child who is sick & begging to be free, but there is no cure for her disease. She looks up to her mother as she holds her hand. Praying that some day the sun will shine again and the pain will enddddd.... WcE one of the strongest, toughest little girl I know #sicklecellawareness #sicklecellwarrior #sicklecellmatters #sicklecellsucks #sicklecelldisease #sicklecellanemia #sicklecell101 #knuckles4serenity 🥰

0
@blaqqchina18

In this place again. #sicklecellsucks @sicklecellmatters

8
@onescdvoice

If one parent has beta thalassemia trait and one parent has sickle cell trait, there is a 25 percent (1 in 4) chance with each pregnancy of having a child with sickle cell disease. Learn more on our platform (link in bio)

7
@joeypricemusic

@branlin_foundation is a non-profit organization established to promote awareness and educate about the adverse impact of Sickle Cell Disease. They support children and families affected by this devastating illness. On Saturday, December 8, 2018 from 5:30p.m. - 9:30p.m. @branlin_foundation is throwing their REMINISCING event at @refugechicago located at 416 S. Clark St. Chicago, IL 60605. I, along with other talented Chicago artists, will be performing that night. Don’t come out to support the artists. Come help honor loved ones who battled with Sickle Cell and those who are currently fighting. There will be food, drink specials and raffles. I hope to see you there. Ticket link is in my bio. #JoeyPrice #TwoGuardMedia #AgencyAbron #sicklecell #sicklecellawareness #sicklecellwarrior #sicklecelldisease #sicklecellsucks #Chicago #HipHop #artist #music #genre #song #songs #follow4follow #followme #hiphop #rap #beats #myjam #party #newsong #lovethissong #favoritesong #bestsong #pleasefollow #bumpin #listentothis #goodmusic at Chicago, Illinois

13
@queen_of_fades

Well...guess who gets the dummy award for the day 🏅 🙄 I do. I Thought DJ just wanted to stay home from school..(like all kids do) few minutes into my “you can’t skip school speech” he has a sickle cell crisis. 😔 feel so bad. Now I gotta spoil him cuz he’s giving me the I told you so look 😩 #sicklecellsucks at Akron Children's Hospital Emergency Services - Boardman

7
@nopainintheplayroom

The weather outside is beginning to look a little frightful so stay warm warriors let’s beat #sicklecell this winter

2
@nicollemarieaura

This is the face of someone who spent their whole evening yesterday at the hospital and didn't get home until after 11 due to crazy pain in her knee that my GP and the hospital cannot explain. One doctor says I've been in a sickle cell crisis for 3 months another doctor says that it's not sickle cell. I'm exhausted, physically and emotionally and im super frustrated because I'm still in pain despite the medication I've taken and have been given. Along with that I feel like I can't catch a break with this thing called life lol this year has been difficult and a part of me wonders if things will let up! However, SOMEHOW through it all, I still have that little bit of strength inside of me to smile and keep trusting in God. I feel like he is all I got right now along with my girls who I am so grateful for and that's reason enough to smile and keep moving forward. So for all of you all who know the feeling, keep that chin up! And Try your hardest to smile because regardless of what's going on in your life, you are awake, you are alive and you are blessed. #morningaffirmations #morningwordwithNicolle #smiling #tryingmybest #lifeisdifficultsometimes #stillholdingon #sicklecellanemia #sicklecellawareness #sicklecellwarrior #sicklecellsucks #melaninpoppin🍫 #boxbraids #sisterhood #mustardtop #friendship #ecouragement #meditation #mindfulness #chronicillnesswarrior #chronicpain #hospitaltrips #protectivehairstyles #protectivestyles

20
@cutiepopglitzyglitterz

❤️❤️❤️😍😍😍😍 Repost from @theebbyeffect using @RepostRegramApp - Day 4/25 Christmas Tree Details Eyebrows: I honestly used a mixture of things I’m sorry. Eyes: @morphebrushes X @jamescharles Palette Lashes @eb_cosmetics1 in Aimee @elfcosmetics eyeliner Face: @milanicosmetics Foundation in Golden Toffee @urbandecaycosmetics All nighter Concealer for Contour and Highlight @thecrayoncase Chalk Dust in Y @blackradiancebeauty Pressed Powder in Ebony for the tree @juviasplace The Magic Palette and @cutiepopglitzyglitterz glitters my hubby also drew my tree lol. Lips: @thecrayoncase Liner and @nyxcosmetics Lippie #25daysofchristmas #makeup #makeupartist #mua #mue #undiscoveredmakeupartist #makeupfanatic1 #undertheradar_makeup #makeupartistworldwide #christmastree #sicklecellanemia #sicklecelldisease #sicklecellawareness #sicklecellsucks #sicklecellwarrior #sicklecellmatters #findacure #letstalkaboutit

