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Shane Hartley

🦄Fighting Ankylosing Spondylitis 💪Fitness coach (lost 60+lbs) 👼Son in Heaven 👫Twin dad 🐶@talula_the_bulldog 👨🏻‍💻🎨@shanehartleydesign

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After dinner walk back to our hotel at Ravensburg, Germany

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Seriously the best meal I’ve had in Ravensburg, Germany. Oriental steak salad with goat cheese. #travelingstarchfree

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By the Italian restaurant we went to tonight. Menu choices are hard for me here. It’s all in German and special food needs are not really provided. So the last couple days has been steak with veggies or salad...for all my meals. All the food here seems to be breaded, coated in a sauce, dairy and starch laden. I feel like the obnoxious guy that has to order something complicated and not on the menu to find something to work.

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I figured I should actually take some pictures to prove I was actually here. :) at Ravensburg, Germany

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I’m so glad to finally have my luggage! 3 days in the same clothes....I couldn’t do it any longer.

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So this is my first international flight since starting my no starch and dairy free diet. I completely forgot to notify the airline of my special food needs. All the meals were heavy wheat and dairy and starches. After I just told them it was ok and I didn’t need to eat anything the flight attendant came back a few moments later with a dish they had in business class. I told him this was great and I just wouldn’t eat the pasta. #steak #asparagus thank you @lufthansa_usa

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For some reason I’ve got this dejavu feeling .... oh wait I was here on Friday. at Seattle-Tacoma International Airport (Sea-Tac)

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In addition to the OFF LIMITS list I posted...there are “fringe foods” that are triggers for some people with AS. And some can tolerate these in very small amounts. Personally, I’ve only taken out dairy because I know that I’m already a little intolerant (even before I was diagnosed with AS) and because research shows it’s the 2nd food source for the Klebsiella bacteria. I probably should also start eliminating or testing theses other foods as well.

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When I tell people I’m on a No Starch Diet for my AS, I often get some interesting looks. “What do you eat then?” “What has starch?” “So like an keto diet?” And to be honest I also was super unaware of what foods contained starch. This list is really just a starter list and not exhaustive. But it’s a good guide.

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For those interested in my design work/life ...

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In 2015, Dan Reynolds, lead singer of Imagine Dragons, announced to a packed concert that he suffered with Ankylosing Spondylitis: "I've never said this publicly ever," he started, pausing for the rambunctious crowd to quiet down. "I have something called ankylosing spondylitis. It’s an autoimmune disease." As the audience cheered him on, he explained the disease in simple language: "Basically…your immune system thinks that your joints are a disease and so [it] attacks your joints and you get arthritis…and your joints can fuse together and it's a pretty scary thing. This disease can be really lonely. It's important to find a community where you can speak with people and learn that you can get to a point where the disease won't keep you from doing what you want to do." —Dan Reynolds http://www.usa.thisaslife.com/lifestyle/Dan-Reynolds-joins-This-AS-Life/

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The food source for Klebsiella is starch. When one eats large amounts of starchy foods (such as bread, potatoes, cakes and pasta), the Klebsiella bacteria feed and multiply. The immune system makes antibodies against the microbe and these antibodies attack both the bacteria AND the HLA-B27 particles, as their structures are very similar. The destruction of these cells in the bones causes damage to the spine and creates the classic AS symptoms of pain and inflammation. by removing starch (the food source for Klebsiella) from the diet of AS patients, symptoms would either dramatically reduce or disappear. Reading that, makes me scared but hopeful that a #nostarchdiet could be helpful. But I also know it’s not a cure.

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Klebsiella looks similar to the HLA-B27, this confuses the body and causes it to manufacture antibodies to its own tissues in a process called Molecular Mimicry. So the body thinks it’s attacking the bacteria but it’s also attacking the spine. Fun times.

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HLA-B27 is associated with various autoimmune diseases. And most specifically Ankylosing Spondylitis. As you can see it’s also pretty rare. Having the gene doesn’t guarantee that you have the disease but over 90% of people that have been diagnosed with AS are HLA-B27 positive. So it’s the first test in determining if you have it.

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Organic chicken Sausage with broccoli slaw bowl 🍲 Kale, spinach, mushrooms, broccoli slaw, Brussels spouts. 👩‍🍳 @watchjojogo

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Oh by the way if you want to see how my amazing #ironwoman wife makes these dishes I post...go check out her insta stories!

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I got home late from work and these amazing Zucchini Fritters were waiting for me! So good! 👩‍🍳 @watchjojogo ————————- Ingredients: Shredded zucchini Eggs Coconut flour Salt Topped with avocado and goat cheese 🧀

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Egg and prosciutto cups. Great for grab and go breakfasts! 👩‍🍳 @watchjojogo

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