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@permanetly_exhausted

Day number 19/28 of Spoonie Essentials is a mini fridge! This is actually something I do not own. Gasp! It's the only one on the list I don't physically have yet but it's something I desperately want and I know it would be so useful. They can be pricey, like the one I picture above, but the real issue for me is space. I have a very large king size bedroom set but since I've had to move back in with my mom I'm in a tiny child sized room. Thank you chronic illness for that lol Anyways, there's no room for it at the moment but let me tell you why I need it. 1. I drink a LOT of fluids. As mentioned in a previous post I drink tons of water, Gatorade, ginger ale and meal replacement drinks. That'd a lot of extra space in the kitchen refrigerator! 2. I have insomnia that keeps me up at ungodly hours of the night, and I have to try and be super quiet tip toeing out to the kitchen and rummaging through the fridge or pantry. 3. I am in constant pain and like convenience. I like to have everything and anything I may need available at all times. This includes my drinks, my snacks, ice cubes, and any frozen packs I use for pain. If anybody has any advice, tips or experience with mini fridges please feel free to share and add to my list of benefits! #spoonie #spooniegirl #spoonielife #spooniewarrior #spoonies #spooniestrong #spooniecommunity #chronicillness #chronicillnesslife #chronicillnessblogger #chronicillnesswarrior #thisischronicillness #chronicpainsyndrome #chronicfatigue #chronicfatiguesyndrome #undiagnosed #mentalhealth #anxiety #recovery #spoonieEssentials #lifehacks #butyoudontlooksick #invisibleillness #permanentlyexhausted

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@oceanus_x

an oldie but I always miss having bangs like this until I cut them, then I’m stuck hating them until they grow out again. The struggle is real af. #bangs #straightbangs #selfie #girlswithpiercings #redhair #eyeliner #derp #spoonielife #chronicpain #endowarrior

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@chronically.sam

Ignore how bad I look, just had a massive coughing fit turned gagging fit. — Brainfog got me again. Was trying to fill up the sink, stood there for two minutes like « damn this is awful slow » THEN FINALLY REALIZED THAT I DIDNT PUT THE FUCKIN PLUG IN — Also if my pain gets much worse or I start puking I’m going to the ER lmaooo bc it’s spread from one little piece of my torso to across the whole middle — #spoonie #spoonielife #spoonieprobs #spoonieproblems #spooniewarrior #spooniecommunity #chronicillness #chronicillnessawareness #chronicpain #chronicpainawareness #chronicpainwarrior #ibs #oralallergysyndrome #chronicmigraines #medicalmystery #chronicfatigue #fibromyalgia #fibrowarrior #POTS #mentalhealthawareness #autismawareness #autismacceptance

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@gillaard

Groceries are scarce in this house. I wasn't able to leave the house, let alone stand in a kitchen meal prepping this weekend due to my most recent flare. I am starting to feel better tho, but I have decided to ride out what's left in my fridge until the weekend. I still managed to put together this delicious snack bowl! I have dates (which I stuffed with coconut butter, celery, cheddar and pecans. #cheeseisneverscarce #alwayssomuchcheese . . . #balanceddiet #eatright #healthawareness #healthyeating #justeatrealfood #eatrealfood #paleoish #eatyourveggies #goodmoodfood #foodismedicine #healthiswealth #freshisbest #whatieat #whatsonmyplate #lowstarchdiet #lowstarch #lowstarchdietforankylosingspondylitis #lowcarb #intermittentfasting #ankylosingspondylitis #spoonielife

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@chakrachelsie

Sometimes the fact that I post so openly and consistently surprises me.⁣ ⁣ It's incredible how much our experiences shape us, right?⁣ ⁣ There's a part of me that feels so distant from the girl who tried so hard in middle school and high school to make everyone like her.⁣ ⁣ There's a part of me that feels so close to the girl who would come home from 5th grade to e-mails telling her to go harm herself.⁣ ⁣ In my meditation today, I made it a point to honor and energetically hug each of these parts.⁣ ⁣ I'm so proud of the part that doesn't give a f-- about *pleasing* others [and all the f's for *serving* others].⁣ ⁣ I'm learning patience with the part that is still holding onto the pain.⁣ ⁣ What are you going to let be your story?⁣ Will the fear win?⁣ Will you take one look at the mountain and deem it impossible?⁣ ⁣ Or will you climb?⁣ Will you go, step by step, appreciating the view with each shift in elevation?⁣ Will you move forward with a deep sense of knowing that no matter what, it's worth it? ⁣ ⁣ Having a support team makes all the difference. If the mountains in your life have seemed insurmountable, I'm here to help. 2 spaces left in my collaborative coaching meets therapy 1:1 program. Send me a message if this is for you.⁣ .⁣ .⁣ .⁣ .⁣ .⁣ .⁣ .⁣ .⁣ .⁣ .⁣ .⁣ .⁣ .⁣ ⁣ ⁣ #fibromyalgia #fibromyaligawarrior #chronicpain #wellbeingwarrior #holsiticwellness #essentialoils #spoonie #fibrowarrior #invisibleillness #spoonielife #spiritualawakening #chakras #chakrahealing #lifecoach #energyhealer #butyoudontlooksick #mentalhealthawareness #cannabisismedicine #spiritualstoner #mindbodysoul #wellnessblogger #medicate #meditateeverydamnday #yogaeverydamnday

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@chronically_gorgeous

I am very, very sick at the moment. I slept 4 hours in the past 72. Please hold me in your prayers - Take your meds! Eat something! Don’t hesitate to DM! (I might not respond instantly) - #chronicallyill #spoonie #chronicillnessmemes #cfs #lupus #chrons #endo #pots #polycysticovariansyndrome #chronicillness #ibs #ibd #painsomnia #spoonielife #autoimmunedisease #nausea #eds #spoonie