0
@cellss_scd

New necklaces get yours now

3
@theebbyeffect

Day 4/25 Christmas Tree Details Eyebrows: I honestly used a mixture of things I’m sorry. Eyes: @morphebrushes X @jamescharles Palette Lashes @eb_cosmetics1 in Aimee @elfcosmetics eyeliner Face: @milanicosmetics Foundation in Golden Toffee @urbandecaycosmetics All nighter Concealer for Contour and Highlight @thecrayoncase Chalk Dust in Y @blackradiancebeauty Pressed Powder in Ebony for the tree @juviasplace The Magic Palette and @cutiepopglitzyglitterz glitters my hubby also drew my tree lol. Lips: @thecrayoncase Liner and @nyxcosmetics Lippie #25daysofchristmas #makeup #makeupartist #mua #mue #undiscoveredmakeupartist #makeupfanatic1 #undertheradar_makeup #makeupartistworldwide #christmastree #sicklecellanemia #sicklecelldisease #sicklecellawareness #sicklecellsucks #sicklecellwarrior #sicklecellmatters #findacure #letstalkaboutit

4
@complex_cookie

It sucks that I can't call you back to let you know why I wasn't answering my phone... It sucks that I can't tell you I'm finally feeling better so we can go shopping... It sucks that I didn't get to see you before you left... IT SUCKS THAT I LOST ANOTHER FRIEND!!! #SickleCellSucks #Over20YearFriendship #ForeverFriends #MyBoyForever #DMB

4
@sparkleforsicklecell

Just a reminder that you have to trust in the timing of your life, God makes everything beautiful in his time. So trust him and hang in there. It gets better and he is the God of the 11th hour and nothing is too hard for him. #sparkleforsicklecell #sicklecellstars #sicklecell #sicklecellwarrior #sicklecellawareness #sicklecellsucks #sicklecell101 #fighter #teamsparkle #lovesomeonewithsicklecell #showlove #star #sicklecelldontstopme #sicklecelldisease #sicklecellanemia #sicklecelladvocate #sicklecellslayers #sicklecellawarenessmonth #scdawarenes

0
@joeypricemusic

@branlin_foundation is a non-profit organization established to promote awareness and educate about the adverse impact of Sickle Cell Disease. They support children and families affected by this devastating illness. On Saturday, December 8, 2018 from 5:30p.m. - 9:30p.m. @branlin_foundation is throwing their REMINISCING event at @refugechicago located at 416 S. Clark St. Chicago, IL 60605. I, along with other talented Chicago artists, will be performing that night. Don’t come out to support the artists. Come help honor loved ones who battled with Sickle Cell and those who are currently fighting. There will be food, drink specials and raffles. I hope to see you there. Ticket link is in my bio. #JoeyPrice #TwoGuardMedia #AgencyAbron #sicklecell #sicklecellawareness #sicklecellwarrior #sicklecelldisease #sicklecellsucks #Chicago #HipHop #artist #music #genre #song #songs #follow4follow #followme #hiphop #rap #beats #myjam #party #newsong #lovethissong #favoritesong #bestsong #pleasefollow #bumpin #listentothis #goodmusic at Refuge Chicago

2
@aidencaiser

Helping decorate the office since I won’t allow mom to go into an office!!!! #sicklecellsucks #workfromhome #doitforsicklecell #toddler #noschool #officedecor

1
@dat_girl_cyn

This doctor is the goat... To each his own but i compare sickle cell pain like falling off of a building, whatever level (from a pain scale of 1-10) of pain I'm in that represents the floor i would have fallen from. #warriors #warrior #warriorsstandup #sicklecell #sicklecellwarrior #sicklecelllife #sicklecellmatters #sicklecellwarriors #sicklecellsoldier #sicklecellsucks #sicklecellawareness. #sicklesupport #sicklecellcommunity

6
@mzsprad09

It makes it a little bit easier having great spirits around you! Texas Children’s always make us feel welcomed! #sicklecellsucks #mommyduties #sicklecellwarrior #godgotus at Texas Children's Hospital The Woodlands

0
@loyaltynicole__

Please read carefully, I have two ports for many reasons! Going on 5 years in March with my Power Port (Single Port), got my new Vortex Port December 3rd, 2018! I’m very blessed and God love me 🥰❤️😘 #sicklecellwarriorprincess #sicklecellawareness #sicklecellanemia #sicklecellsucks #sicklecell101 #sicklecellmatters #sicklecellstrong #sicklecelleducation #sicklecellfighter #sicklecellproblems #sicklecellwarriorprincess #detroitmua #makeupvideos #makeup #muadetroit