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@sjogrens_strong

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@serenityakatdb

Grateful. For every download, every stream, mention, repost, write up, interview, and booking, but more grateful for every person who connects with my music and finds their voice in mine. I cannot tell y’all enough how I appreciate you joining me on this journey. YOU inspire me! Here’s to growing and shining like STAARs, together. #serenityakatdb  #theserenityshow  #whoamivol1  #newmusic  #lupuswarrior  #spoonielife #spoonies #lupusawareness  #rnb  #hiphop  #femalemc  #rocnation  #livenation  #blackexcellece #blackherstory  #femcess  #songwriter  #ArtistOnTheRise  #liveinterviews  #power1051  #hot97  #musicislife  #revolt  #BET  #vh1  #wshh  #thesource  #vevo  #idealroxstars

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@deltafenix

Pretty chuffed with my nails given how horrible I feel now. Two refills of my hot water bottle, many painkillers and still can't move off the sofa. Was fine until about 8pm when I thought I was going to whitey everywhere. Got my alarm set for the docs opening to see if I can get an appointment. Hopefully It will work around another appointment I have at lunchtime..... #manicure #nails #nailsofinstagram #nailfoils #endowarrior #endometriosis #chronicpain #chronicillness #paindisorder #spoonielife #endometriosisawareness #endosymptoms #endometriosisuk

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@thehealerista

When I quit my job, I offered feedback to my employer to what I felt was a frustrating process with my disability insurer. I was asked to sit with a high level Director of the massive company I worked for to provide feedback on what occurred. I had the privilege of meeting with her today to discuss my concerns in a constructive and progressive manner. Remember that when illness and disability processes make you feel like you have no power, take your power back. You HAVE a voice. Use it in a constructive and positive manner to elicit positive change. Do NOT let the past hold you down and victimize you. You still have a path and life to choose. Xoxoxo 💖💖💖 . . . . . . . . #fibromyalgia #healing #anxiety #fibrowarrior #chronicpain #love #moveforward #mentalhealth #depression #health #migraine #wellness #epsteinbarr #loveyourself #thehealerista #growth #medicalmedium #healthy #journey #chronicmigraine #selfcare #motivational #spoonielife #instagram #fatigue #happy #invisibleillness #chronicillness #heal #chronicmigraines

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@mewarriorfaye.91

I hate Hydrotherapy! So far I only feel worse 😞 I only managed 10 minutes in the pool today of those 10 minutes I probably got about 2 minutes with the physio. Feel like there is absolutely no support from them and all I get is pain and fatigue from it. Wondering if it’s even worth it at this point. 😞 Apologies for the not so positive post. #Hydrotherapy #physiotherapy #chronicillness #chronicpain #chronicfatigue #chronicfatiguesyndrome #cfs #cfsme #myalgicencephalomyelitis #hEDS #ehlersdanlossyndrome #potssyndrome #disability #spoonie #spoonielife

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@_danielle_christine_

I remember I used to think that what you put on your skin didn’t really matter……I mean, it’s not as if you’re “eating it”, right? Well… turns out, you basically ARE eating it! 😛 You actually absorb about 10-20% of most topical products (depending on the formula, of course, because some molecules don’t absorb). Something that helped me realize both the danger (and the power) of this was when I started using topical supplements and realized putting something on my skin affected not just my body, but my mental state too. In other words, what you put on your skin matters! 🙃 And if you put a lot of endocrine disruptors on your skin regularly it can have a real effect on your liver’s ability to detoxify things like excess estrogen. 😟 This gets to be an extremely important issue when you have inflammation issues since excess estrogen is a root cause of it. 🙅🏻‍♀️ An EWG analysis shows that at least 146 common cosmetic ingredients can contain impurities linked to cancer and other health issues. Because some ingredients are used so widely, the vast majority of products on the market have the potential to be contaminated with impurities. ⚠️ So for this reason, I aim to only put things on my skin I can literally EAT! There are over 10,000 toxic ingredients, so instead of trying to remember them all, I aim to keep my products as simple as possible. 💄 I recently tried the the coffee mask from @Alexis.Roch recipe section. It’s all food ingredients and it smoothed my skin IMMEDIATELY make it supple and glowing! Go check it out under her skin care section. It’s as good as any expensive skin care, plus it’s fun to make, and GOOD for you! 🙋🏻‍♀️ Who else loves skincare that makes you look good, AND is good for you? Photo credit @alexis.roch . . . . . . #rawarrior #arthritis #jointpain #rheum #rheumy #rheumathlete #rheumatoid #rheumatoiddisease #rheumatoidarthritis #rheumatoidarthritiswarrior #rheumatoidarthritisdiet #autoimmune #autoimmunedisease #autoimmunewarrior #autoimmuneprotocol #autoimmunepaleo #autoimmunediet #inflammation #hormonalimbalance #aip #aippaleo #aipdiet #spoonielife #spooniestrong #spoonies #ankylosingspondylitis #curearthritis #psoriaticarthritis at Washington, District of Columbia

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@archivedee

Hullo, it's you again. #dogbrooch #atwork #spoonie #spoonielife

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@chronicmom

Living with chronic pain isn't easy. You lose your quality of life, you take a lot of flack from friends and family, and you are blamed for not functioning like a healthy person. The truth is though, that people in pain are awesome. Click on my bio for link to blog post #chronicilless #chronicpain #chronicpainwarrior #spoonielife #spoonie #spooniesupport #invisibleillness #pain #chronicinsta #chronicillnessblogger #chronicillnessbloggers #fibromyalgia

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@gpamanda28

Can’t eat so selfies during lunch is the way to go.

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@gtailly

My hospital adventures Day VII Good friends and family can always cure a lonely heart. Bonus picture, shower taken and fresh clothes. Also, I am finally able to cross my legs! Way less spastivity feels so relieving. #ms #thisisms #multiplesclerosis #sp #scleroseenplaques #disability #disabled #chronicallyill #chronicillness #invisibleillness #cripplepunk #cpunk #sick #sicknotweak #hospitallife #earplugs #bodymods #pizza #pizzaislove #pizzaislife #pizzaforever #patienceisavirtue #spoonie #spoonielife at Montreal, Quebec

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@heathrenee

This right here is so accurate. It’s the little things that can make a huge impact. If someone you love has an invisible illness, take the time to research and understand what they’re going through. People look at me and think there’s nothing wrong. And even when they learn that I have RA they assume that I have just have problems with joint pain. They have no idea about the daily fatigue, the nausea that comes from taking the meds, muscle aches, problems with the immune system, the inflammation that can damage the lungs, heart and eyes, and so much more. And that’s just the RA. Don’t get me started on my Fibromyalgia or Epilepsy and all the mental health struggles that come with them. #spoonielife #invisibleillness #rheumatoidarthritis #raawareness #epilepsyawareness #fibromyalgiaawareness @spooniehealthhub

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@feliciadistad

We have an answer. . Her kidney issue, although healed, makes her more likely to develop UTIs. I had no idea a UTI could make anyone throw up! But that's what I've been told is going on. . We dropped Little A off with a friend just before 9am and picked her up at 2pm. No one napped. A very long day for all of us. . Now we're home. Medications picked up. Diapers changed. Snacks handed out... and we're all exhausted, but safe and on our way to healthy. . Thank you, everyone, who reached out. We all appreciate your love and support! ❤️ . . . . . . . #embracethechaos #sacramentomoms #gritandgrace #momlifestruggles #momstrong #blessedmama #wifelife #momsohard #momstruggles #toddler #toddlerlife #toddlermom #toddleradventures #spoonie #spooniemom #spoonielife #vasculitis #vasculitiswarrior #prednisone #momgoals #fitnessjourney #familylife #momonamission #babylife #momtribe #stronglikemom #sickkids #sistersquad #theygrowupsofast

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@mermaid.rouge

Everyone meet The Amygdala... The part of the brain responsible for making me feel like s**t. The amygdala is responsible for the fight or flight response that causes you to respond to threats. The amygdala is also responsible for deciding what memories are stored and where they are stored. The level of emotion that is attached to a memory determines where it is stored in the brain. The amydala is responsible for post traumatic stress and is the reason why some people can't forget trauma. It is also why your body experiences similar symptoms during a panic attack as when a traumatic event occurred. The amygdala basically stores bad memories like a library and brings them out whenever it feels like it. Don't we all hate the amygdala 🤣😡 #pmdd #pmddawareness #ptsdawareness #psychology #fibro #stress #pcossupport #posttraumaticstressdisorder #ptsdsupport #spoonie #chronicillness #chronicpain #mentalhealthblog #health #healthvlog #healthblog #spoonielife #support #healthblogger #pain #ocdsupport #ptsd #invisibleillness #amygdala #stressmanagement #anxietysupport #mentalhealth #ocd

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@alienbrainx

#Repost @miss_mental0 (@get_repost) ・・・ Gentle reminder that you are enough!💕 ⠀⠀⠀⠀⠀⠀⠀⠀⠀ No need to set high standards for everything in your life, it's okay to not be the best at everything, and when things are tough it's also okay to give yourself some time. Everything in moderation😏 ⠀⠀⠀⠀⠀⠀⠀⠀⠀ Be kind to yourself friends💜 ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #mentalhealth #beautifulwords #realmotherhood #selfworth #mindful #bodypositivity #kindness #bodypositive #selfcare #mentalhealthawareness #missmental #mentalillness #bpd #ptsd #anxiety #depression #bekind #bodyconfidence #selfesteem #persoonlijkegroei #spoonielife #liefde #motherhood #infertility #moms #bipolar #recovery #chronicfatigue #fibromyalgia

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@sickdaypod

We love this shoutout from @iamdaniadriana! The spoonie community is SO IMPORTANT. Let’s keep building! . . . . #spoonielife #spoonie #chronicillness #chronicpain #spoonieproblems #mentalhealth

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@functionalish

//MAYBE IT’S THE NEW BOOTS//⠀ .⠀ Turn of the century writer Hannah Whitall Smith once said, ⠀ “It is wonderful what miracles God works in wills that are utterly surrendered to Him. He turns hard things into easy and bitter things into sweet. It is not that He puts easy things in the place of the hard, but He actually changes the hard thing into an easy one.”⠀ .⠀ I don’t know that he has changed this path of hardship into an easy one for me, but I am definitely limping less and looking up more to take in the view. It still is not the path I would have chosen. I suspect most of you would say the same. But it is the path that was painstakingly chosen FOR me and I am trying to walk it with grace as it is, indeed, proving to be the pathway to peace.⠀ .⠀ And I don’t know what, exactly, it IS about this journey that has worked a little serenity into my anxious, angsty spirit—but I talk about three possibilities on the blog. I hope you’ll take a peek. Because we’re gonna go through hardship anyway—we might as well GET SOMETHING OUT OF IT, NO?⠀ .⠀ .⠀ .⠀ #functionalish#peaceinthemidstofpain#theserenityprayerseries#serenityprayer#acceptancecouragewisdompeace#chronicblogs#chronicblogger#chronicwarrior#chronicsurvivor#chronicillnesscommunity#chronicillnesswarrior#chronicillness#chronicpain#chronicfatigue#epsteinbarr#depression#anxiety#insomnia#fibro#fibrofighter#spoonie#spoonies#spoonielife#spoontheory#invisibleillness#butyoudontlooksick#livingwithlimits#abundantlife#womanoffaith#faithblogger