0
@ohmeekohmy

🤣💕

6
@loyaltynicole__

Vortex port on the left, and my power port on the right.! Sickle cell warrior scars 💪🏽💪🏽 #StrongWarrior #chronicillnessproblems #sicklecellwarriorprincess #SickleCellProblems #SickleCellSucks

19
@naturallyblingin

Auntie Duties ❤️ Keep my sister in your prayers please 🙏🏽 #Sicklecellsucks #sicklecelldisease #auntieduties

12
@cutiepopglitzyglitterz

❤️😍😍😍 Repost from @theebbyeffect using @RepostRegramApp - In this crazy world if you could be anything, be a snowflake because each one is different!!!!! Day 2/25 Details Eyebrows: @colourpopcosmetics Brown Pomade in Black/Brown Eyes @morphebrushes X @jamescharles Palette @cutiepopglitzyglitterz Glitter and @eb_cosmetics1 Lashs in Aimee Face: @blackradiancebeauty B.B. Cream in Brown Sugar @maybelline Fit Me in 368 and Concealer @thecrayoncase Contour Kit and Chalk Dust in Y Lips @thecrayoncase Lip Liner the pink one @nyxcosmetics Lippie from day two of the Advent Calendar. #25daysofchristmas #makeup #makeupartist #mue #mua #makeupunderdogs #undertheradar_makeup #undiscovered_muas #snowflakes #colourpopcosmetics #morphe #jamescharles #sistersquad #cutiepopglitzyglitterz #ebcosmetics1 #blackradiancebeauty #maybellinefitmefoundation #thecrayoncase #nyx #sicklecell #sicklecellawareness #sicklecellanemia #sicklecelldisease #sicklecellsucks #sicklecellqueen #findacure #letstalkaboutit

0
@loyaltynicole__

It hurts bad, and they didn’t put me to sleep smh 🤦🏽‍♀️ #sicklecelldisease #sicklecellawareness #sicklecellwarrior #VortexPort #sicklecellsucks #TwoPorts #VortexPort #PowerPort

15
@aidencaiser

No rest for the weary!!!! Stayed home today cause I complained about pain last night BUT instead of watching TV I decided to clean the bathroom and my dog????? #sicklecell #sicklecellsucks #why

5
@mzsprad09

Good morning my beautiful people. Even though things may not be going as we like we are still blessed to say good morning! #grateful #sicklecellwarrior #sicklecellsucks at Texas Children's Hospital The Woodlands

6
@theebbyeffect

In this crazy world if you could be anything, be a snowflake because each one is different!!!!! Day 2/25 Details Eyebrows: @colourpopcosmetics Brown Pomade in Black/Brown Eyes @morphebrushes X @jamescharles Palette @cutiepopglitzyglitterz Glitter and @eb_cosmetics1 Lashs in Aimee Face: @blackradiancebeauty B.B. Cream in Brown Sugar @maybelline Fit Me in 368 and Concealer @thecrayoncase Contour Kit and Chalk Dust in Y Lips @thecrayoncase Lip Liner the pink one @nyxcosmetics Lippie from day two of the Advent Calendar. #25daysofchristmas #makeup #makeupartist #mue #mua #makeupunderdogs #undertheradar_makeup #undiscovered_muas #snowflakes #colourpopcosmetics #morphe #jamescharles #sistersquad #cutiepopglitzyglitterz #ebcosmetics1 #blackradiancebeauty #maybellinefitmefoundation #thecrayoncase #nyx #sicklecell #sicklecellawareness #sicklecellanemia #sicklecelldisease #sicklecellsucks #sicklecellqueen #findacure #letstalkaboutit

16
@cellss_scd

Painsomnia

2
@cutiepopglitzyglitterz

❤️❤️😍❤️❤️❤️ Repost from @theebbyeffect using @RepostRegramApp - Ok babes I did my first Christmas look tonight. I plan to be so much better by the end of these 25 days. Details Eyebrows: @colourpopcosmetics Eyebrow Pomade in Black/Brown Eyes: @thecrayoncase Box of Crayons and @juviasplace Festival Palettes @cutiepopglitzyglitterz for the sparkle on the lights. Face: @colourpopcosmetics Foundation, @thecrayoncase Chalk Dust in Y and Contour @profusion Blush, and @nyxcosmetics Highlight from day one of the Advent Calendar Lips: @nyxcosmetics Liner and lipstick glitter @eb_cosmetics1 #25daysofchristmas #makeup #makeupartist #mua #mue #muas #undertheradar_makeup #makeupunderdogs #underratedmuas #mypassion #thecrayoncase #colourpopcosmetics #juviasplace #cutiepopglitzyglitterz #ebcosmetics1 #nyxcosmetics #profusioncosmetics #sicklecelldisease #sicklecell #sicklecellawareness #findacure #letstalkaboutit #sicklecellwarrior #sicklecellanemia #sicklecellsucks

0
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