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@curseyouklebsiella

Not a very exciting plate, but dinner tonight was grilled salmon, Brussels sprouts, and spinach. We try to eat a lot of veggies, and healthy and humanely-sourced meat for dinner and usually eat the leftovers for lunch the following day. We also eat a lot of seasonal fruit, soups, eggs, nuts, and seeds. We seriously limit grains (especially gluten-containing grains like wheat), processed or refined foods, and sweets. We’re definitely not perfect, but I have felt better since making these changes. I also did a few rounds of AIP, combined with Whole30, which I believe helped to heal my gut. Always combined with an active lifestyle 👍🏼 . . . . . . #ankylosingspondylitis #spondyloarthritis #chronicinflammation #chroniclife #autoimmune #autoimmunedisease #refusetofuse #antiinflammatory #autoimmunewarrior #spoonie #spoonielife #healthylifestyle #healthandfitness #healthandwellness #healyourgut #foodismedicine #keto #paleo

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@thespooniehomemaker

Productive day, went mall walking and had physio. Was prescribed MCP splints for my thumbs (look like these but who knows how long it will be to mine to be ready, I just sent the estimate in to make sure my insurance will cover it). I think they will help a lot and am glad they aren’t ugly like some of my braces are. Found a like-new infant life jacket for baby boy for $5. Hubby’s cousin dropped by with some epicure since hubby fixed his car for way cheaper than a shop would have. I’m excited, I love Epicure and have about 2 drawers full of it lol. 💜 💜 💜 💜 💜 💜 💜 💜 #homemaker #homemaking #spoonie #spoonielife #disabledmom #disabledmum #edsproblems #ehlersdanlossyndrome #posturalorthostatictachycardiasyndrome #chronicillness #chronicpain #invisibleillness #cci #craniocervicalinstability #mcp #thumbsplint

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@disabledvegan

If your response to my page is to "insult" vegans by saying we are disabled, you have a LOT to learn. Disability isn't an insult. Disability is not an inherently bad thing. It is another way of existing in this world. What is bad is spewing horrible ableism by trying to use disability as an insult. 🤦🏻‍♀️🤦🏻‍♀️🤦🏻‍♀️ ... [Image description: first comment says "I agree that Vegans are disabled lol". The second comment is from Disabled Vegan responding, "Using disability as an insult says more about you than it ever will about me (wink emoji)"] ... #disabledvegan #vegan #chronicillness #disabled #disability #disabilityactivism #disabilityrights #activism #feminism #feminist #ableism #accessislove #fuckableism #patientadvocate #vegansofinstagram #vegansofig #spoonie #spoonies #spooniestrong #spoonielife

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@curseyouklebsiella

I’ve been terrible at updating this account! I was thrown off by summer vacations, visitors, holidays, etc. I’m going to *try* to do better, but we will see! 😂 for anyone who doesn’t know, I’m Kami, and I have Ankylosing Spondylitis. Super fun autoimmune disease. I started this account to document changes to my diet that I made to help alleviate symptoms and avoid medication. It has worked wonderfully for me and I recommend giving it a try, but I also know that it doesn’t always work for everyone. Along with dietary modifications, I have always been an active person. I love exercise! I especially enjoy walking, hiking, running/trail-running, yoga, and mountain biking. My doctor and I believe that a big reason I have had such mild symptoms is because of my active lifestyle. Follow along! . . . . . . . #ankylosingspondylitis #spondyloarthritis #chroniclife #autoimmune #autoimmunedisease #refusetofuse #antiinflammatory #autoimmunewarrior #spoonie #spoonielife #healthylifestyle #crohns #crohnsdisease #fitness #healthandfitness #healthandwellness #exercise #physicalactivity #activelife #activeliving #activelifestyle #exerciseismedicine #spoonieexercise #spooniefitness #healyourgut #foodismedicine #keto #paleo

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@ameliablackwater

Pulmonary Stress test and lung test done ✅ I did okay just have a bit of a headache afterwards and not much spoons left🥄. Looking forward to my appointment with my new cardiologist on Thursday. Then hopefully I’ll finally get some answers and move on to the next step. 💙sending love and spoons 🥄 to all warriors out there today. ❤️. #chronicillness #spoonie #spoonielife #chdawareness #chdwarrior #transpositionofthegreatarteries #americanheartmonth #heartmonth at UCSD Thorton Hospital

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@kjrush89

Yeeeeaaahhh I've started putting some poems together in book format and I'm looking at independently publishing it even if I make it just for me I'll be happy. So once it's done I'll let you all know, let me know if you'd be interested. #KyleRush #Scotland #Glasgow #Scottish #Scottishwriter #Scottishpoet #Writer #writers #instagramwriters #poet #poetry #poetrycommunityofinstagram #igpoets #peoplemakeglasgow #chronicpain #chronicillness #spoonie #spoonielife #CRPSWarrior #crpsawareness #CRPS #rsd #deadpoetssociety #poetryisnotdead #writingabook #poetrybook #poetryisart #poetryisalive

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@sickchickkie

Got quite a lot done today! #embroidery do not know how I’ve managed without this in my life! Specially with this bloody pain level!...now I can’t see though so have to stop!...now it’s crap tv and phone surfing time! Anything to somewhat distract away from this aching! Gahhhhhhhhhhh 🤗😩😢💜 #fibromyalgia #chronicillness #chronicpain #spoonie #fibromyalgiaawareness #depression #anxiety #asthma #life #spoonielife #butyoudontlooksick #mylife #pain #tired #exhausted #love #reptiles #me #lizard

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@kelsonearth

It has been a crazy bust day today! How have you been? at Navajo, Inc.

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@chronic_rae_of_sunshine

Hey spoonie peeps I need some input! : I’ve been trying to get a trial Implant for a nerve stimulator in my back. It’s been a constant fight with insurance and I’m just trying to figure out if all this struggle is worth it. I currently use a tens unit. : I’ve heard a couple testimonials but my situation is kinda unique. I have nerve and muscle pain through my back and into my right flank. : Do you have one or have had a trial for it? How was the experience? Did it make a real difference or add to your quality of life and mobility? How does it effect your life now? : Thanks for any advice or insight! 💛💛💛

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@thecleanraexperiment

Whenever I get Chinese food, I order an extra order of steamed veggies....to eat as leftovers or meals. Kinda boring eating them plain. SO....time to get foodie spoonie creative 😋 . Readymade vegetable broth in the pantry......oh look, also found some rice pho noodles....and then wait, there's cilantro in the fridge! BOO ya.....my plant-based dinner in no time & not feeling bad about it. . . . . . . . . . . #healthyeats #fuelyourbody #letfoodbethymedicine #eatgoodfeelgood #nourishyourbody #goodeats #cleaneats #autoimmune #wellnessjourney #autoimmunedisease #mindbodysoul #holistichealth #holistic #foodismedicine #holisticnutrition #plantbased #spoonie #antiinflammatory #justeatrealfood #rheumatoidarthritis #holistichealthfoods #healthylifestyle #foodasmedicine #healyourgut #holistichealing #spoonielife #invisibleillness #holistichealthnut #digestivehealth #thecleanraexperiment

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@serenityhealthky

Know you are a warrior! The strongest people are not those who show strength in front of us, but those who win battles we know nothing about. #warrior #warriors #chronicillness #chronicpainwarrior #chronicpain #spoonie #spoonielife #spoonies #depression #depressionawareness #ptsd #ptsdawareness at East Louisville, Louisville, Kentucky

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@chronicillnesschemist

Really having a rough day. Went from 40mg of prednisone to nothing because of the prescription being missed. Dealing with insurance that has now decided to only cover the brand name of my pericarditis med. Having to start yet another heart med last night because of more issues. #chronicillness #chronicillnesswarrior #spoonielife #spoonie #spooniestrong #outofspoons #medical #pericarditis #invisibleillness #autoimmunedisease #spooniewarrior #lupus #disabled #afib #pacemaker #mcas #lupussucks #lupuswarrior

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@kellyhelena2

Wondering what these 3 pictures have in common? • • The 1st picture I posted because I feel like this picture represents how I feel inside. The happiness and joy I have in my heart, despite my pain and suffering, is BIG. The 2nd picture is of me last Thursday, and the 3rd is literally 2 days later dealing with a horrible pain flare that ended in a trip to the hospital. And although these pictures are so different, these are all pictures of me with a Dissability. • • When I meet people for the first time, or someone I haven’t seen in years, I’m normally met with utter shock and surprise when it comes up that I suffer from an #invisibleillness, and although I’m so thankful people see happiness and joy instead of pain, sometimes looking fine when you’re fighting a never ending battle is hard! • • These days when our lives are shown on highlight reels of social media, it’s becoming first nature to judge. People see me out one night enjoying myself, or a picture of me happy and dressed in real clothes, assume I’m fine, and completely discount the months of turning down invitations to do things because I was too sick or in too much pain to even leave my house. • • It’s can be so incredibly painful when you work so hard just to get out of bed, and people are constantly thinking you’re not doing enough. Sometimes(or most of the time 😅) I want to snap back and be cruel, but what if when people said hurtful things to us, instead of being hurtful back we gave thanks to god that they have no idea what you’re going through, that they get to live a life without a real concept of relentless sickness and pain. Imagine how the world would change? • • It won’t always be easy being judged. But finding the freedom in knowing that god truly knows how hard you’re trying, and believing that truth yourself. Well that is what freedom feels like to me. I pray you find that freedom too💕 #disabled #chronicpain #chronicillness #spoonielife #freedominchrist #crps #interstitialcystitis #cyclicvomitingsyndrome #bekind #youareenough #bepainfullypositive

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@rachel.makes.change

This. So much this. #Repost @spooniehealthhub with @get_repost ・・・ It’s a special feeling, one that I can’t describe. But to know that someone has taken the time to sit down and educate themselves and to try and understand your illness really does mean everything 💕 #invisibleillness #chronicillness #chronicpain #autoimmunedisease #spoonie #spoonielife #spooniestrong #itsokaynottobeokay #mentalhealthawareness #mentalillness #mentalhealthblogger Image from @gutsydating

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@radiantlife__

When you’re suffering with chronic pain and extreme exhaustion (that has you wishing it was socially acceptable to just nap on the corner in between your errands) the end of any day usually calls for vegging on the couch. Can I get an amen?! I, like many of you, have pretty much watched every possible movie, show, documentary on Netflix, Hulu, Amazon Prime etc. and anxiously awaiting new seasons (hello @strangerthingstv, July 4th…) or sequels (@toalltheboysnetflix, hai @ Peter Kavinsky). The next few weeks I’m going to try and turn more pages! _ While I was looking for my next @goodreads, this cover caught my eye — I mean how awesome does a book that screams joy (or “sparks joy” ahem, @mariekondo) and has colourful confetti all over it look? I’ve heard great things about it and since we’re nearing Spring, and I figured it was time to bring a little fun into my reading. I’m totally here for a little neuroscience, psychology and cultural anthropology! Thanks to designer, @ingridfetell for sharing your tips on how to harness the power of our environment to live fuller, healthier and more joyous lives! _ What’s on your bucket list of books to read? Any recos? Share below! _ #radientlife #strengthinvulnerability #speakyourtruth #rheumatoidarthritis #rawarrior #rheumatoidarthritiswarrior #raawareness #raawareness #arthritis #arthritissupport #arthritiscommunity #arthritisteam #arthritispain #inflammation #spoonie #spoonielife #invisibleillness #autoimmune #autoimmunedisease #chronicillness #chronicpain #journeytohealth #healthyliving #wellnessblogger #wellnessinfluencer #sparkjoy #bohodecor #homedecor #modernliving #anthropologiehome #midcenturymodern

0
@sickchickkie

I dunno! LMAO #giggles but she could probably scoop salmon out a river wiv those claws!!!! Oh my gosh...the pain when I laugh!...I got to stop finding these! Lol 😂🤣😆💜 #fibromyalgia #chronicillness #chronicpain #spoonie #fibromyalgiaawareness #depression #anxiety #asthma #life #spoonielife #butyoudontlooksick #mylife #pain #tired #exhausted #love #reptiles #me #lizard

2
@secondheartpaleo

Yesterday, I was down for the count and today was just a busy day. I ordered @zoeskitchen to the office and it’s always my fav. I love how easy it is it customize and get a healthy meal! 🙌🏻🙌🏻 at Houston, Texas

13
@chronically.illest

A lot of my life lately hasn't been great. It usually isn't, but I talk about it anyway. I suppose I needed some time to face my demons alone, and get some real rest. What does that mean? It means I'm not living a life worthy of sharing on social media. It's a life worth living, if painful and difficult. It's just not a happy narrative. If there is a lesson here, I haven't the slightest clue on how to articulate it, yet. What I do know in the face of the great unknown is that I have a lot of love to share. I have a lot more support than I know what to realistically do with. I wish I weren't sick, but I am. I wish that weren't such an intense reality that it's part of my personality, but it is. I like soup, which is good because it's easy to make and often easy to digest. I like eating soup out of the pot I made it in so I don't have to stand as much to do dishes. February will come to an end, I will see more sunshine. Move a little more. Eventually see my damn therapist. I will spend time in the woods, with the rocks, and in the lake. I'll see friends. I'll have funny anecdotes. My insurance will stop dicking me around. I'll get to photograph someone. UNTIL THEN : my posts will be infrequent. I'm gonna spend a lot of time in bed. And, I'll slowly... but, surely reach my little goals to help the world around me be less of a dumpster fire. All the same, love & well wishes to the lot of ya's. #spoonie #spoonielife #crohnsdisease #crohnsbabe #crohnsgirl #autoimmunedisease #chronicillness #chronicpain #chronicfatigue #mentalhealth #mentalillness #depression #depressionlies #panicdisorder #adhd 🖤⚡🖤 #survive

1
@vikingmom333

Just a fun snap to show off my #accessories . The #hat was a #Christmas gift, hand made from an #etsy #artist. The #necklace is from my MIL from her trip to #kenya, also hand made by a #talented local artist. #blessed #loved #40andfabulous #holisticlifestyle #holistichealth #bohemian #spoonielife #spoonie

1
@mysteryelles

Major shout out to siblings of chronic illness 🎉 Everyone focuses on how the person with chronic illness is affected but I’d say my brothers life has been affected as much if not more than my own. To all siblings of chronic illness, THANK YOU. Thank you for being understanding and adapting your life to this new reality and coming along to more appointments that you ever thought you would. Thank you for being strong and able when I (and at least 1 parent) leave for the hospital with no guaranteed return date. (And an extra special thank you to our community for volunteering to help him in our absence). Thank you for being fun and funny and especially for still treating me as me. (Some how he knows how to make everything funny - when everyone was stressing before the ambulance transfer he came in and made me laugh). Thank you for being gracious when important events and things for you have been over looked or forgotten. (I am pretty sure my first in hospital post was on his birthday) Thank you for doing things you probably never thought you would be asked to do as a sibling. (Picking me up as I scream and digging in the drawers to find anything that could help.) Thank you (and your friends) for understanding when I just can’t take it and cry. Thank you for taking this dramatic life change in stride (or you hide your struggles very well). Thank you for being you. I know you get worried and I am sorry for that and I am sorry for all you have been through.

3
@thumb_lina

Found this today and it captured the day to day reality of chronically ill so well! #chronicillness #chronicpain #spoonielife #migraine

0
@pixiefights

Distraction! 🎮💕

3
@mermaid.rouge

I found this and I'm not sure who made it but it shows the way anxiety affects your body. Unfortunately when you have anxiety disorder it switches on your fight or flight response and the release of adrenaline and associated hormones causes symptoms. There is a part of the brain called the amydala..if i could take this away i would most likely not have my problems but it's not removable lol. #pmdd #pmddawareness #adenomyosis #mentalhealthaware #fibro #pcos #healthadvice #stress #spoonie #chronicillness #chronicpain #mentalhealthblog #health #healthvlog #healthblog #spoonielife #support #healthblogger #pain #mentalhealth #invisibleillness #fightorflight #stressresponse #anxietydisorder #healthinfo #amygdala #brain #anxietyhelp #ocdproblems #psychology

1
@rising_zebra

After Saturday and pushing myself way too hard, I wanted to just lay in bed for days. But with my stepdaughter home for her visit I wanted to be able to go out and do some, so instead of doing it all at once, I paced better and stayed medicated. Everyone was off which was great, so after breakfast we would go do something and then rest and then back at it again. We were able to see the flamingos, a circus act, and the Aria with this giant gold dragon over the past few days! The best part was just all being together! With the rain, cannabis alone made this possible. I used way more than usual, but I was doing way more as well. I have actually figured out more about choosing the right strain for me and buying on sale! I will make a post about that coming soon. Overall my pain levels are high and I was pushing myself, but I did it and we all had a blast! We actually played a circus game together too! I don't completely know what cannabis does to my body. I am not cured and I have pain, but I can do more than before and for that I am grateful. 🌿💕 . . . . #lasvegas #aria #familytime #rainydays #casinos #chronicpain #chronicillness #chronicbackpain #spoonielife #spoontheory #invisibleillness #doilooksick #ehlersdanlossyndrome #ehlersdanlos #legalizemedicalmarijuana #cannabisfuelsme #cannabisismedicine #medicalrefugee #risingzebra

9
@stitchin_spoonie

. Reduce✨Reuse✨Reiki Infused . Reusable facial rounds crocheted out of second hand yarn and infused with reiki by #chronicillnesswarrior @seaspriteyogi 🥄🧶 . Save the planet one face wash at a time! Instead of grabbing a bag of cotton balls, or a case of facial wipes, use one of these facial rounds to remove make up, wash your face or help you with your facial treatment - then throw it into the wash when you’re through! . $12 for a set of 5 . Grab a set in this baby blue with rainbow specks before they are gone! 🌈💙 #reusable #facialrounds #facialtreatment #makeupremover #crochet #crocheting #reduce #reuse #secondhand #reiki #reikiinfused #makersgonnamake #makemagic #chronicillness #spoonie #spoonielife #onespoonatatime

0
@holistiq_

Before I do anything, I first do nothing. #todaysaffirmation⁣⁣ ⁣ Do you need a reminder to rest, and rest without guilt? 🙋🏻‍♀️ Having a whole day free has me feeling very A.D.D. about everything I want (or feel the need) to do. My head reminds me that it's still uneasy from Sunday's migraine (the worst one I've had maybe ever?). Not to mention yesterday's activity... Yes, it's ok to slooooow down. So just a reminder to us all. REST! 🖤 ⁣⁣

6
@mrsprettyontopthefirst

True story. 😅🤕💙💙💙 My eye pain (atypical trigeminal neuralgia, but really just Lyme and Bartonella beating on my nervous system) woke me up again this morning. At its worst it was every time I slept for anything approaching 4 hours. Every time. Now, a year and a quarter later, it’s down to about once every 2 weeks. But it still hurts just as much when it happens. 🤕 This time I didn’t wake my poor hubby, who’s been short on sleep for a while. 💙💙💙 . . . #invisibleillness #painsomnia #chronicillness #chronicillnessmemes #butyoudontlooksick #spoonie #spoonielife #lymelife #lymie #lymedisease #chroniclymedisease #neurolyme #lymewarrior #bartonella #bartonellasucks #lymeuncensored #iloveyouthismuch #trigeminalneuralgia #atypicaltrigeminalneuralgia #eyepain #nervepain #chronicpain

0
@amfmigraine

Sometimes we just need to take a deep breath. And another. And as many as it takes for the situation to resolve itself. Read our tips at the link in bio for incorporating mindfulness to reduce stress and increase awareness in all facets of life. ⠀

4
@thespoonkit

My first ever pin layout with my most recent, and accessible, pins! ✨ (On my gorgeous new ITA bag @dakthesavage got me for my birthday! 🥰) I used to collect pins a long time ago and loved it. I'd stick them all over my first bag that I got from my first big, real convention, and wore it everywhere. After winning the kitty pin giveaway, that pin love (and perhaps obsession) has been renewed. I have more pins on the way and I can't wait! 💖 . . . Artists are tagged! Please give them love and support! Ita/Pin Bag also by @nattycatpins . . #spoonie #spoonielife #itabag #pinbag #pins #enamelpins #cat #fatcatfanclub #hedgehog #onemorepage #tea #grinch #moon #supportartists #pinsofinstagram #artistsoninstagram #happy #grateful #love #gift #present #sparkle

8
@modernlittlevictories

I’m all about simple easy veggie sammies on days when I really can’t be arsed to cook. Also can’t wait to be punished by instagram’s “al gore rhythm” (shout-out if you get the reference 😜😜) for not posting for a few days or spending a lot of time on instagram 🙄🤦🏼‍♀️🤦🏼‍♀️

2
@creativebeyondchronic

Never forget who you are. No storm of life can steal your true identity. Wonderful artwork from @rena.awry #creativebeyondchronic

2
@jessicanoraartist

Happy birthday to my partner who keeps me going! Shout out to all those amazing caregivers and S.O.s out there who help care for us chronies. Thank you for seeing through the health issues to who we are as people. #WeAppreciateYou⠀ •⠀ •⠀ •⠀ •⠀ •⠀ •⠀ •⠀ #caregivers #LivingChronically #spoonieart #spoonieartist #artfromillness #fibromyalgia #Narcolepsy #autoimmunedisease #chronicillness #butyoudontlooksick #spoonielife #spoonie #autoimmune #autoimmunewarrior #TheSpoonieSisterhood

0
@lia_has_endo

If you missed our live about navigating Endometriosis and marriage you can now watch it on my YouTube channel! The link is in my bio 💛💛 #endometriosis #endowarrior #endogirl #endo #chronicillness #invisibleillness #sickgirlsclub #spoonielife #endostrong #1in10 #butyoudontlooksick #endowarrior #endosisters #endobabe #pelvisproblems #chronicpain #pcos #infertility #anxiety #womenshealth #marriage at Denver, Colorado

0
@half_full_lemonade

Today the worry bug bit me. It’s been a tough day. Lots on my mind. The kids have been home from school which means my schedule has been thrown off. The song "Don't Worry, Be Happy" by Bobby McFerrin makes me smile. It’s a song I used to love as a child. My father would sing it to me and it would make me laugh. I played it today - laughed and thought... oh I have lots to worry about each day... but I am also happy. I put a smile on my face and thought he is right it will soon pass. Maybe it won’t pass right in this moment, but I will get there. I always do. We are allows to have these days. We are allowed to have our mind go to the what if’s. I will use this time to make some lists for myself. To establish plans. To think ahead. Taking the time to write down my worries will help me to release them. What do you do when you are feeling consumed with worrying thoughts?🍋 #anxiety #personalgrowth #chronicmigraine #invisibleillness #survivor #recovery

2
@tiffanydeluisi

Let me ask you something…⠀ .⠀ Are you feeling sick and tired?⠀ Are you frustrated without answers?⠀ Are you ready reverse the cycle and feel great?⠀ .⠀ ⠀ If so, I want to invite you to my free online masterclass:⠀ How To Be More Than Healed So You Can Thrive⠀ .⠀ By joining this live masterclass you will⠀ ✨Learn how to reduce stress so it isn’t impacting your overall health and aggravating your symptoms.⠀ ✨Learn how to improve your digestive health so that you can reverse the symptoms that have been keeping you sick and tired.⠀ ✨Learn how to control your pain so it doesn’t make you miserable and prevent you from living.⠀ .⠀ Masterclass takes place Thursday, February 21. All the info is located in the link in my bio.⠀ ,⠀ ,⠀ ,⠀ ,⠀ ⠀ ⠀ ⠀ ⠀ #invisibleillness #invisibledisability #endthestigma #positivelyspoonie #invisibleillnessawareness #womenshealth #invisibleillnesswarrior #chronicillnesslife #illness #health #pain #everydaypain #chronicillnessawareness #spooniewarrior #chronicdisease #spoonie #spoonielife #chronicillness #chronicpain

0
@lonewulf71

How I start my day...I wake up in pain, today it’s my head and neck all the way down my spine into my mid back. I must up the gumption to roll over and get my pain meds, and then I wait for some relief. I mess around on my phone, and slowly start to stretch out my body. A lot of days I lay in bed for at least an hour before I actually get up. And this is when my fibromyalgia in not flaring. #therealme #selfie #selfportrait #longhairdontcare #faith #blessed #spoontheory #spoonie #chronicpain #chronicillness #dogmom #dogmomlife #degenerativediscdisease #fibromyalgia #lovedogs #furmom #spoonielife #gastroparesis #chronicheadache #anxietylife #aunaturale #aspergers #painsomnia #actuallyautistic #redhaircolor

0
@jaidenpricexoxo

It's ok to rest and heal. It's ok to fuel your body. Remember to eat today, drink some water,and take you medication! 💜 at Cary, North Carolina

3
@allthatmoxie

Self care doesn’t have to be glamorous. It’s not all beautifully curated bubble baths and luxurious massages (though I love those and definitely indulge when I can). Sometimes it’s putting on a face mask while you finish up work for your job (I work at home) because your skin is breaking out from stress. And it’s all goodness. Remember, self care is a necessity, no matter what it looks like 💚 #selfcare #tuesdaytips #tuesdaythoughts #selfcareisntselfish #selfcareisnecessary #facemasks #getitdone #takecareofyourself #takecareofyourskin #spoonielife #spooniethings

2
@sickchickkie

He decided to get right up in the camera! Lol #pets I cannot get enough of this little man!...Peanut like I said only comes out when he wants to now! Bloody log lover ain’t he! 😂😂😂 Butter however is the now the weirdo that likes to pose! Lol 🦎🤣😂💜 #fibromyalgia #chronicillness #chronicpain #spoonie #fibromyalgiaawareness #depression #anxiety #asthma #life #spoonielife #butyoudontlooksick #mylife #pain #tired #exhausted #love #reptiles #me #lizard

5
@chronically_cheerful

Who else is living between *no longer* + *not yet*? Though this space is full of change and uncertainty, it’s also where magical transformation + healing happens 💫 Allow yourself to fully honor and appreciate in-between time as much as the past and future. All we have is now 🙏 #bepresent #trusttheprocess #liveinthenow #embracethejourney Via @aolanow

13
@daynamarieschaaf

✨P L A Y✨ . The opposite of PLAY is not work. The opposite of PLAY is depression. . 🤯 . This quote really struck a chord with me when I was reading @brenebrown’s The Gifts of Imperfection. Growing up I was encouraged to play all the time; outside, in the basement, with the neighbors, cousins, at school. But when we grow up we often leave play behind as something for the children. Brene finds in her research that play as an adult is a VITAL component of living a whole hearted and happy life. . ✨ . The biggest barrier to play, as adults, is that exhaustion has become a status symbol and productivity has become a symbol of self worth. . 🤔🤯 . Yeah. Let that sink in a moment. . ✨ . I’m a very goal oriented person; I love to-do lists and absolutely get a sense of satisfaction from a day when I “get a lot done”. Being still, learning to relax and play can be difficult for me, especially when I feel like there is something I SHOULD be doing. (And there’s always something!) . ✨ . I have learned, however, that when I don’t build in time for play, rest and recharge, I am depressed, unsatisfied, and burnout. . ✨ . Play doesn’t have to mean a trip to Thailand, it can be as simple as coloring, doing a puzzle, cooking a new meal, taking a bath, DIYing something around your house. It’s not binge watching Netflix. (Sorry). Play and true rejuvenating rest requires that we get actively engaged. . ✨ . How do you play? Do you struggle with holding play and rest at the same status as work? Do you use productivity and exhaustion as a measuring stick? Talk to me. Tell me I’m not alone!👇🏼👇🏼👇🏼 . . . . . #autoimmunity #spoonielife #autoimmunediet #chronicallyill #chronicillness #invisibleillness #paleo #spoonie #glutenfree #healthylifestyle #autoimmune #grainfree #selfimprovement #brenebrown #wholeheartedliving #autoimmunedisease #health #chronicpain #healthandwellness #mentalhealth #guthealth #chronicfatigue #livewell #hormonehealth #healthybody #play #aip #selfcare #autoimmunewellness

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